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What Is The One Thing You Wish People Knew/ Understood About Ptsd Or Trauma?

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CPTSD, yours is an amazing story of suffering and courage and rising out of adversity. You're right, you have come a long long way, and that is testament to nobody other than you, and the courage you found in yourself, and the strength and love you found in your children and grandchildren.

Thank you for sharing such a balanced view of both the good and the bad. It's important to hold onto both and to use them as a compass for finding the way forward. Your input to this forum is valuable and will remain so.

Maddog
 
Oh, thank you so much, Maddog!

It is a balance, the good with the bad. Truly, in some ways, I believe that I am a much BETTER person, than I otherwise might have been, because of my traumas and my CPTSD. I have noticed that people with PTSD and CPTSD, typically have a depth of compassion and understanding that far too many "normal" people seem to lack. I would rather be Broken, than Heartless. I would rather be the Drama Queen, than the Ice Queen.

I do want to share a word of caution, though, along with my natural optimism: as we age, life, in many ways, becomes ever more challenging. The reality is that, while we are working towards increased wisdom, insight, spiritual growth, and greater mental health, the ongoing losses and traumas of life continue to accumulate, and these events can often set a person back very farin their healing journey, if only temporarily. The older we get, the more physical health problems we can expect to have, and also as we grow older, our income typically falls, in most cases very drastically. Also, and hardest of all: as the years go by, and the further down the road of life we go, the more losses and griefs we will have to bear, some of which will seem at the time to be unbearable. When I was in my 20s, almost no one I knew died. When I was in my 30s, 4 or 5 people I knew well, died. When I was in my 40s, there were many more who died. But, in the not-quite-9-years since I turned 50, I have lost a great many dear loved ones to death. I know this will only increase exponentially, so long as I am still alive. Getting older isn't for sissies!

But truly, despite all these losses and sorrows, for me, the years since I turned 50 have been the very best years of my life, so far. I honestly am looking forward to being 60! I, who dreaded turning 30, worse than I would have feared the plague! When I hit 40, Oh my Lord I thought the world was ending. But 50 has been FUN, more than anything. I hope 60 will be fun, too. I'm going to do everything in my power to make it so!

Of course, it helps that I do not look like I am almost 60. I give credit to the antioxidant grapeseed extract, which I started taking 15 years ago... I believe I look younger now, than I did then. I also use skin creams that have powerful antioxidants in them. The photo of my husband and myself, that I'm using as my avatar here, his picture was taken on his 63rd birthday, which was less than a month ago, and my picture was taken just 6 months ago. That's what I really look like, at the age of 58! My aunt is 72, and she looks at least 20 years younger, so maybe its something in my genes, also.

If you take care of yourself, you can look better and even feel better while you are getting older, and really helps with the increased losses and challenges that naturally come with advancing age. But even so, when very dear loved ones die, that gets very hard. In just the past few years I have lost a grandson, my very precious stepfather, my extremely close uncle, who was more like a brother to me, and his daughter, my cousin, who was more like a little sister to me than a cousin, she drowned last summer, only a few hours after she and I were talking on the phone! I was writing a long loving letter to her, at the time that she drowned. I am still not over her death, I don't know if I ever will be over that.

Having CPTSD is hard on a good day. But when loved ones are dying, or someone you care very much about is diagnosed with cancer, or a grown daughter has a severely handicapped child, and goes through a divorce, and losses a job, when a grown son flunks out of college and has four bad car wreck, when your husband has a heart condition, and then he is diagnosed with diabetes, and then he has a motorcycle accident, and your house is foreclosed on after your husband can no longer work, and you lose your job ~ these big potholes in the road of life can hit you like a train wreck.

I am learning, the older I get, that I need to take extra good care of myself, not only physically, but emotionally and spiritually, too, every day, so that when tragedies hit ~ and they do hit us all, sooner or later, if we live long enough ~ the weight of the new tragedies, on top of the old traumas and tragedies, might not utterly destroy us. I have found that I need to be particularly gentle with myself, when tragedies of all kinds happen to my loved ones, to my family, to my friends, or when I see horrible things on the news, like the unbelievable earthquakes and tsunamis and murders and wars, and on and on and on... this world is a wonderful, glorious, miraculous place, but this world is also very HARD at times! All we can do is the best that we can with what we have on any given day, and give ourselves a break, especially when times are really tough.

When my darling cousin drowned last June, at the age of only 38... I thought I wasn't going to survive that one. But now, I am going on, I am picking up the pieces of my life once again, and I am doing what I know my baby cousin would want me to do. I am living my life in honor of her life, and in love for my most wonderful precious cousin Elaine. She was a nurse, too. She was an angel. I told her on the night before she drowned, when we talked on the phone for almost an hour, I told her how much I love her. I said, "I love you four ways. One, I love you for you. Two, I love you because you are my cousin. Three, I love you because I love your mom, my favorite aunt, so very much. And four, I love you because I loved your dad, my favorite wonderful uncle."

We never know when a phone call or a visit is the last one. I had no idea that she would freaking DROWN the very next day! I screamed when I got the terrible news. Screamed. I miss her so much, and it just seems so very WRONG that she is dead, while I am still alive. But I am living my life in honor of Elaine. I am writing in honor of her. That's why I am now using the pen name, Elaina.
 
I think, it would be helpful if more studies were carried out into ptsd in relation to different trauma. Because it does seem as if the nature of the trauma has an effect on how the symptoms of ptsd manifest.

From what I can gather, that is why professionals describe the trauma as complex or combat. Because these are areas with more study.

I did look for studies of ptsd recently. I noticed that the majority of studies looked at more easily comparable trauma situations. For example, veterans who have experienced the same war. Or people involved in the same terrorist attck.

I guess abuse that involves closer and more individual relationships might make it more difficult to study scientifically.

I feel quite alone regarding aspects of my trauma. But its ok, as long as others are accepting that they can't fully understand.

People who have been in very different situations have given marvellous emotional support, just by recognising that they know what its like to hurt. It doesn't matter that they've not been through the same traumatic experience as me, they empathise enough to say its ok for me to have my own feelings.

But I don't like it when people are making generalisations. I think getting to know sombody as an individual is important to understanding how ptsd effects them, rather than trying to know ptsd.
 
But complex trauma changes who you are, at the personality and self concept level, and leaves you with so many shattered, damaged, distorted and deformed conceptions of the world, yourself and the way that those two entities interact with each other. It impacts on the way you think, feel, behave and relate to the world, and it damages you in ways that can't be healed only through exposure or cognitive restructuring or any other individual style or focus of therapy.

It changes your personality. It shapes your self concept. It builds the foundations of concepts such as safety, trust and freedom in ways that are not typical.

I wish people would understand that complex trauma isn't just about the past and what happened to you, it's about the present, and the parts of the past that live on into the present in ways that can't be explained easily, if at all. It's about every aspect of yourself being some reminder of the past, which isn't to say that it can't be improved or "healed" to a significant extent, but just that its reaches run so deep, right through to the core of who you are and beyond.


Maddog

Absolutely. When you read diagnostic descriptions of PTSD it all sounds so tidy and the symptoms sound iust so plain bothersome................ it does not describe the mind welting, reality shattering, existential despair and terror, the poison through to your very soul. The weird clashes between parts of yourself, the terrifying nightmares and physical symptoms, the loss of faith in everything - even just being.

I wish people knew the sheer effort of courage and hopless blind faith that gets you through the ordinary days, day after day, the huge load of frightening and overwhelming feelings you have to carry on your shoulders while still maintain at outward show of normality, the places you have to reach into in your therapy in order to heal. I wish they weren't so quick to think they "understood" child abuse or trauma, as a tidy package, nor to forget that horrendous traumas can be happening right now, in outwardly normal middle class, achieving families.

I wish they didn't always give the benefit of doubt to the perpertrator - innocent until proven guilty. In silent, evidence-lite crimes like that, there is never going to be definite proof and it is easy to say someone is making it up, that they don't remember- the only definite proof is the criss crossing warren of damage seeping through the neurones of the child and her long and painful history and attempts to heal in therapy. We do remember. All of it, but sometimes it is remembered in the body, and in the silent screams of our souls.

The focus shouldn't be on the rights of the abuser, but onto rescuing that child and believing their story irrespective of anything else - before the poison seeps through adolescence and adulthood.
 
I wish people wouldn't think we are weak or less of a person for having PTSD. We have survived things alot of people wouldn't and if someone is fortunate enough to have never been tested that way, count their blessings and let compassion be their guide.
 
I wish people would understand that I am not trying to be lazy. That I don't have control of what I am doing and when I get into reflecting its really hard for me to get through. I wish they realized how horrible the dreams were sometimes and how often they happen. I wish that people knew what triggers were and how they may see like small events, but hey control my world. I don't wish for anyone to live the life I have and don't wish for a second I had a different life because what I have been through has made me the person I am. Although life is hard because I put everyone before myself I don't regret it. I just wish people understood a little more about my difficulties and respect mine like I respect the troubles they have.
 
Very well said. I especially think the thing about triggers is important. I think even a lot of sufferers don't understand how they are triggered and how it suddenly can cause your system to shut down and the world to narrow down- all you become aware of vaguely later on is that your mood has plummeted and you don't know why. The trigger was so subtle and the reaction so dissociated - you then have all sorts of theories about mood swings and what's wrong with you, all the time oblivious to what is really happening - ie something out there bypassed your concious mind but hit like a dart into the centre of your split off crumple zones.
 
Very well said. I especially think the thing about triggers is important.

Thank you for the response. I was diagnosed just under 2 years ago and I am still trying to piece together everything. I feel like everytime I try to figure things out though it just gets me upset and I start distancing from people. I am not really sure how I am going to get better if I can't face things. Doesn't help that with college and an engineering major I really feel like there is no time. I love to write and often do, but its usually often during class which then just messes me up for class. I try doing it later before I go do bed but I am so exhausted by that time in the day I just fall asleep.

<Edited by KP the nut, full quote removed>
 
I know how all that feels, it is exhausting and a daunting task on top of "real life".

I honestly think the key thing is to get into the underlying traumas - as a result you gradually start seeing how all your defences and manoevres work in a way that you could not imagine before, what means what, and after enough cycles of healing you start to develop a deepening understanding of yourself..it then all makes more sense to you, even if it's hard to put into words.

Trying to work it out doesn't work - and I say that as someone who tried that for a very long time, very very hard! - it is beyond comprehension because of the way it is compartmentalised. We cannot understand how out own brain is programmed to develop nor what it does when that development is arrested and disturbed by trauma. Nor what we need to put it right.

So a very good T is key, as is patience, curiosity, courage and fortitude.....and a lot of reading - I wish you all the luck you need xx
 
I wish people would understand how much my complex trauma makes me doubt myself and think I am such a horrible person.

I hear people go on about borderline personality disorder and it is associated with complext trauma. When talking about borderline personality disorder, they describe it as a mental illness, someone who should not be befriended, treated with caution because they can turn into a stalker, that they lie.

All my life I have been made to feel like I am the problem, I am the liar, I am the selfish one, when I was not, but now I doubt myself so much. I am constantly questioning am I right? Is this the right thing to do? I probably look guilty all the time because I am always questioning myself.

And I hear people talk about complex trauma as a personality disorder and I think, well maybe they were right, maybe I am just too mentally ill to realise that I am a liar.

I know I'm not but that sort of talk, brings out the self-doubts. That is part of my condition. Doubting myself all the time. Living with that is a nightmare.
 
I wish people would get that I can't control when I dissociate or when I get triggered. Yes, a phone ringing DOES trigger me, even if I expect it. So do most alarm clocks or really any noise that's unexpected. Even if I get ten texts in an hour, chances are I'll still jump when my phone beeps that tenth time. Getting pissed at me for it will only make me more anxious.

I wish people would stop asking me where I disappear to when I'm gone for an hour from a social event. Dude, I got triggered by the two assholes that were literally hovering over my chair. You saw me walk into the bathroom and then half an hour later you saw me pick up my coat and go outside. Seriously. And when I tell you that I had a panic attack don't freaking suddenly clam up and have nothing to say. F*ck that.

I wish people would not think that my experiences/feelings/thoughts are less because I dissociate and sometimes miss social cues. Just because I missed something or you don't agree with me doesn't mean you can completely dismiss what I'm saying/feeling/dealing with as wrong and then just say no to whatever I'm telling you I'm feeling/experiencing/whatever. They're still real to me, assholes. So if you think I'm not getting something, how about you explain it or actually listen to why I'm thinking the way I am? So tired of being treated like I'm an idiot or that I'm less than the people around me. Ugh.
 
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