Yikes has it ever been a rough and roller-coaster week. I am navigating through it. Had some major shifts in consciousness that are helpful in some ways, but the fallout hasn't all happened yet.
One is that I have dumped Mr. Famous Psychiatrist. Finally acknowledged that even though he is Mr. Famous and smart and very cutting edge regarding psychopharm, he is an incredibly closed-off person who refuses to engage human-to-human. And I can't work with people like that. So I was tired of slamming my head against that proverbial wall (and paying him a fortune for the privilege). So done. I have two other folks I can call if I want to pursue psychopharm.
Second, I got my mobility scooter today. I have been really excited about it since I ordered it. I put it all together and actually tried it out tonight. It is going to change my life profoundly. All that's good, but then I had a total meltdown. Because how pathetic is it that I am so excited that maybe I can take a "walk" with my dog, or go to the grocery store, without being in terrible pain and then so exhausted that I have to rest for hours afterward? Pathetic. Especially for somebody like me who used to swim and bike and hike and ski and do all sorts of other fun things. But I am just starting to acknowledge that fibromyalgia is a lifelong condition. There is not a cure. This is not going to go away. All I can do is figure out how to live to lessen the exhaustion and pain and better manage the issues. My parts are NOT on board with this forever thing. I am still wrapping my head around the notion of "chronic illness." Still not wanting to believe/accept it.
Third, I had a sort of dark night of the soul the other night. Came pretty close to just ending my life as it now exists. It wasn't my wildly violent suicidally parts. This one was a much calmer, more detached part. Not a new one. I know it's there. It's just that this was the first time in a long while that it flooded me that far. But I didn't do anything after all angst. I got into bed. Went to sleep. Had this realization that yes, I do have parts that are suicidal and self-destructive. That think I ought to kill myself. But I also have parts that are very much invested in staying alive. And I realized that what I am really sick of is living in this in-between state of chaos and suffering. I have the choice to die, or to choose to live. I chose the latter the other night. But in the ensuing days I also realize that unless I can speed up this healing process and learn how to take care of myself better, I might not make that choice in the future.
So the good of all this, is that I have had a lot of SELF energy in the past two days. The reality of my situation is finally sinking in. No doctors really know how to help me. Nobody really knows what to do. I have to do it myself, with cobbled together support from various people. There's no silver bullet. The meds just don't work. I have to learn and practice the self-care skills, and do the trauma therapy work. And it is a big f*cking slog and scary and exhausting and confusing and takes a long time. But I feel pretty clear now on the intention that I am not yet ready to die. I know I have these parts that flood me a lot. And I need to deal with them. To figure out how to heal them. But I am choosing life and love and connection as much as I possibly can. Because I certainly cannot continue to live the way I have been. Things are getting worse in too many ways, and I'm pretty sure if I don't get it together enough to start taking care of myself better, my physical body will provide something much more dramatic than fibromyalgia or any of the other weird symptoms I've had for three years.
I am grateful to have my family's support, and grateful that I have been lucky enough to connect with both a psychotherapist and a massage/cranial sacral/yoga therapist who are warm and kind and patient people who are also extraordinarily intuitive and who I like a lot. And I am grateful for the friends I have here on the forum.
And now, in the interests of taking care of myself, I am going to go to bed. Read a bit, then sleep. I am reading a GREAT book I just got. I LOVE IT! Called H is for Hawk!