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Meds And Side Effects

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Sammyiam

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Hi everyone,

I have been on venlafaxine and seroquel since November, after trying for 3 years on herbal stuff which cost me an arm and a leg, I was taking more and more and it just wasn't doing it, I was getting in such a state I had a complete break down, lost the plot totally. They took me to get help and was put on prescription meds which every time I see them, they keep increasing them. The problem is I still cannot work, it is still all racing around in my head the thoughts, the self blame, I'm not good enough, all the bad stuff you can think of I've thought it or done it, I thought that when I was put on this stuff that it would help more than it has. I have terrible worries that the side effects of these are going to kill me and I just carn't seem to win whatever way I go. Do I go back to herbal or keep with the prescription stuff ?.

I have always done everything that they have told me as I would be scared that they will tell me off if I don't do everything right, but I just don't seem to be getting any where, I feel like a rat on a wheel just going round and round and not getting anywhere.

Any suggestions are very welcome.

Thanks
 
(One of the side effects I'm dealing with, at present, is talking a lot / having difficulty simplifying things. I'm working on it, but for now I'm stuck with being wordy. My apologies in advance. Also, you may already know most or all of it. But it's the best I can offer right now. )

The exciting and frustrating thing about neurochemistry is that everyone's is different.

The reason that there are 88 commonly Rx'd medications for ADHD (the disorder I'm most familiar with), instead of 1 (or even 1 from each company) is that even in brains with the same baseline.... Everyone's neurochem reacts differently. Sometimes in small ways, sometimes in major ways. So there are 5 or 6 different classes of drugs, and then dozens of minor variations. What's best for one person is worst for another person and middling for a third. The exciting thing is being able to match- eventually- the best med for You. Instead of 50 years ago where it was 1 size fits (almost no one)? But it's all we've got. These days, neurologists have figured out how much variation there IS between individuals, so there are literally hundreds of variations. 5 or 6 families/ 88 commonly prescribed within those families, hundreds of dose & combo differences. And that's just with one "baseline" disorder. Baseline, in that everyone with ADHD has a brain that responds in a similar way.

So you take something like PTSD, which can and does affect anyone and everyone, and you don't even have the same baseline. I have ADHD & PTSD. My brain is going to react differently to someone who is neurotypical, or bipolar, or depressed, etc... Just straight out the gate.

Finding the "right" med or combo of meds is part science, part luck, and part collaboration. Unfortunately, there's no scan that says for your brain SamIam take the following percentages A10% B22% C51% D17%, and for Lorax take A94% M6%, meanwhile Sneech needs 10% A-J.

- Science is that we have a general idea of what most drugs should do, based on what we already know about the medication & your own brain (like having PTSD).
- Luck simply happens to be what order you try things in. Sometimes the best gets tried first. Sometimes not until the eleventysecond.
- Collaboration is the process in which different medications, at different doses, are tried... And you and your doctors discuss how well somehting is working, and what side effects are in play (side effects can be good, neutral, or oh heck no!)

Think of it like ordering pizza
You know you want pizza to help with your hunger problem...
But you've never eaten it before.
And someone else is ordering it for you / you don't find out the toppings until it's delivered.
You may get lucky and the first pizza is your best ever pizza.
But usually there will be some experimentation.
Like the first one is edible, but you really aren't a fan of cream sauce.
So you ask for one without cream sauce.
The next one you can't even eat. It's piled high with things that make you ill.
The next one you can eat, but the super veggie delux needs some more protein.
So you either add meat toppings, or get chicken wings.

A lot of people, though, think that the first med or two is "it".
It's supposed to fix the problem, it doesn't, has side effects you aren't fond of, etc.
But instead of asking for a different pizza, or hold the anchovies, or add meat?
(Collaborating with your docs)... Just throw out the pizza.
Even more, know darn well that it's an ongoing experiment, but get sick and tired of all the gross pizza they have to eat to find the right one.

Ahem. All parallels break down eventually... So I'm just going to drop it there.
Because the last thing to know / think about:
Herbal/ natural/ and other remedies?
Work (or not) because of the chemicals inside of them that affect your brain.
Most Rx meds start (or started out) as a plant or fungus.
Poppies = Opiates, Foxglove = Digitalis, Coca Plants = Cocaine
* Just because something is still in plant/herbal form doesn't make it safe*
In fact, because herbal pharmacology isn't regulated in most countries... The doses & strengths tend to vary a great deal.
Also, because the chemicals in them are chemicals, they can interact with other chemicals (duh, right? Chemistry at work)... Often adversely, or overdosing (like people are brought into the ER all the time drinking "good for your heart" tea (containing digitalis) while taking Rx Digitalis.

In addition to collaborating with your docs... Make sure to check with your pharmacist before taking anything OTC, "supplemental", "herbal", or "natural".

_______

Crap. Crap. Crap. Again, I'm sorry. Ordinarily I could shrink this Ito 2-3 paragraphs. This past week,though, my filter is just screwed up. If any of this is overwhelming or doesn't make sense, I'm sure someone else can simplify.
 
Thank you so much for your reply, Fridayjones it is amazing what you said and gives me lots to think about, I have heard that about herbal before. I know it sounds stupid, but I am so scared of side effects it's not funny, but I was also scared of the side effects of herbal as well, but then when I think I am so scared of almost everything, the sun, fumes.

I stopped doing pottery because of the dust, just about everything you can think of I am scared it will kill me because it's my fault, I have done something wrong. It is slowly, well not that slowly anymore it's gathering speed quite nicely and taking away the last bit of fight I have, bit by bit it is taking me over and I have no idea anymore of what to do to stop it before it completely takes over the last bit of normal I have left. Every day it is getting harder to find that little bit that is left, I am so scared of what is happening and don't really know what to do anymore.
 
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...Any suggestions are very welcome. Thanks

I would ask for a meds re-eval, as I am doing really well on Clonazepam and some other meds, but that one is the one that helps me the most, I think. Tell them you want to be put on different meds. Taper off the ones you are on, (ask them how to do so) and then start the new ones they prescribe. If they don't cooperate, change Drs.!
 
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