I have some health issues going on. Many of them have been happening for a long time. They are seriously impacting my life The medical on top of PTSD makes day to day functioning worse.
I have two serious complaints right now.
1. I have been communicating with my Dr.s via e-mail. Since they are all a part of the same university, it is all interconnected and all the Dr.s have the same info such as lab results and complaints and such. Yet I feel like I am being treated like a pingpong ball. My GP tells me that he thinks the majorit of my symptoms are the result of anemia and autoimmune. Hair loss, dizziness, vomiting, low blood pressure, menstrual issues, non-activity related lactic acid burning in my muscles, joint pain etc.
Menstrual symptoms under spoiler for guys and anyone who would prefer not to hear that part.
GP doesn't want to tackle the issues because he doesn't want to interfere with what the specialist he referred me to is doing. So I talk to the specialist, she thinks my issues are not related and I need to see my GP, a dermatologist, and OBGYN. OBGYN says my menstrual issues are not hormonal but most likely due to the anemia and lack low blood volume and says to talk to the specialist or GP. So I write back to the GP and the specialist. Gp says talk to the specialist. Specialist says go back to OBGYN or GP. OBGYN reinforces the fact that it is not an OBGYN issue and does not fall into that scope of practice. Specialist is insisting it is... and so on and so on.
Everyone is so busy to pass me off on other people no one is actually paying attention to what my symptoms are. Except for the wonderful @Ed Norton
2. Due to low blood supply and anemia I have had to undergo blood transfusions, I am have an I.V. vitamin infusion Monday, and the specialist wants to treat me with an I.V. medication (wich I plan on refusing)
~~~~Trauma story can be skipped if too long for reading~~~
The blood transfusions and now I.V.s in generally are a huge trigger for me. On top of hospitals being associated my most difficult to cope with trauma, (back to back traumatic deaths within a short period of time) my first blood transfusion was very traumatic.
I was scared of getting my first blood transfusion and was having a panic attack. I requested a few minutes of calm and space so I could get it under control. They said "She is hyperventilating get Haldol and call security. I would like to stress that I was NOT hyperventilating because I had my breathing under control!!!
My husband was trying to tell them I just needed space and he could calm me down fast, as him telling me "It's going to be ok," in a repetitive and soothing manner helps me a lot. They kicked him out of the room and had 4 security guards basically tackle me and hold me down while they injected me with a medicine that I have a known bad rejection all the while I was screaming, "I do not consent to that medicine, I do not consent!" On top it, they had a premed student attempt to do his first ever I.V. on me, and he couldn't get it after multiple veins and when he finally did it popped out once they started the blood transfusion. A nurse redid the i.v. By this point, I was physically paralyzed by medication but my mind was racing.
~~~~~end trauma story~~~~
So because of that, I go into flashbacks as a result. I have requested a sedative for the transfusions and I.V. vitamins. I was told no, that I could only take medication that was already prescribed to me. I was quite upset and with the help of my T and some amazingly supportive people here on this site, I constructed a letter to My. Dr detailing her why a sedative was needed for a 3-hour long infusion.
I just read the response. The Dr. basically said something along the lines of, "that is something you need to work out with a mental health profession, not my problem." At first, I was very hurt, her response felt unnecessarily cold and cruel. Then I anger. I am feeling a bit calmer after writing this, and the anger is slowly making its way back to hurt.
For anyone who made it this far, thanks for letting me get this off my chest.
I have two serious complaints right now.
1. I have been communicating with my Dr.s via e-mail. Since they are all a part of the same university, it is all interconnected and all the Dr.s have the same info such as lab results and complaints and such. Yet I feel like I am being treated like a pingpong ball. My GP tells me that he thinks the majorit of my symptoms are the result of anemia and autoimmune. Hair loss, dizziness, vomiting, low blood pressure, menstrual issues, non-activity related lactic acid burning in my muscles, joint pain etc.
Menstrual symptoms under spoiler for guys and anyone who would prefer not to hear that part.
GP doesn't want to tackle the issues because he doesn't want to interfere with what the specialist he referred me to is doing. So I talk to the specialist, she thinks my issues are not related and I need to see my GP, a dermatologist, and OBGYN. OBGYN says my menstrual issues are not hormonal but most likely due to the anemia and lack low blood volume and says to talk to the specialist or GP. So I write back to the GP and the specialist. Gp says talk to the specialist. Specialist says go back to OBGYN or GP. OBGYN reinforces the fact that it is not an OBGYN issue and does not fall into that scope of practice. Specialist is insisting it is... and so on and so on.
Everyone is so busy to pass me off on other people no one is actually paying attention to what my symptoms are. Except for the wonderful @Ed Norton
2. Due to low blood supply and anemia I have had to undergo blood transfusions, I am have an I.V. vitamin infusion Monday, and the specialist wants to treat me with an I.V. medication (wich I plan on refusing)
~~~~Trauma story can be skipped if too long for reading~~~
The blood transfusions and now I.V.s in generally are a huge trigger for me. On top of hospitals being associated my most difficult to cope with trauma, (back to back traumatic deaths within a short period of time) my first blood transfusion was very traumatic.
I was scared of getting my first blood transfusion and was having a panic attack. I requested a few minutes of calm and space so I could get it under control. They said "She is hyperventilating get Haldol and call security. I would like to stress that I was NOT hyperventilating because I had my breathing under control!!!
My husband was trying to tell them I just needed space and he could calm me down fast, as him telling me "It's going to be ok," in a repetitive and soothing manner helps me a lot. They kicked him out of the room and had 4 security guards basically tackle me and hold me down while they injected me with a medicine that I have a known bad rejection all the while I was screaming, "I do not consent to that medicine, I do not consent!" On top it, they had a premed student attempt to do his first ever I.V. on me, and he couldn't get it after multiple veins and when he finally did it popped out once they started the blood transfusion. A nurse redid the i.v. By this point, I was physically paralyzed by medication but my mind was racing.
~~~~~end trauma story~~~~
So because of that, I go into flashbacks as a result. I have requested a sedative for the transfusions and I.V. vitamins. I was told no, that I could only take medication that was already prescribed to me. I was quite upset and with the help of my T and some amazingly supportive people here on this site, I constructed a letter to My. Dr detailing her why a sedative was needed for a 3-hour long infusion.
I just read the response. The Dr. basically said something along the lines of, "that is something you need to work out with a mental health profession, not my problem." At first, I was very hurt, her response felt unnecessarily cold and cruel. Then I anger. I am feeling a bit calmer after writing this, and the anger is slowly making its way back to hurt.
For anyone who made it this far, thanks for letting me get this off my chest.
