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Fibro Fibromyalgia and ptsd

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Angel-that sounds so familiar. The sooner getting back the better. I am going to really try here soon. I think I just gave up on investing in myself.
 
I'm in physio for my back and FM. I've been there for about 2 months now. I'm just starting to get some mobility back and a wee bit of strength. Turns out my FM made my back injury much worse than it was to begin with and now I'm fighting to get any strength or mobility back at all. Lesson learned, Keep moving at all costs.
On a side note: I have no depression (almost never suffer from it actually) and have had severe FM for over a decade. It's not related to me by depression. If stress increases it I haven't noticed but I don't agree that its a psych thing. There are too many physical symptoms (like colour-shade blindness which I suffer from.)

bec
 
becvan I just thought that it was possible that you are a supporter and wanted to clarify. There are a lot of evidence that fibromyalgia and ptsd is related to trauma. Body Bears the Burden is just one of many books that talk about this.

I was in a car accident while pregnant over twenty years ago, I had whiplash. When I could finally have diagnostic tests, it showed herniated discs. That would account for much pain but not the chronic fatigue, visual changes, IBS, yeast problems, sleep disturbances, photo-phobia, etc. I became a bit depressed as a result of physical problems and went to therapy. In discussing my sex husbands abusiveness, the T suggested ptsd.

I got better over a few years. Was very active, walked 4 miles every day, worked out, went back to school and got bach., then masters, etc. No depression or anxiety what so ever. Brain clear as a bell. During this time, I attended some trainings and did some reading on this topic. "Whiplash does not cause diahria" is a quote I remember and could relate to. Fibromyalgia often follows a fall or accident but does not explain the variety of symptoms. They are not saying that the physical pain is not real , just that those who develop it have a history of trauma. Who doesn't have a history of trauma is my question? For some, it develops into ptsd and others it does not.

PTSD is a psychiatric illness. I have not heard that fb or cfids is related to depression specifically, but that it is related to trauma. I don't really think it matters whether something is physical or psychiatric, except for the stigma that is attached to psychiatric. Being and staying angry causes heart disease. That is not to say that all heart disease patients are angry but somehow I think that in our society, there is blame toward what we think one should be able to control. We did not ask for any of this (we did not cause it and cant cure it-can only manage it).

My friend has high blood pressure. She is also extremely anxious. She would tell you she has OCD and is a perfectionist. Her DR told her since she did not like the bp meds, and that he thinks it is caused by her anxiety, he could give her something for the anxiety that would lower her bp. She was elated. He gave her Lexapro. She became calmer and her bp was under control. She was much easier to talk with and happier too. She told everyone about this wonderful drug. Then someone told her it was an anti depressant. She was very upset, asked the doctor, and went off of it, stating that she is not depressed.
 
My body is paying the price of so many years of stress and trauma! During a crisis, I'm fine, then a couple weeks later, after the crisis is over, something 'hits', whether it's pain, depression, or illness. It seems to 'remember' every fall, every time I pushed past my limitations.

Because I've battled depression/anxiety my whole life, and fibro since my 30's, I've learned to manage them, and don't expect a 'cure' but try to use every 'tool' to keep it all in check. EMDR, hypnosis, self-hypnosis, talk therapy, and visualization. Prayer and support from my friends, family, and church are vital as well.
 
Angel that sounds like me in the past. I have always been the glue during the crisis. When its over it when I have had sleep disturbance leading to other stuff (illness, irritability, etc). Paying for pushing past the limits is exactly right. For some time, there has been no crisis but I just dont seem to quite recover although I am much better in warmer months. These days I actually awake and look at the clock berfore 8 am on my own. In the winter, I just keep on sleeping until my dogs want out and get me up.
 
I don't really think it matters whether something is physical or psychiatric, except for the stigma.... I think that in our society, there is blame toward what we think one should be able to control.

I have fibromyalgia, CFS and PTSD and there seems to be a stigma attached to all of these disorders. I had one friend say that fibro was a women's disorder and that I needed to toughen up. Simply because more women get fibro than men does not make me effeminate or less of a man in any way! :mad:

The CFS gets confused for laziness, which it is not!!! I was a hard worker until I contracted CFS and literally could not stand up on my own two feet anymore. I had lost the feeling in my legs from the knees down and when I went to the neurologist they diagnosed it as stress! Chronic fatigue syndrome may or may not be stress related. I don't really care to get into a debate about that, but it does seem to worsen when I am stressed out.

It is difficult to focus on PTSD issues when either the fibro or cfs are flaring up. People who do not understand these disorders would have me labeled as effeminate (fibro), lazy (cfs), and weak (ptsd). I am none of those things and I guess I just needed to rant a little bit.:whistling:

It helps to know I am not alone and what has worked for other people so I am grateful for this thread. I am sending gentle hugs to all who suffer from these maddening disorders!!!:)
 
Thanks Lionheart. I am certain that you are none of those things. I have always been the kind of person that will "get the job done", very independent. I don't generally wait for help because I haven't usually got much help. I have been on my 3 story roof to patch it, hung 20 pieces of stockade fence, and installed and tiled a shower just to name a few things.

I probably do have issues with control in the sense that I will just take charge and learn what I need to do and just do it. I have difficulty letting things fall apart or go. Im 5'6" and 120 lb and not very masculine. I do not play the game of manipulating men to get them to do these jobs-although I have watched this happen often. I dated a man for 2 years that took a lot of this off my shoulders and I miss that. Unfortunately, he was not mentally healthy or honest about working on his issues.

Sometimes people infer I am a man hater because I spend time doing all these repairs rather than investing in a man. It has even been insinuated that maybe Im not straight-people can be idiots.

People who would label you as these things are in denial. If you suffer this for a reason, then it won't happen to them. If it just happens and one can become ill, then it could happen to them. If someone gets lung cancer its because they smoked. If they never smoked, then where did they work, coal mine?asbestos? etc. If not that, then why? Maybe second hand smoke but they have to blame someone or something. Maybe there is a reason for everything, but its not what people think.

Lionheart-have you heard of the ACE screening? I only did recently and have not had time to really read the material thoroughly but it relates such illness's to early childhood abuse. For me, weather has as much to do with pain as stress does. So does the work I do. So does my sleep. So there are many factors I am sure. I would just love to find a holistic approach to deal with the combination of these things and preferably a 30 day inpatient treatment. I know that to many it may sound weird to want to be isolated from home for 30 days but I think that is what it would take to actually make the positive changes that would be required in order to help. (its very hard to practice relaxation or yoga when the dogs throwing up and the roof is leaking and the phone is ringing and I am wondering what I forgot to do)

I think its all inter-related but thats just my opinion. I also think that when we are defensive we are going to have a harder time getting better. On that note, I am trying to focus more on my own thinking and interpretations and letting go of stuff that is not mine, including peoples ignorance.
 
I am certain that you are none of those things.
Lionheart-have you heard of the ACE screening? I only did recently and have not had time to really read the material thoroughly but it relates such illness's to early childhood abuse.

Thank you (((Brat))),

I have not heard of ACE screening, but I have read one article that states cfs can be related to child abuse. I wouldn't be surprised if fibro is related to that too! Long-term stress does untold damage to our bodies. :eek: Lab mice were stressed out for long periods of time and they all eventually began to bleed from the adrenal glands and then die. (It's prolly not the same as humans but related just the same). I know that stress is a factor in a lot of disorders, even when it is not the cause.

I too am trying to educate myself and let go of other people's ignorance. Please let me know what you find out about ACE screening and I will try to find some information on it myself as well.

Wishing you the best,
LH
 
Lionheart-ig you google ACE screening, let me know what you think. I am very interested in your opinion. And do you have early abuse?
 
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