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Little Big Things

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Kas_Can_Fly

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I know they're little in the grand scheme of things, but they're big to me right now! I've had two big forms to fill in recently and I've finally done them both. I even did them without too much help, I'm so relieved! Also, I've started teaching myself British Sign Language, I learned the alphabet more than a decade ago and have wanted to learn more ever since, getting a book to start learning it isn't really an achievement but I'm chuffed nonetheless. Anyway about the form achievements:

The first was my housing register form for supported housing far away from here - this was a huge deal for me (and a huge form to mirror that!), because moving away has been such an important thing for me for so long. It was very intense because getting a place so far away is usually not allowed and I had to explain why I needed to move away and to detail both my prior abuse, mental health state and current
harassment. Often a slightly different variation of the same question was asked over and over and it was very stressful. I just hope I've said enough to be allowed to join their register.

My social worker and therapist are keen to help me out as much as possible to speed up the process in any way they can once I've been accepted, which is very kind of them both but it still meant I had to start the process on my own. Even though it's going to take a long time for an available place to turn up, it's the first real step I've been able to make to finally be free of my current location. I'd love to hear from anyone who's ever been in supported housing of any kind especially if they're in the UK.


The second was my DLA renewal form, last time was my first application and it was such chaos, I had to go to a court tribunal and the whole thing took more than a year. This time I've been avoiding it like the plague which of course helps nothing. I was struggling with it so much feeling overwhelmed with ever word I wrote when today I found a pdf version of the form and copied in the little I had previously written and completed the rest all in on my computer (with much gratitude for my backspace key!). I've got almost all the evidence that I need to provide as well, I just need a copy of my care plan from my social worker and then it's all ready to be posted.

For both of these things I have to get someone who has never met me, nor likely cares to judge me and whether I should be allowed something which I need. Using (by comparison of reality) a few tiny little text boxes and to hope that I remember to say all the important things - this is so hard when you're dissociating left, right and center! It's so scary!!
 
Hey kas! Well done, an amazing achievement , I know what the forms are like and how detailed , so really well done! Sign language too, the worlds your oyster , I'm a qualified in BSL British sign language and it's not easy, so be proud x the legislation had changed massively on eligibility of DLA so just make sure you've checked it out, unfortunately it does get harder because people that abuse the system make it difficult for people that really need it, well done and good luck x
 
I was following changes to DLA and ESA until recently, I don't know if I've missed anything. Out of curiousity do you know what has changed? Thanks in advance.
 
Hi @Namenotdiagnosis I wonder if perhaps you mean the big switchover from PIP to DLA? In which case it's not possible in my area to apply for PIP yet so I have to put in a DLA claim now and then at some point in the future, I'll be reassessed for or have to submit a new claim for PIP. That shouldn't be a problem unless like last time it takes more than a year for the DLA claim to be accepted due to a tribunal and then I have the same again for PIP.

If not, I'm currently getting middle rate care and low rate mobility though since I was last assessed, I've actually gotten a lot worse - the only reason I've not chased it up is because I've actually been too unwell to. Despite the worsening in my condition, I don't think I fall under higher categories though. I'm also in receipt of ESA and am in the Support Group. Just for a little extra info.
 
Hi Kas I never heard if pip before I just googled it, it's not on my area neither. Interesting though! Are you eligible for direct payments ? Just another source if you needed a Carer or someone to support you with certain aspects of your life that you may find difficult. Either way I still think you fine really well. I noticed you also put that you attend a support group ? I'd love to have access to a support group but not one in my area, I mentioned it to my T before my last session and she said she'd consider setting one up but haven't heard , that was back in september? I live in north west london, if you hear of any or know if any I'd really appreciate if you sign post me. Thankyou
 
At the moment my primary carer is my mother and the care I get from my social worker and my therapy are both NHS based, so I don't really have a need for direct payments usually, though I did get one earlier this year. My mother would be entitled to Carer's Allowance, however it is better for her financially if she keeps working (she works odd hours and from home). As part of my relocation, I will be going into high care supported housing which as far as I'm aware has 24 hour care support, so I don't know what I will need to pay towards for that or that the company providing this support will be able to claim towards my care.

Sorry to have misled you there! I'm not in A support group, rather I receive the higher amount of Employment Support Allowance (ESA, the replacement for Incapacity Benefit) as well as the DLA. ESA has two award groups the Work Related Activity Group (WRAG) which requires you to attend meetings and so on to help you back into work and the Support Group (SG) for people who are deemed too unwell to be working. God only knows why it's called the support group, there's none whatsoever! I was in the WRAG until last year and ever since I've been in the support group.

I'm not from London, nor am I in a support group besides the aforementioned ESA group. You might want to check out your local Mind (http://mindinlondon.org.uk/) or an equivalent mental health charity as these run support groups that are either free or only a pound or two.
 
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