Ropes end with pain

[whiteraven]

So sorry you are dealing with this, @She Cat. I was going to ask you if you had tried gabapentin, but I see you can't take it. :-( I have occipital neuralgia, which is a bitch, and it really helps - haven't had to go the nerve block or decompression route yet (knock wood). I was on Tegretol for awhile, for seizures, but had all sorts of issues with it - sounds like you are managing it ok?

 

[Deleted member 541]

@whiteraven Nerve pain is so awful. It doesn't end and you can't find a place to put yourself to relieve it. I've cut out sugar for now and pain seems to be much better... time will tell. I'm sorry that you too suffer.... pain sucks!!!!

 

[whiteraven]

@whiteraven Nerve pain is so awful. It doesn't end and you can't find a place to pu...

Sugar? Interesting! I stopped gluten (diagnosed with celiac a couple of years ago) and notice that if I slip and eat something with wheat in it I have excruciating myofascial pain, mostly in arms and hands. I've been trying to cut out sugar and move to an overall anti-inflammatory diet for the depression, but I'm lucky I can get out of bed in the morning, let alone follow an actual diet, so...

Anyway, really glad at least the no sugar is working for you!

 

[mamachick]

I am so sorry SheCat that you are having so much pain. Glad to hear that reducing sugar seems to help and hope it continues. I don't know that I have nerve pain, or that I don't for that matter. I have fibromyalgia but I also have 3 cervical herniated discs with stenosis and a bulging lumbar disc. The neck runs down my right shoulder and into arm. The lumbar is causing me to feel like my spine will collapse. I try not to complain about it much with those around me because there is nothing I can find to help and others just don't understand that I have done steroids, the pain clinic with the big injections, physio therapy, chiropractor, exercise, tens unit, pain patches, over the counter and opiates. I do massage therapy regularly but it is very costly ($70 week). Once in awhile it gets worse after, but mostly it gets better for a short time. It doesn't seem to help the root of the problem but I think I tense everything up from the burning pain and then my muscles need worked out.

I agree with you about not buying meds from another country...not worth legal consequences but also I don't know if I would trust what you might get. I agree that its ridiculous that we can't get prescriptions that did help. It helped me to just take one in the morning, not like increasing, but drs just won't prescribe anymore. I have been getting by because I have some left from 2 yrs ago and I take one occasionally when I otherwise could not do what I need to do. In a few months, I won't have any and don't know what I will do.

I know that for me, getting dehydrated makes things worse so I try to force more water, but I don't know that it effects nerves so much.

Hugs and wishing you well!

 

[Deleted member 541]

@brat17 It sounds like you may also have a nerve that it pinched. Probably from your neck. I had a pinched nerve in my neck once and the pain ran down my arm. Chiropractor fixed it in 4 visits. Pain can drive a person completely mad. I've heard from one other person that had nerve pain, that she also got to the point of thinking about suicide, and she is one of the most stable people I know. But, the pain just got her to that point!!!!

I'm sorry that you are suffering too. It's maddening that something can't be done to help people.....

 

[mamachick]

I have been suicidal from it to She Cat. I understand so well. It has effected every aspect of my life. I have said before and will say again, I just don't know how you manage to work. However, as difficult as it is, it may be a blessing...because when you are not forced into routine, its easier to give up and do nothing physical....which makes it worse for some. Also it prevents isolation.

I had a massage yesterday and felt a bit better, only for it to be horrible today. I have a group I attend in an hour. Im inclined to skip it or take one of those few stock piled pills I have left. Then it makes me further depressed because I feel I have absolutely no control over my life and am essentially useless. I can't even support myself.

It is maddening....

 

[Deleted member 541]

@brat17 The only way I manage to work...... I have to, to support myself. There have been days in the past 9 months that when I've gotten up in the morning and the pain was still there that the tears just started, and I sat down and begged god for relief. I don't know how, but I've made it through the days, weeks, months and the pain is starting to subside. I have good days, bad days now. I'm grateful for any relief, but when it hits, I'm so frustrated.

I hope you have a better day today!!!!

 

[Heather]

@She Cat I'm sorry to hear that you're dealing with chronic pain. I hope the no sugar diet will help you to continue feeling better.

Hugs