Other Do you happen to have multiple sclerosis as well?

[goingonhope]

I am wired tonight and I am very wound up and scared. Yesterday, two doctors diagnosed me with MS and though I've suspected this all along, off and on for near 2 decades, I had fallen into disbelief that this was so. So when yesterday doctors having compared all 6 MRI's, my medical records and history (past and present), and longstanding relapsing and remitting symptoms they (20+) yrs. later diagnosed me with MS. I'll be starting medication soon. I am afraid.

Somehow, I felt calmer without this diagnosis. Though so much more makes perfect sense now. In fact I'm now remembering many, many difficult pieces from time that had been lost to memory. I am entirely to overwhelmed.

Is there anyone out there that happens to have MS as well as Ptsd? If so, how are you doing and managing?

 

[becvan]

I don't Hope but I have two members of my family that have it and I have an autoimmune disease myself. The treatments for them are generally the same. Anti-inflamatorys, steroids, and immunesuppresants. Uck. I'm glad that you finally know what is going on. That has been a long time coming! Try to slow down on the information overload. I know thats hard though.

How are you doing today? Hang in there.

love, bec

 

[goingonhope]

Thanks bec. I'm doing alright and I'll hang in there. You do so as well, please!

Yup, sounds right, anti-inlammatory's, steriods, immunosuppressents.

Sincerely,
goingonhope

 

[goingonhope]

I was given questions elsewhere... (Thank you.) ...regarding my present worries and concerns and I've decided to answer here, with one:

One worry and concern is an unexpected paralyzed like freeze / rigidity of my rib cages, often when I'm waking mornings.

The first time it happened I wasn't gonna be able to move anywhere due to it and so fortunately I thought intuitively and just allowed myself to go back to sleep. Other times I've just lied in bed and patiently waited for it to pass. This length of time differs anywhere from 10 to 30 minutes.

This past Sat. morning however was different and alarmed me. It was a very tight, pressured and crushing squeeze that hurt and jolted me awake.

I read and somehow I made the connection to it likely being called a MS hug which I've previously experienced with multiple sclerosis and later I thought I understood. I just didn't know then, it can happen mornings too while in bed, nor did I know that it can wake me and or last.

When it's regular mornings, it begins to scare me.

When it makes it impossible for me to temporarily move, it can scare me.

And, when it hurt and scared me awake the other morning it really scared me.

I believe I have some remaining faith and strengths, Sometimes though I just need to trust that these can be available and present if I should really, really need these.