- Post starter
- #13
Wow...thank you all for your incredible support.
I really am not sure about the special olympics thing as far as who and what they are geared to, but will look further into it.
One of the problems is my physical problems which makes going out a lot of times restrticted because I am too sore to move or I am just too miserable.
His obsession is video games. He has every system available and he reads cheat books and studies cheattcodes over the internet. We have had private swimming lessons and he really does enjoy it. We did go overnight to an indoor water (about 2 weeks ago)park....again, my physical restraints are not helping. We ended up having to leave early as I could not walk anymore, literally. He cried for 2 hours after. The child we brought did not like the waterslides. He also has aspergers...I felt awful but I tried.
I think sometimes I just become overwhelmed.
Evie...thank you for posting too. I have not seen you here for a long time and I thank you for taking the time. The story you told about the screaming as a child, I relate to so much. I have never felt like I did not want him. Last night I got frustrated with the demanding and just stopped answering and told him, I am your mother, not your slave. He SCREAMED...Mommy...over and over...you are being selfish and unfair. It lasted over 20 minutes and I was not giving in (this was all because I brought a drink to the bottom of the stairs and he wanted me to bring it up. I had already been up the stairs a thousand times). Physically, my legs felt like lead bricks and I had to just not move. So, the screaming...I get!!!! Literally as he was screaming, I wanted to explode in tears and frustration. As I sat here listening to him, I literally had sweat dripping over me. I wanted to give in...but I did not. I try to understand and I really have tried a lot of things.
It is overwhelming as my life does revolve around his needs 24 hours a day. I am exhausted. He sleeps 10-5, so I do not get a lot of down time. I am having a hard time forgiving myself right now for not having patience right now...I raise my voice (never saying mean things) or apologizing for saying something that upsets him.
My body hurts...the headaches are overwhelming me. I vomited until 4:00am yesterday after having to be in the same room with his father...the whole situation is just hard! We have a very strict schedule, everything is routine and the same most days. All his food is even the same and he screams if he smells something cooking, other than something he is familiar with. As a Mother I worry about his nutritional intake daily but I gave in and fighting three times a day over food was enough to make me want to give up. The general arguing is hard. IF there is change, usually an automatic meltdown unless he is totally prepared, and as we know life just does not work that way.
Again, thank you everyone for your input and suggestions. I know I am just overwhelmed with everything I am trying to handle on my own. I do speak to others...have other mothers but I DO have a hard time asking for help. I tend to have the kids here, so generally every weekend it is not just one special needs child, it is two, specifically one and I tell you his mother is probably the most selfish person I have ever met. I HAVE asked her to have the kids there. In 6 years, my son has been there twice and he (my son's friend) was here at least half the summer and most weekends. My other friend, her child has aspergers, we talk a couple of times per week and she helps but she has her own life, boyfriend, works full time. Another parent, she has had Devon the two nights since the summer that I have had to myself, so she does help. We also have her child here.
So...I am at a loss for words now. Thank you everyone for your input. When I move with my mother, she will help. I just have to survive another 2-3 months like this, so there is a light at the end of the tunnel. He is also excited about moving to our own house...I know there are better days ahead.
I really am not sure about the special olympics thing as far as who and what they are geared to, but will look further into it.
One of the problems is my physical problems which makes going out a lot of times restrticted because I am too sore to move or I am just too miserable.
His obsession is video games. He has every system available and he reads cheat books and studies cheattcodes over the internet. We have had private swimming lessons and he really does enjoy it. We did go overnight to an indoor water (about 2 weeks ago)park....again, my physical restraints are not helping. We ended up having to leave early as I could not walk anymore, literally. He cried for 2 hours after. The child we brought did not like the waterslides. He also has aspergers...I felt awful but I tried.
I think sometimes I just become overwhelmed.
Evie...thank you for posting too. I have not seen you here for a long time and I thank you for taking the time. The story you told about the screaming as a child, I relate to so much. I have never felt like I did not want him. Last night I got frustrated with the demanding and just stopped answering and told him, I am your mother, not your slave. He SCREAMED...Mommy...over and over...you are being selfish and unfair. It lasted over 20 minutes and I was not giving in (this was all because I brought a drink to the bottom of the stairs and he wanted me to bring it up. I had already been up the stairs a thousand times). Physically, my legs felt like lead bricks and I had to just not move. So, the screaming...I get!!!! Literally as he was screaming, I wanted to explode in tears and frustration. As I sat here listening to him, I literally had sweat dripping over me. I wanted to give in...but I did not. I try to understand and I really have tried a lot of things.
It is overwhelming as my life does revolve around his needs 24 hours a day. I am exhausted. He sleeps 10-5, so I do not get a lot of down time. I am having a hard time forgiving myself right now for not having patience right now...I raise my voice (never saying mean things) or apologizing for saying something that upsets him.
My body hurts...the headaches are overwhelming me. I vomited until 4:00am yesterday after having to be in the same room with his father...the whole situation is just hard! We have a very strict schedule, everything is routine and the same most days. All his food is even the same and he screams if he smells something cooking, other than something he is familiar with. As a Mother I worry about his nutritional intake daily but I gave in and fighting three times a day over food was enough to make me want to give up. The general arguing is hard. IF there is change, usually an automatic meltdown unless he is totally prepared, and as we know life just does not work that way.
Again, thank you everyone for your input and suggestions. I know I am just overwhelmed with everything I am trying to handle on my own. I do speak to others...have other mothers but I DO have a hard time asking for help. I tend to have the kids here, so generally every weekend it is not just one special needs child, it is two, specifically one and I tell you his mother is probably the most selfish person I have ever met. I HAVE asked her to have the kids there. In 6 years, my son has been there twice and he (my son's friend) was here at least half the summer and most weekends. My other friend, her child has aspergers, we talk a couple of times per week and she helps but she has her own life, boyfriend, works full time. Another parent, she has had Devon the two nights since the summer that I have had to myself, so she does help. We also have her child here.
So...I am at a loss for words now. Thank you everyone for your input. When I move with my mother, she will help. I just have to survive another 2-3 months like this, so there is a light at the end of the tunnel. He is also excited about moving to our own house...I know there are better days ahead.
