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Undiagnosed Possible Ptsd Due To Emotional Neglect/disabled Siblings - Anyone Else?

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Cyrene

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(Warning: This post may be slightly "politically incorrect" due to discussion of people with mental disabilities; I will try my best to be respectful, but I do apologize in advance for any faux pas on my part. Part of me trying to recover from whatever is going on in my brain is having to come to terms with the "politically incorrect" feelings that I've ended up repressing from my childhood, so it might come out here and there.)

I've been suffering from depression and anxiety for many years now, but it was only last month that I was introduced to the idea that I might have acquired C-PTSD/PTSD with dissociative elements from childhood emotional neglect. While everything I've read on the topic explains a lot about why my life has been a mess for a long time and why I act/feel the way I do on certain things, I still wonder if I'm making a mountain out of a molehill, because compared to other life stories I've read both here and elsewhere, the situation that's responsible for my PTSD (if that is what I have) is quite benign in comparison. Now, I know that you're not supposed to compare traumas, and that minimization of trauma is part of a slew of coping mechanisms for those with PTSD, but bear with me for a little bit while I attempt to explain myself.

I am 26 years old and the oldest of three children -- and the only neurotypical one. My brother (23) has some sort of learning disability that affects the way he processes language and how he speaks, while my sister (21) has Down syndrome and requires constant supervision and caretaking. While my parents are generally nice individuals and do care about me, my sister in particular takes up a lot of their attention and affection. I have grown up with the sense (both externally- and self-imposed) that I have to be the "non-problem" child, to require only material needs and to be emotionally/mentally self-sufficient. I am the "third parent" to my sister, having to get her ready for school on the days when neither of my parents are around to do so because of work along with just looking after her in general when my parents can't because my brother doesn't like her, and I have grown up with the expectation that I will have to take over as caretaker for her (and possibly my brother) when my parents are dead: a job I never wanted (and still don't want) but "accepted" out of an obligation to be that "good daughter" to my parents. I excelled in school and extracurriculars, but due to this constant pressure things were falling apart inside even while in high school, where I had at least two minor emotional breakdowns during my senior year. Halfway through college, at the beginning of my junior year, I had a bigger breakdown that resulted in me needing to take the rest of the year off.

While I am better now than I was back then, I still struggle with constant feelings of inadequacy and worthlessness, which are hardly helpful companions for a job search. Additionally, since I have to live at home and I don't have my own vehicle to get around, my family is constantly triggering me, particularly my mother and sister -- and also my aunt and her family, whom we end up seeing on a regular basis because they're the only immediate blood relatives who live in my area. My cousin (25) also has learning disabilities of some sort, along with ADHD and also possibly autistic in some way (it's never officially been described to me); my uncle has undiagnosed/untreated OCD and probably also depression; and my aunt...does not exactly have the gentlest touch when it comes to dealing with either of them. My parents are at least much more tolerable in comparison, but my father has always been emotionally distant, while my mother can be condescendingly overbearing and as a result refuses to see my point-of-view on the rare occasions that I've tried to explain to her about things that are important to me in some way. Notably -- and this goes back to what I mentioned in my warning above -- they didn't/don't seem to understand that growing up with disabled siblings is a lot different than having "typical" siblings. And honestly I don't really blame them, because I didn't know that there was a significant difference until recently (which is about the same time that I realized I might actually have some form of PTSD). But the fact remains is that I have been growing up in a less-than-ideal family situation and have had very little support for the core of my problems, and it's affected me a lot more than I ever realized.

The reason I bring up my story here is because I have only seen two cases similar to mine, where a C-PTSD/PTSD-DS diagnosis was given/applied to a person as a result of childhood emotional neglect due to the presence of a sibling with "special needs." There is actually quite the body of evidence out there showing that "normal siblings" like myself develop common coping mechanisms and thought patterns, but I don't usually see a PTSD diagnosis applied to descriptions of such. Additionally, in the two cases I've found, the disabled siblings had violent tendencies either towards themselves or to others, which is not the case for me.

So basically I'm just here to see if there's anyone else like me on this forum. Trauma is trauma is trauma, but just as a combat veteran might feel more comfortable and less alone discussing their PTSD-related experiences with another vet, I'd like to connect with other "normal siblings" on this issue because of that added level of "getting it". I've tried my best to explain where I'm coming from (and I'll be happy to clarify for people who are confused, since there's a lot of threads here that I've only begun to untangle for myself), but I understand that maybe this seems like it's too mild a situation to mess me up to the degree that I would develop some sort of trauma/attachment disorder.

P.S. I feel like I should also clarify (in case I've failed at communication) that I'm not blaming my (possible) PTSD on my disabled siblings (even if the little girl in my brain is throwing tantrums about them), but instead on the lack of support I had from either within my family or outside it for the position I was/am in. My friends are great for distraction and venting, but only one of them is in a similar situation to mine, and I don't talk to him anymore for certain reasons.

P.S.S. I am hoping I can see my old therapist somewhat soon to discuss my issues with her. She is not a trauma specialist, but I figured that since I generally liked her, I might as well start with her and see what it was like working with her now that I have a better idea of what's going on with me. I started seeing her after my breakdown in college, but I think I only lasted three months with her, partly because I thought I was getting better (ha!) and partly because my mother had been complaining about me talking to a complete stranger about my problems instead of her, and it made me feel guilty.

P.S.S.S. JFC sorry for this wall o' text!!!!
 
Welcome Cyrene! Hi I had a sister with severe epilepsy since birth. She had many issues and has since passed. I always felt so lucky to not be the second one born.I always felt sorry for her. I do understand how it affects your attachment issues and the resulting neglect. I never realized what a toll the not having a normal childhood had on me until working on my PTSD. Bless you having very disabled siblings. I am sorry you could not have experienced a childhood with healthy siblings. I would suggest a trauma therapist. It is great you liked your last therapist. You can use that experience in finding a qualified therapist for your diagnosis. Best wishes in you journey to healing.
 
Hi Cyrene,

Welcome to MyPTSD forum! :)

Whether or not you have PTSD is not something that can be diagnosed by yourself or anyone on this forum, you are definitely dealing with something that is affecting the quality of your life. Take the time to get a professional diagnosis as knowing what is wrong is the first step in knowing how to deal with it and make it better.

Wishing you the best.

Debbie
 
Hi Cyrene. I can identify with the emotional neglect - I had a fair bit of that too. My case was a little different to yours in that my siblings were of neurotypical and non-impaired, but my parents had stuff going on. My Dad had PTSD since he was 15 (he didn't realise til his 40s) and had battled severe injuries and illness since I was 6 years old. He was run over by a tractor then. My mother I think was depressed as long as I can remember as a child. She was just really removed emotionally. Neither of them acknowledged my existence very often, if they did it was negative. My Dad would even complain about me to Mum while I was sitting next to him, as if I wasn't there. He would call me her child, in a way disowning me, or so it seemed. They minimised major stuff, even life-threatening stuff. My family faced more than our fair share of adversity growing up, so I know they did their best, it just couldn't be helped I guess. The core of my PTSD was something else, but that stuff didn't help.
 
Hi and welcome!

I hope you can find a trauma therapist to help you. Of course, nobody here can say for sure what you're experiencing (diagnostically), but there is a wealth of info on PTSD. I hope you keep reading as you can learn a lot!
 
Hi @Cyrene, I share a somewhat similar situation with you but differ in the aspect that I was the youngest child of 2, and my older brother, though neurotypical from what we know (he's never been tested for anything), required a lot of attention and supervision, even to this day. It's as though he never matured. He has anger outbursts and has hurt me before.

My father, I'm pretty sure, has suffered from PTSD (though undiagnosed), since he was a teenager due to his time in the mandatory military service in Iran. He used to be in charge of a platoon that would disarm mines. Anyways, I've had to carry the weight and be significantly more mature for my age than one would imagine.

He's mom and dad's little pet child, and I'm the "independent" one, the "self-sufficient" one who's "never needed any help nor sought it out" from them. It's stupid that my parents say that because I DID need that sort of emotional nurturing rather than the emotional neglect I received. The "being more mature" for my age since childhood was my coping mechanism! I am not upset that I turned out this way, or that I'm the independent one between my brother and I, as I'm sure it's necessary to become independent as you become an adult (I'm 25 years of age), but it upsets me so much as to how much he relies on them and that they are always so willing to make exceptions for him and bend their expectations for him!!

What upsets me even more is that after all the more weight I carry on my shoulders, he still thinks he has a right to drag me across the tile floor from my arms and be such a physically aggressive jerk to me. I just always feel like I'm giving and giving and then punished by my family for giving as much as I do.
 
Thanks for your kind comments, everyone! I'll probably be lurking here more than anything, but this seems like a good community to be in. :)

@macca, that sounds like a really tough situation to grow up in. I was fortunate that my parents were generally kind to me, but it's like you said -- they did their best, but certain things just couldn't be helped.

@snappy_turtle, I'm sorry to hear about your brother and your parents' favoritism of him. I'm curious as to why your parents never got him tested for anything -- did they just not want to receive bad news, or do they genuinely think that he's fine?

BTW, I totally identify with this:
The "being more mature" for my age since childhood was my coping mechanism!

Though because of the sometimes contradictory way my mother treated me, I feel like I'm simultaneously more and less mature than I should be... (These days I feel really immature and completely unable to handle normal adult responsibilities, lol.)
 
Hi Cyrene, I think my earlier post kind of got out of hand - I meant to empathise with you, not make you feel minimised. I hope I didn't have that effect. I honestly know that what you went through was really, really hard - one of my best friends in high school had a similar situation with her Down's Syndrome brother. She really loved him, but she had no space to be a kid or a teenager herself.

sometimes contradictory way my mother treated me,
That, I think, is a really tough thing to handle. As a kid, you just have no idea where you stand, and you're just getting such conflicted feedback, that would be super confusing.

It really sounds like they were clueless about what life might be like for you, or they didn't want to see it. You said your father was emotionally distant, well that can make a person feel like they aren't worthy of attention. Your mother refusing to accept your experience and both of them refusing to acknowledge your pain is really invalidating. I can understand how you felt like you had to be "non-problem" growing up. I'm glad you're going to see your old therapist, and try to nut some of this stuff out.
 
What people are describing here is just one of the forms of trauma I endured in childhood, but surprisingly, it might be the most damaging of all.

Even though I had way more severe "seeming" things happen to me, it appears that it's the emotional neglect and parental hyper-focus on my brain damaged brother that led to the abandonment issues and insecurity that severely plague and isolate me to this day...

In my opinion you can't judge someone else's trauma, or try to judge yourself by other people's standards. We are all unique.
 
I think it would be extremely surprising if this type of emotional neglect didn't result in an attachment disorder actually. I wish you much healing and am glad you are getting therapy.

Remember that saying how you feel about something or having resentments doesn't mean you don't love your siblings.
 
@macca:
Hi Cyrene, I think my earlier post kind of got out of hand - I meant to empathise with you, not make you feel minimised. I hope I didn't have that effect.
Not at all! You're fine. :)

As a kid, you just have no idea where you stand, and you're just getting such conflicted feedback, that would be super confusing.
Yeah, my mom was constantly vacillating between "Don't worry about your sister, things will work out" and "You have to take care of her when we're gone!" I honestly never believed her when she told me not to worry about my sister, but part of me is still pissed that she could keep swinging back and forth on that. A recent fight revealed that she was definitely expecting me to take my sister in later in life, and I...really just cannot handle that, I don't think. Maybe it'll be better after I get therapy and resolve some of the major issues, but it feels like being in this family has destroyed any caretaking instincts I might have been born with. My mom is so gung-ho about the "blood is thicker than water" thing, but I think my sister is better off with non-family members who have more of a capacity to properly care for her than her own messed-up sister, who can only ever react to the bad things about her.

@Abstract:
Remember that saying how you feel about something or having resentments doesn't mean you don't love your siblings.
I think this is a huge part of where my mother (and I specify her because, since my father tended to be emotionally distant, it was her I frequently clashed with) fell down on raising me. Any time I (or my brother!) was angry or frustrated with my sister, she'd always say things like "you just have to accept that she's different" or "you have to go down to her level because she'll never understand" or "I don't understand how you could hate someone as helpless as your sister!" Maybe there might be a token "I get angry/frustrated with your sister too," but the remaining 90% of her spiel always implied that it was unacceptable to resent my sister in any way -- and since I did resent my sister, I ended up feeling like a failure as a family member, convinced for the longest time that maybe I was just born with a defective heart or something.

My sister falls into the stereotype of the lovable/adorable disabled child, so people outside of the family frequently took a shine to her, and it always made me feel guilty (partly because of my own sense of inadequacy but also because I felt as though my mom knew and was judging me against them) that I barely had any affection for her. As well, that "I get angry/frustrated with your sister too" was also followed by "...but I also have my problems with you" in the same fight I mentioned in the last paragraph. At the time I had already shut down emotionally/mentally (as I tend to do when I talk to my parents about things -- and on a general level, it happens a lot whenever I sense a potential argument or disagreement about to happen, whether to me or someone else) but looking back on it, I think I'm really angry that my mother believes that my issues with my sister correlate exactly with her problems with me.

Essentially, I feel like all my life I've just been told to "deal" with my sister (and my brother), but I was never given the proper mindset to do so, and I ended up trying to make it as insignificant to my current life as possible, engaging only in the bare minimum needed for functioning.
 
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Hi, Cyrene, I grew up with an older brother who had schizophrenia. He beat my younger brother and I daily, among other things. My younger brother was the favorite, and I was the helper bee. I was responsible for too much, too soon. I know what you mean about being the perfect child. I was the best little girl in the world. My mom told me once that I didn't have to be perfect, but I knew that I did.

How awful for your mom to compare your behavior to your sisters. Its like apples and oranges. It really can devalue your selfhood. I was always the good one, so nobody had to think about me because I was good.
 
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