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Relatives.....

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circe47

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I'm not sure if this fits in this category, but here goes. Recently my brother became so ill, that he had to move in with me and my family. It wasn't a matter of if we can do this, but rather, we have to do this and this is what we'd want if the situation were reverse.

Needless to say, adding another adult to the family means more food, more cigarettes, more toilet paper, more EVERYTHING, on top of higher utility bills and other expenses.

Right now, I am feeling overwhelmed at having to take care of an adult who for all intents and purposes, is going to need care for the rest of his life. Have applied for all the aid, and now can only play the waiting game. I am also the first offer and most practical choice for the kidney he is inevitably going to need. All we can do on this front, is delay the inevitable for as long as possible.....but, it is a fact that IS going to happen, and is rather scary to contemplate. Sister offered one of her's too, but what if I or my brother need it down the line? There IS nobody else in the family that falls within the donor criteria. It is not even close to an option to consider a donor from the general public, when I have one to give.

What is making me mad, and the reason for this post, is that all of this is triggering me. As a PTSD sufferer, stress is the last thing I can take, yet has been piled on in heaps in the last few weeks. It seems to me that since me and mine have willingly and lovingly taken in our sick sibling, the "adult" members somehow have seem to have disappeared from the face of the earth. There is no "what can we do to help", no offer of a bag of groceries, no gift card for Target or Walmart to offset the extra miscellaneous expenses. No offer of "do you need help with"........expensive, life-saving meds, pecialists office visits, or rides to the clinics.

The only positive: Mom has been more helpful than anybody. I also got to talk to her about how our bond was disturbed when I was born preemie, and how we both felt about it. How it had shaped our relationship and my life in particular. That was nice....and I feel closer to her than I ever have.
 
Although it might add some momentary stress to your already stressful situation, I think you need to put it out there to the relatives that you need and would appreciate their help. Maybe they just didn't think to offer, some people are like that, but you would be the best judge of that.

When my mum became ill the girls in the family rallied around as the boys didn't really feel they could cope. One brother however was quite good and assisted with finances and rallying the others to help. Is there anyone who could do this for you? Ask each of the relatives what contribution are they willing to make, whether it be financial or offering to care for your brother once in a while to give you a break.

Pleased you had a great talk to your mum. I can't imagine what it must be loke not to be able to bond as mother and child straight away after birth. Extremely hard on both I assume.
 
I am sorry to hear about your brother and thank god he has such a good sister :)

It is going to be hard and a lot of sacrifices are going to be made and that takes strength. :hug:

Can I suggest that you do not wait for them to offer but demand they help you look after him even if it is a bit financially. Demand it for him if you have trouble asking for yourself ;) F*ck it make them feel guilty if it gets your brother more help.

Remind them that you are doing it because he is your brother but that doesn't mean you should take all the responsibility because that is not fair on anyone, including your brother who might start to feel like a burden to you. If you are struggling then he will be the one who suffers the most, remind them of that too ;)

You have nothing to loose by asking them but it might give you the help you need or the answers, good or bad, so that you know where you stand when it comes to getting help from them. That might help ease the anxiety for you?

Be strong for your brother and for yourself and make sure the family you live with are behind you every step of the way.

I am glad your relationship with your mum has got better too. Don't be scared to ask her for help. :)

You are doing a marvellous thing for your brother and they should be very proud of you. :) We are :hug:

best wishes
Saffy :)
 
Hi, my heart really goes out to you.
First I am so happy that this has brought you closer to your mom. I am so happy about that.

It is so common unfortunately in families for one person to step up to the plate and for the family members to fade out of the picture. It makes it so hard on you. This happened to me when I was the only caregiver for my mother in law who I did not like.

Even my own husband her son had a hard time helping me out. It almost broke me. I had a melt down due to the ptsd and combined caregiving.

Husbands other son came down and they both placed her in a home for others to care for her.

It was so hard to have that happen and I surely empathize with you.

I understand about the hardship of having a extra person come and live with you and how it places burdens on your finaces.

I can understand how scary it is to be a donar for your brother. You have taken on something bigger than you and I can so relate and identify.


We went to the doctor yesterday and I got the bad news of what our future will be like. My husband will slowly deteriorate into a vegetable and my HMO does not provide any in home health services.

I made some calls to my small family and his brother and his wife are going to call medicare to see if they provide any in home health care assisted living services.

His brother will come down eventually. My husbands daughter and husband will be coming over to visit. My daughter told me to call her for when I needed to get out of here.

I am getting more support this time round. I will take care of him as long as I can. I will probably have to place him.

It is very hard each day. I am grateful for the forum for the people here have given so much support.

I hope you are in the position to get assisted living support for your brother. It really takes a toll on you and you have a long road ahead of you.

Feel free to pm me anytime for support.

You need to get all the support you can. I hope you will at least call your family that has disappeared and ask them for support. I really hope they help out. Too often they abandon the caregiver and the person being cared for. I hope that is not the case for you. I really hope they will come through for you.

Yours is not a easy road to walk.

If you do end up having to donate one of your kidneys you will need help and support for you and for your brother at the same time. Now is the time to arrange that for yourself.

You are in my heart and my prayers. I really feel for you, I can so identify and relate to being left alone without any help and support. Hugs.
I am the only caregiver for my husband who has parkinsons and lewey body dementia.
 
Thanks EVERYONE for your support....it means a great deal. I am sorry for those of you who are going through difficult times with your loved ones as well. Seeing a sibling, husband, lover or child is the worst. Which makes it hard to understand why it is so hard to ask for help, or for them to ask us if we need help.

@Discarded- My father called the other day......said he'd heard my brother had a good news from the doc. My brother said, "well, if you call needing a kidney transplant good news...I'm not sure what you mean." Father's reply: But I heard you got approved by the doc for a couple months state disability, right?" All of us here, at my house are still scratching our heads over that one.....:confused: Is it just me, or does this really sound like someone completely out of touch?
I don't know why it is, but if it were MY kid......he would NEVER have to ask.

I guess my feelings of anger come from feeling like ten miles of bad road as kids, whenever we asked for help. AS IF!!!! Don't you know......? We were supposed to turn out to be lawyers, or doctors, or some other highly paid professionals after living in chaos and dysfuction for the first eighteen years of life.....:inpain: How DARE we need help.....right?!

Anyway.....thanks for the support here. :hug: to all
 
But I heard you got approved by the doc for a couple months state disability, right?"

Well on a practical and monetary note it probably is good news as getting help financially will ease some problems.

But that sounds like something my parents would have said, he seems to have forgotten the emotional support people need at times like this too, which is actually priceless and no money can give you that :)

Mine sound exactly like yours and merit their 'love' by the amount of money or possessions they give, and then made you feel guilty for it afterwards. The emotional side of love was never shown and that is what I always needed. I was made to feel ungrateful and selfish if I did not take their present and jump up and down with gratitude, when all I actually wanted was a cuddle, support and protection and some personal attention.

And yes like you it makes me very angry :)

Best wishes
Saffy :)
 
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