No Help?

[Em C.]

Has anyone else been told by medical professionals that they have no idea what's wrong and can do nothing? I have PTSD and somatoform but because of I'm not even sure what my bodily and emotional reactions to things and functioning is just not what it should be. My psychiatrist doesn't know, wants me to just keep pushing my ass to strive despite everything, and said "there's always another pill I can put you on" after the previous time his suggested medications caused me to need emergency attention. My doctor (who is much nicer) doesn't know what's wrong either. He's had tests done and he doesn't think its either PTSD or somatoform but has no clue. My psychologist is a bit of an ass and doesn't know what's up either.

I'm not "terminally ill" or anything like that by any means but the answers I keep getting from people makes it sound like that. They don't know what is wrong with me and have no suggestions as to what I should do or who I should go to.

Has anyone else has experiences like this/ how did you deal with it?

Not so sound petulant but I'm 19 and I really don't have time or emotional power for this right now.

 

[DogMom731]

I wish I knew what to tell you. I don't, but I wanted to post for the sake of encouraging you and letting you know that I hope you continue to be as brave as you are being. I know that's a LOT easier said than done, but I sincerely and genuinely wish you the best of luck. I remember what it's like at 19 (though I realize that's different for all of us). For me, that's the age at which I became aware that I'd been abused for 19 years, flashbacks started coming, etc. So, that feeling of "no emotional power" is very familiar to me. Like I said; I can somewhat identify with how brave you are being. Keep up the good work (to the best of your ability)!

 

[Em C.]

Yep 18-19 is when all that stuff really hit me.

The support really means a lot!

 

[Samantha_38]

I've been doing this for 2+ years. Doctors have no idea, I don't have somatoform, although its been mentioned before. I get a lot of weird symptoms of a lot of different things. It started with one really bad infection, that nobody could figure out what it was, or even where it was, but it got better with hospitalization on IV antibiotics. Since then a million and five random things. Sometimes they can't find anything, sometimes they can find something but it doesn't add up to what I'm saying. Sometimes they find things that are exactly what I'm saying. Since the infection, I've had multiple blood clots in my lungs, fluid around my heart, painful joints that no one can figure out, low potassium and other weird blood count problems. Low blood pressure, high blood pressure, fast and slow heart rates. These blood pressure and heart rate changes can occur instantaneously. It's happened on monitors. I'll be at 70bpm and jump to 120bpm, then down to 40bpm. I've been in the hospital at least 5 times, and the ER more times than I can remember.

I wish I had better answers for you. I get stressed about these things all of the time. When I got pregnant, some of my problems went away, but most of them have come back since I had him. I don't have any answers as to how to make it better. Continue to live your life as normally as possible, get used to sucking it up when you hurt unless you're at 10 out of 10. Stay in contact with your doctor as much as you can. I have a really nice and helpful doctor as well. I've seen a psychologist once for my sleep issues, and he knew some about these things. I never ended up going back just because I was so frustrated the nothing would ever help. Like I said, I wish I had more to tell you. I don't think mine is PTSD related, but who knows. You can't ever really separate anything.

 

[Samantha_38]

Oh, I've also seen up some of 10 different kinds of specialists. I've actually forgotten all of them. Cardiologists, immunologists, allergists, neurologists, rheumatologists, gastroenterologists, ENT....I don't know, seriously everyone possible.

 

[DogMom731]

The support really means a lot!

I am happy to be supportive when I can. Feel free to message me anytime.