Sufferer Journey Ups & Downs - Does anyone else have this experience and if so how do you handle it?

[FMCA]

Hi, I have cptsd and I am hoping with all my heart I can get through this and start to live a normal life again. I had done really well recently for a good few weeks then all of a sudden feel really down, have lost all routine and I’m struggling. I had lost weight, started sorting my home out with the help of a neighbour and was going to health appointments. Today I feel like everything has fallen apart again and I really try my best to cope but I can’t keep it up for more than a few weeks. Does anyone else have this experience and if so how do you handle it x

 

[Rose White]

Hi @FMCA Yes I’m going through something similar. Idk what to do but I think it has to do with keep staying with myself, keep trying to stay hydrated, distraction, idk. I keep hearing that *noticing* it is the key—that the old way was to get pulled in without awareness but that noticing it is the presence. Glad you’re here, maybe your strategies will be helpful too, in shifting the mindset. Sometimes easier to help others than to help ourselves.

 

[FMCA]

I watch a lot of self help stuff on YouTube and keep reminding myself about being grateful. I suppose when I feel this down it’s about remembering there is always tomorrow and I may feel differently again then. It’s probably just my body catching up with me. This week I did a lot of meditation and I think my nervous system decided my body was ready for a big hit so I had a couple of really bad nightmares and a burning headache which wiped me out for days. I am continuing with the meditation though because it is helping my body to release trauma and it’s the nervous system recalibrating. I suppose it’s about not being too hard on myself when i can’t function as well as I’d like.

 

[FMCA]

And yes, being present and noticing things is a good thing to do x

 

[Susan Jane]

Hi, I have cptsd and I am hoping with all my heart I can get through this and start to live a normal life again. I had done really well recently for a good few weeks then all of a sudden feel really down, have lost all routine and I’m struggling. I had lost weight, started sorting my home out with the help of a neighbour and was going to health appointments. Today I feel like everything has fallen apart again and I really try my best to cope but I can’t keep it up for more than a few weeks. Does anyone else have this experience and if so how do you handle it x

A few weeks is a win! I think people with PTSD forget most humans struggle with keeping up routines, and have ups and downs.,,I sure do and difficult times scare me… Am I going down again! I had a friend help me clean my windows and I haven’t touch them since…I go through healthy eating stages..exercising and then cannot cope need to watch movies all day.

I am learning to let myself be. I try to get one thing done a day minimum and shower etc.,, I say to myself good job, even if getting up and sitting on the sofa is all I can manage. I am learning these phases are transient and feelings won’t kill me. It is hard work. Be kind to yourself

 

[FMCA]

@Susan Jane , You’re so right. It’s like everything has come to a stand still atm, but learning to let myself be is a valuable tool, Thankyou x

I’m still on the healthy eating so will continue with that and my home will just have to wait until I’m ready to do it again.

I do need to try to stick to a deep routine which I don’t and it can be all over the place which isn’t helpful at all. That’s my next plan

 

[FMCA]

Sleep routine

 

[Susan Jane]

Sleep routine

This is something I always hold. Without it I cannot function at all. Every night latest 9:45 and sleep by 10:30-11:00. It takes me a while to get to sleep… no smartphone after 9:45. I read or listen to white noise as I have bad tinnitus

 

[parrotthepolly]

It's very normal to be functional for a while and then burnout all of a sudden. Could be that your stress cup is full.

It's great you're trying to work on a routine, it definitely helps keep things more regulated and in control.

 

[PamelaS]

Hi, I have cptsd and I am hoping with all my heart I can get through this and start to live a normal life again. I had done really well recently for a good few weeks then all of a sudden feel really down, have lost all routine and I’m struggling. I had lost weight, started sorting my home out with the help of a neighbour and was going to health appointments. Today I feel like everything has fallen apart again and I really try my best to cope but I can’t keep it up for more than a few weeks. Does anyone else have this experience and if so how do you handle it x

I agree with you about getting through it. I hope with all my heart that we can all get through it and not only survive but thrive. I understand that that is possible, but I haven’t quite been able to attain it yet. It is hard work. We must be gentle and take our time. We must accept where we are and be at peace with that. Little steps. Moving forward. Gentle and compassionate. Slow and steady. Routines are very important, especially sleep routines. I have learned a lot about how our body heels itself while we sleep. If we’re not sleeping, our bodies, can’t do the job. They’re all kinds of things that our bodies go through while we sleep to clean out the gunk throughout our bodies. There are lymphocytes and glymphosites that work to flush out the junk. Our mind works much better when we take care of our body. Sleep is crucial. For 24 years my son had no tears and never had a full night sleep. Recently, he tried a medication and it stopped the night terrors. For the first time in all of those years, he is able to get a full night sleep some of the time. Was even able to go off the med and still maintain. Still has rough spots and sleepless nights, but nothing like in the past. Lots of things available to help us alone in so many different areas. Wishing you well as you move forward in your healing journey.

 

[Friday]

The PTSD rollercoaster.

 

[FMCA]

Yes it feels like a roller coaster and I think people who I am in touch with think I’ve made progress in a few areas so I must be alright now. They don’t get it. I actually feel like some of my family are sitting in judgement of me rather than understanding it’s cptsd.

I am having take aways two days on the run so after today I won’t be having one for a while. My diet hasn’t been too bad but my sleep routine is a mess again so I need to be strict about that but it’s hard when there is no one to talk to and you end up staying up watching tv.

When I’ve found myself wanting to be nasty to people I just don’t send the messages or don’t say what I want to say. I know I’ll regret it and I can’t say I will be perfect. I do feel surges of anger but haven’t acted on most of them.

I

I agree with you about getting through it. I hope with all my heart that we can all get through it and not only survive but thrive. I understand that that is possible, but I haven’t quite been able to attain it yet. It is hard work. We must be gentle and take our time. We must accept where we are and be at peace with that. Little steps. Moving forward. Gentle and compassionate. Slow and steady. Routines are very important, especially sleep routines. I have learned a lot about how our body heels itself while we sleep. If we’re not sleeping, our bodies, can’t do the job. They’re all kinds of things that our bodies go through while we sleep to clean out the gunk throughout our bodies. There are lymphocytes and glymphosites that work to flush out the junk. Our mind works much better when we take care of our body. Sleep is crucial. For 24 years my son had no tears and never had a full night sleep. Recently, he tried a medication and it stopped the night terrors. For the first time in all of those years, he is able to get a full night sleep some of the time. Was even able to go off the med and still maintain. Still has rough spots and sleepless nights, but nothing like in the past. Lots of things available to help us alone in so many different areas. Wishing you well as you move forward in your healing journey.

thankyou. I am definitely going to start on the sleep routines and stick to them. I’m going to try to add in exercise too. I know they’re important but I just find it hard because I’m isolated.