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Sufferer Recently Diagnosed Dd-nos

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Blue1964

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Hi, I am Tom and my last visit to my Therapist last Thursday, I found out my diagnosis was Dissociative Disorder - not otherwise specified. (DD-NOS)
Well I don't know what to think about this, its hard to swallow...I know I am dissociative to an extent, but didn't realize it was a even a diagnosis, I have heard of DID and have been hospitalized numerous times and seen a lot of different mental illnesses and had a friend years ago that was diagnosed that and she committed suicide 4 years ago. I have been through a lot of deaths since 2007 and lost my adopted parents in a car accident when I was 7 y/o and I was in the back seat. my therapist believes that this is where my trauma first started, at that young age I didn't have anyone to help me understand that my parents were dead and I had to basically "raise" myself...

I have had multiple traumas throughout the years and most recently the one I think that has got me to where I am now (depressed, anxious, memory loss and dissociating) is the passing of my roommate. and well I am now 48 y/o as of a few mins ago. anyways I don't know much of what else to say atm. except that I have been seeing my Therapist for bout 2-3 months now and she is probably the best in my area as far as using CBT and EMDR. she is the only one in my area that is Certified in EMDR.

Anyways, for years I thought I was just depressed, since I was 18y/o ( 30 years now) WOW!!!
I have been going to Psychiatrists and Psychologists, and ....well I never had a therapist actually work with me and try to get to the actual roots of my issues, til I started seeing thie one I currently have.
...to think I was only depressed and had an extremely bad memory...and a lot of anxiety...well enough to put me on disability RSDI a second time...Here I am now with a new diagnosis and its confusing but I think i get it... but still it seems alot more serious than depression. IDK

Well I think i am rambling and editing this too much so I think I am re-typing a lot of what I put in my "about me" of my profile. Thanks for reading...

Peace, Blue1964
 
Hi Blue1964,

Welcome to the Forum :)

I'm so sorry for all you have been through, but glad you are having therapy and the EMDR.

I hope you find the forum helpful too, lots of great advice and support here.

Shellbell
 
Hi and welcome to the forum. I hope you find healing here as I have. It is nice to meet you.
 
Hi Blue...
Welcome to the forum!

A DDNOS diagnosis can be scary, but it sounds like you've got a great therapist to help you on your healing journey. I've been told no, I don't have DDNOS, and yes, I do have DDNOS depending on whom is administering the test. So it can be a bit subjective. I do have dissociative issues but I don't know if it truly warrants a separate diagnosis from PTSD. The important thing is that you're aware of the issue. Your friends path is most certainly not your destiny.

Glad you've found our little community! I hope you can find the support you're looking for.
 
Hi Blue,

Welcome to the PTSD Forum! :)

It is wonderful that you have a therapist you feel can help you make progress. I hope you find the information and support on this site helpful as you work on healing.

Take care.
Debbie
 
Personally, I think DD is a hallmark symptom of PTSD. Having flashbacks and re-experiencing are typical examples of the dissociative component to PTSD. The derealization/depersonalization that comes on the heels of anxiety is another example of altered state of concsiousness. I can't speak for anyone else, but the worst part of my PTSD is the dissociative component and the danger associated with it.

The anxiety sucks...but the feeling of not quite being real and having my mind slip into a flashback while driving...crossing a busy street....cooking on a gas burner make it a pretty scary symptom. The dissociative component to PTSD is a maladaptive coping mechanism in the face of extreme trauma. As such, I think it should be considered a symptom of PTSD, rather a stand alone disorder, but that's just my opinion.

Also, Dissociative disorders tend to run along a continuum, beginning with a tendency to daydream when bored at the mild end of the spectrum and DID at the extreme end. For instance, a ten year old child who has loving parents and a happy and healthy life with no history of mental illness may day dream while sitting in church, to pass the time and keep from being bored. Does this mean the child has a dissociative disorder? No, just an active imagination employed in a less than stimulating environment.

I think, in your case, I think it is not so much a diagnosis as it is a symptom of PTSD. I am surprised that your therapist didn't suggest the notion of the DD being an aspect of PTSD, rather than a stand alone diagnosis.
 
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