• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

Fibro Fibromyalgia

Status
Not open for further replies.

hodge

VIP Member
So, I was diagnosed with this yesterday. I had been suspecting it for a few weeks but didn't really know. All I know is the pain.

It feels like whenever I finally get a handle on something, the universe throws something else at me.

Anyway, I'd really appreciate hearing from other fibro sufferers about how you deal with this. At the moment, I've got the headache, pain in the back of my skull, just above my neck, then a bit lower, behind my shoulders. And, always, whenever I go up the stairs, the back, leg and hip pain. Knee pain kicks in when going down the stairs.

Sometimes I just want to cry. Then I usually remind myself of how things could be so much worse.

Like many here, though, I depended on physical activity and exercise to help my PTSD symptoms. I haven't been able to do them for months. At the same time, pathetically, I've been comfort eating too often -- something I've never done before. And my current weight shows it. I am just disgusted.
 
Adopting a whole food plant-based vegan lifestyle, eliminating artificial fragrances, sweeteners, colors, etc. from hygiene and cleaning products and everything I apply, breathe, and ingest, eliminating caffeine and alcohol, and making it a point to move in some way every day, even if it's low impact and only involves stretching, have been the only things I've found to offer significant and lasting relief. It also helped me lose 110 lbs. However, none of that was ever suggested by doctors or medical staff.

Hot epsom salt bath soaks a few times a week, dry brushing my skin before showers, essential oil blends for topical application and aromatherapy, acupuncture as needed, chiro as needed, applying castor oil and magnesium gel rather often, and monthly massage therapy to keep the fascia flowing also help. It takes a village, indeed. I live in an area where many practitioners barter, making it possible to utilize these healing avenues. Otherwise, many things would be way out of reach.

Prior to adopting those cleaner consumption and multiple self-care habits, I was making a conscious effort to only eat local meat, local dairy, and local eggs based on educating myself about factory farming and all the crap that's injected and fed to the animals being exploited. We are what our chosen food selections eat, too. Prior to that, I was a hardcore fast food eater, freezer meal and microwaved meal eater, had to have meat cheese and bread for damn near every meal, drank sodas and beer and sweet tea and coffee very often, and ice cream, starbucks, and reese cups were my most often sought after "treats" for myself. I was too busy and too tired to cook, so I had to reach for the things I could work with. Little did I know, I was steadily being the main contributor to most of my own suffering.

However, the inflammation, morbid obesity, pain, brain fog, and fatigue was still overwhelming and ongoing, even with choosing local meats and animal products. It wasn't until I totally eliminated the animal products, gluten, caffeine (mainly diet sodas and coffee and sweet tea), alcohol, and highly processed "convenience" foods that I began to notice significant and lasting improvements. Learning where the animals received their nutrients did a lot to open my eyes. Eliminate the middle man, so to speak and go straight to the source, the plants.

Endocrine disruption is another thing you occasionally hear of but is never really talked about in any great detail. I used to be an avid burner of yankee candles, scentsy stuff, bath and body works lotions, sprays, deodorized trash bags, glade plug-ins, etc. and would febreeze the f*ck out of my furniture and such when I was still a smoker over 11 years ago. Learning how those ingredients interact and affect our bodies as they're being absorbed into our system was eye opening, too. But I never noticed just how much until I cleaned up my own act from the inside out.

I was diagnosed with severe fibro and severe osteoarthritis, among many other things, several years ago. I still suffer from pain quite a bit on a daily basis, but can recover from it and better work with it and through it simply by adopting this new lifestyle. I no longer take prescriptions for pain or any of the other diagnoses. It's created difficulties in other areas, however, as I seem to be the only one within close proximity of this Big Ag area who wishes to actively practice these things and am often mocked and have to work hard at staying prepared everywhere I go, but as long as I feel and see the results, I'll continue practicing.

My heart will never allow me to partake in the purposeful demise of other living things again, willingly. We obviously digest more than just the product we purchase, also the energies of everything those living beings used as products have experienced, as well as the energies of those preparing the products. It's no wonder there's hardly a healthy human left once you look at all the dots that connect. Everything is energy and we must carefully select what we choose to digest and immerse ourselves in.

Now that I've learned more in depth info about the food and beverage industries we feed on, and lived the results of not consuming them for a couple years, I can't simply choose to un-see the path most things take to get to our forks and such and go back to the same old choices. There's a very real and clear connection between how I feel and what I consume and surround myself with, but no one ever taught me to look any deeper, rather they'd continually offer even more sweets and "treats" to hopefully ease my suffering. A vicious cycle indeed.

Many feel that's just crazy talk and that diet changes like that are simply too drastic, too expensive, and too much work, but I view repeatedly and blindly prescribing random meds that further deplete my systems in often irreversible ways and suggesting surgical procedures to try to temporarily "fix" me by removing vital parts of me to be drastic. However, as we know, everyone's mileage and experience varies. I wish you effective and lasting relief in all ways however you choose to address it.
 
Wow, thank you so much for sharing all this, @Tornadic Thoughts. I really appreciate it.

I'm not too big on meat, but I love dairy, and I know it's not good. I also only buy local meat and eggs, not factory farm products, but I suppose that doesn't make too much of a difference. Luckily, I've never been tempted by the "scent industry," so don't have to work on that. Totally giving up caffeine will be tough, though.

Since this has hit, most of the time I crave my macaroni and cheese, which is not super high in fat, as I don't even add butter . . . two eggs, skim milk, a little Velveeta, some shredded swiss and shredded cheddar, and lots of garlic. It is not even super cheesy, because I don't add that much. Blah, why am I craving something that's not good for me? On the plus side, I also crave vegetables I love, like broccoli, cucumber, tomatoes, carrots, spinach.
 
@hodge I was diagnosed about 18 yrs ago. Yes, I know the pain well. Plus I have osteoarthritis and now osteopenia. So, it's a double whammy. I either hurt from muscle pain, or joint pain.

The one thing that I was advised of yrs ago, when I was diagnosed....... EXERCISE!!!! Really break a sweat when exercising. I looked at him like he was f*cking nuts!!!! Like he had 5 f*cking heads. I walked out of his office crying.

I finally did start exercising, and breaking a sweat.... it helped!!!! Seriously, you will hurt in the beginning, and will be exhausted, but it will help!!!!,
 
I understand what you say about not wanting to contribute to taking life to eat it, but plants have feelings, too. There's been ample research on that, and if I thought about it enough, it would drive me crazy. I think scientists should be, and some are, working to create synthetic foods so that we don't have to kill or deplete any living thing to survive.

Thank you, @She Cat. Yes, I have heard that, too, and I will keep moving. As soon as this dang bat bite heals, I'll be back in the pool!

But, can I ask? Can you go for walks, @She Cat? Lately I can walk about three houses down the street then I sort of crimp up from pain. How do you know how far to push it?
 
Last edited by a moderator:
Yes, plants have feelings, too, but lack a central nervous system, if I understand correctly. I often feel bad when I mow knowing just how much nutritious goodness that I'm chopping down that is growing freely, yet goes overlooked and unrecognized by most.

I don't pretend to be an expert on anything except my own hard learned self-care, and that continues to be an ongoing learning process as each new day arrives. I'm blown away by the results I've experienced and am eager to share what has proven to be effective for my particular biology. I wish more folks would have crossed my path with this type of information many years ago.

Plants grow and often drop their fruits, making them game for us to come along and harvest, and many continue to produce the more you harvest it, and drop their seeds along the way to continue growth.

Animals don't continually grow and drop their tenderloins, chicken legs, bacon, and rib eyes when they are ripe, nor do they voluntarily head to the racks to be repeatedly and forcibly impregnated by humans then have their babies snatched away to produce even more milk for cheese and such.

Would you rush out with your kids, or even alone, to a 'slit your own steak's throat and watch it bleed out while you wait to grill it', or 'forcibly impregnate your own dairy cow and then help kill the male babies that can't produce milk" farm just like you'd go to a 'pick your own fruit' farm? There's a reason much of these things are kept out of the public eye and are often marketed as being "happy cows, pigs, lambs" and such.

Synthetic stuff is not readily recognized, absorbed, and/or healthily eliminated from our bodies, either. Reading works from the 1920s by Arnold Ehret helped open my eyes to how important it is to pay attention to how well we eliminate what we ingest. I also learned the hard direct way that vegan eating alone doesn't equal healthy eating when I was choosing to ingest the various meat and cheese substitutes packaged in the stores.

Hell, even oreo cookies are considered to be vegan. I quickly gained 30ish pounds back by choosing vegan "convenience" foods. Whole food plant-based realness, along with mindful food combining, rational fasting, and healthily hydrating is what my body works the best with, and I'm willing to bet most others could benefit from that, too, with or without chronic dis-ease diagnoses. Although the learning curves often become too uncomfortable to power through and we easily give up and go back to our so called comfort zones. Been there done that many times.

We're taught from birth to consume all of these these things, so we get hardcore hooked early in life, and many stay hooked. It's much easier to pay for others to process our foods without having to be involved in the process than to do it ourselves. I feel we tend to crave what isn't good for us because many things are manufactured to be purposely addictive. Look at the labels of most peanut butter jars, milk based beverage cartons, etc. to see all the things added, especially to the least expensive ones. I used to be convinced by many marketing gimmicks, too, thinking that there's no way folks would ever purposely mislead anyone spending money on their products. I felt it simply wouldn't be allowed to happen. Beep. Wrong answer.

The Science of Addictive Food
 
@Tornadic Thoughts I get that you are passionate about your new found eating/cooking/weighloss. I'm glad that it works for you. I just doubt that some here, myself included that we have the energy/strength/fortitude to do the work that it takes to cook from scratch/vegan/vegetarian/glutenfree and whatever else it is that you do.

I get tired just reading all the stuff you go through just to eat. After I come home, I just want to pop something in the microwave and "hear" the ding, that dinner is done. Or slap a quick salad together. I'm just to tired, stressed, and anxious to worry about cooking.

My idea of "cooking" is sautéing spinach and mixing in a couple of eggs for breakfast. That the only time I go near my stove.

@hodge I'm not talking about swimming for exercise. Treadmill, elliptical, bike, things that really get the heart rate going!!!! As I sit here on my ass!!!!! LOL!!!!!
 
I hear ya', @She Cat . I realize not everyone is going to be able to jump right into it, nor be interested in trying it, or even hearing about it, but it was nothing less than miraculous for many things I suffered with that had me practically bedridden, including the fibro, so I keep sharing what I've experienced. All the usual routes of suggested relief only tripped me up more.

I was in that same space you speak of for much of the first half century of my life. Now it's surprisingly just the opposite. Never thought this version of me even existed underneath all that compiled and rapidly increasing misery. I think I'm more shocked than anyone. If I don't make time to grow, barter, shop for, prep, and cook from real stuff and from scratch, I get too tired, too stressed, and too anxious to function. If I try to sugar or caffeine my way through it, I feel even worse and have even further to climb out of the ditch.

Although it almost took a complete physical and mental breakdown to arrive in this space, I'm glad I've had a chance to experience it to see firsthand how much of a difference the fuel we choose for our bodies makes. I obviously wasn't about to ease into it gently and simply try it because someone told me it might be a good idea. I fought it for years. I would more often than not do just the opposite when presented with the option of healthy vs. non-healthy out of habit and taste preferences. I had to be catapulted straight into motivation via a medical emergency.
 
Does anyone get fibro fog? I'm wondering if that's what I've been experiencing and that it's not so much what my psychiatrist calls derealization. I haven't read any definitions of it yet, because my brain feels foggy and restless and unable to take in much beyond simple conversation.
 
@hodge I wouldn't focus too much on the brain fog. Having PTSD and Fibromyalgia the brain fog thing is kind of a given. For me with PTSD when I get anxious I can't think or stay focused and things in my thought pattern get really foggy. With Fibromyalgia, if I'm having a tough day, I get brain fog and can't stay focused, which can sometimes bring on anxiety. I figure either way I'm f*cked, so why bother trying to figure out which one caused it!!!

But what you are describing is brain fog!!!
 
Does anyone else see a chiropractor? I have another appt. tomorrow, but I'm thinking of canceling. I just don't feel very comfortable with him. I've been getting anxious just thinking about it. There is something about him that I can't put my finger on. However, I had tea with a best friend last week and she's been to him a lot and likes him. I guess I'm just feeling discombobulated. Also, I must have done something in my sleep last night and now have a painful crimp in my right side. I'm feeling disoriented in general and fear that going to this appt tomorrow will just add to that.
 
@hodge. I saw a chiropractor for many yrs. I trusted this guy with my life. Seriously. I had a pinched nerve in my neck apparently for about 8 months. I was in wicked pain. Anyways I went to see my Dr finally and she wanted me to have immediate surgery. NO WAY!!!! Went to my chiropractor and in 4 visits I was fine. Marc retired this yr. BUMMER!!!!!!

I went to another one a few months ago, 4 times. He creeped me out big time! He actually hugged me. EWWWWWWWWWWWW. I didn't go back after the creepy hug!!!!! Marc hugged me many many times, I was fine with him. But this new guy.... EWWWWWWWWW. CREEPY!!!!!

Find one you feel comfortable with, is all I can say, other than I do use chiropractor care and have for over 30 yrs.....
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom