Other Autism??? - I know many of you have autism and I would like to hear your take.

[HomelessJoe]

Honestly I think Autism is just a way that people who follow the crowd make themselves feel better. Than us who make our own path. Autism isn't a problem. People saying it is, that's the problem. In a different era people would just say they are a free spirit. Now they say they are Autistic. Their is nothing wrong with Autism some sheep follow the herd we prefer to jump the fence.

 

[user56652]

Honestly I think Autism is just a way that people who follow the crowd make themselves feel better. Than us who make our own path. Autism isn't a problem. People saying it is, that's the problem. In a different era people would just say they are a free spirit. Now they say they are Autistic. Their is nothing wrong with Autism some sheep follow the herd we prefer to jump the fence.

Its an interesting theory. I've found myself jumping the fence because following the herd just makes things worse. I travel as much as i can to give me some respite. The further and farther I am from my home town (and its small town mentality) the better. Like many people I wish i could win the lottery and move but I'd still be the same just with a bulging bank account.

 

[captain jigglypuff]

I was fine with my diagnosis because in a way I finally got stopped being blamed for typical things autistic kids often do such as having loud emotional outbursts when I overwhelmed with stress or overstimulated somehow or why I tended to have very specific interests other kids my age had.

 

[Lost in the Woods]

I am still waiting for my evaluation referral. For me autism would explain a lot. I have never fit in nor do I have the desire to at this point. For me it is about understanding myself. The world feels like an insane asylum.

 

[captain jigglypuff]

I have never wanted to be “cured” and I feel it’s very offensive that some parents are advocating for finding a cure. I actually turned off a movie that up until the last ten minutes had been portraying twins with autism in a very positive light and I was enjoying it. But then the mom says about wanting to f8nd a “cure” at a gathering for autism awareness and I instantly got angry and thought, “I spent nearly two hours on what I thought was a positive portrayal of autistic kids who weren’t being viewed by the mom as burdens only for it to turn out to be a movie about want to find a cure?! F THAT NOISE!” And I immediately turned it off.

Now the reason I find it so insulting that pews t a “cure” for autism is simply because I literally have no idea what it’s like to not having autism. Yeah I was undiagnosed for years but the symptoms and signs were always there and no one knew how to read them at the time. Autism makes up a huge part of my identity as a person. There was never a time when I never had it. This isn’t like cancer where you live your life completely cancer free when it suddenly shows up unexpectedly one day. I feel that a “cure” would take away what makes me well me. Why do I have to change for the world just to be considered a valuable part of society and the world? Why can’t it be the world that changes how it sees and accepts autism?

 

[user56652]

I never

I have never wanted to be “cured” and I feel it’s very offensive that some parents are advocating for finding a cure. I actually turned off a movie that up until the last ten minutes had been portraying twins with autism in a very positive light and I was enjoying it. But then the mom says about wanting to f8nd a “cure” at a gathering for autism awareness and I instantly got angry and thought, “I spent nearly two hours on what I thought was a positive portrayal of autistic kids who weren’t being viewed by the mom as burdens only for it to turn out to be a movie about want to find a cure?! F THAT NOISE!” And I immediately turned it off.

Now the reason I find it so insulting that pews t a “cure” for autism is simply because I literally have no idea what it’s like to not having autism. Yeah I was undiagnosed for years but the symptoms and signs were always there and no one knew how to read them at the time. Autism makes up a huge part of my identity as a person. There was never a time when I never had it. This isn’t like cancer where you live your life completely cancer free when it suddenly shows up unexpectedly one day. I feel that a “cure” would take away what makes me well me. Why do I have to change for the world just to be considered a valuable part of society and the world? Why can’t it be the world that changes how it sees and accepts autism?

I've never thought of it that way. I was diagnosed with what was then termed aspergers syndrome over a decade ago and i felt both relieved and ashamed (for the record i also have dyspraxia and feel the same way) but over the last 4 years probably as a result of the trauma of 2021-22 I've started to open up about it but the anxiety levels are sky high.

 

[Lost in the Woods]

It is official, I am level one autistic.

 

[Teasel]

It is official, I am level one autistic.

Congrats.
How do you feel about it?

 

[Lost in the Woods]

I feel pretty good about it. When my friend told me I should look into it and I did, my eyes were opened. It really explains a lot. And thank you.

 

[Teasel]

@Lost in the Woods
Good stuff. For months after diagnosis it felt like I was re filing everything in my brain, memories, views and values, with the new knowledge. Such an important realisation.

When you get the chance look into Sensory diets, maybe consider some sessions with an occupational therapist to help you figure out what works for you.

 

[Lost in the Woods]

I am trying to get admitted to a facility that treats people with complex causation neurological problems. I have been working on that for 6 weeks. I was diagnosed with a rare neurological condition 25 years ago. Not much is known about it since only between 200 and 1,000 people in the us have it. It is diagnosed by a certain number of repeats of a certain defective gene. My test was 79 repeats and 80 is the threshold. Since I was dizzy and falling they said I have it. I always questioned it but accepted it. So I have that, childhood abuse, a 28 year marriage to a covert narcissist, a bad concussion 4 years ago and autism. The clinic I am trying to get into has a team approach with world class specialists in each strand of causation. I see it as an amazing opportunity if it happens. I already have a referral from my neurologist and she is the absolute top specialist in my neuro condition. My doctors at the Mayo are supportive of it and now I have this new evaluation. I am pretty excited about this but the clinic is extremely hard to get into.