So, after 6 years I have had another seizure, which meant calling work and saying I could not come in due to a seizure. I the went to a doctor with my partner and told him I had PTSD, I had a psychogenic none epileptic seizure, he immediately had a go at for using the term seizure because if its not caused by an electrical problem in the brain then it was not a seizure, I said fine, I got that, but I had no control over my body,I was scared of it happening at work, and I needed some advice or a letter asking my work to do a seizure safety check, he said he could not ask them to do that because he couldn't lie - it's not a seizure - so I said ok, what can we call it, he said a stress related event, I said that was useless because it gave no information to my employers whatsoever. I didn't want him to lie, I just wanted acknowledgement that I had had no control over my body and if it happened at work it could be dangerous and needed something ''official' to back me up and help me make sure everyone at work is safe. So frustrated, he just refused to admit that I didn't have any control over it and repeated the words stress related event so many times my cool and collected partner almost hit him, eventually I just got him to sign me off for a while ''stress related problems' but Jeeze...the ignorance of the man - If the epelipsy society is comfortable using the term seizure for none epeliptic seizures why should a doctor be so against it. And once he'd signed a sick note my partner turned to me and said "was there anything else you were worried about Hun?" And the Dr looked at him and said "No, times up."
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Doctor refuses to recognise seizure
- Post starter Frogs88
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Justmehere
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I’m sorry he shut you down at the end. Sounds like a really rude doctor.
Was this a psychiatrist? Psychogenic seizures are a mental health symptom probably best handled by a mental health specialist. They are a stress related symptom, so the doc wrong to call it a stress event. Having psychogenic seizures is a sign that your stress cup is full.
Psychogenic seizures are also called pseudoseizures and this might be why your doctor pushed back. What little training doctors get on this mental health symptom is that they are not “real” seizures - which can make it hard to get help for this very real and very distressing symptom.
One can learn to manage psychogenic seizures just like one can learn to manage dissociation. (Before you balk, note that didn’t write “stop” but “manage.”) There are in fact a lot of things you can do to manage this symptom - are you working on this in treatment? What did you want your workplace to do in terms of a “seizure safety check”? Psychogenic seizures are dissociative events. It’s sort of like asking them to do a dissociation safety check. It’s good that you have safety in mind, and this is probably best addressed by working with a therapist to come up with the best management plan, including any needed accommodations or assistance from your workplace.
Was this a psychiatrist? Psychogenic seizures are a mental health symptom probably best handled by a mental health specialist. They are a stress related symptom, so the doc wrong to call it a stress event. Having psychogenic seizures is a sign that your stress cup is full.
Psychogenic seizures are also called pseudoseizures and this might be why your doctor pushed back. What little training doctors get on this mental health symptom is that they are not “real” seizures - which can make it hard to get help for this very real and very distressing symptom.
One can learn to manage psychogenic seizures just like one can learn to manage dissociation. (Before you balk, note that didn’t write “stop” but “manage.”) There are in fact a lot of things you can do to manage this symptom - are you working on this in treatment? What did you want your workplace to do in terms of a “seizure safety check”? Psychogenic seizures are dissociative events. It’s sort of like asking them to do a dissociation safety check. It’s good that you have safety in mind, and this is probably best addressed by working with a therapist to come up with the best management plan, including any needed accommodations or assistance from your workplace.
Swift
Diamond Member
Hey.
I'm sorry your doctor acted like an idiot. (I have many less polite words.)
Pardon me for asking, and feel free to tell me to uh, go away (or any less polite words).
Have you had an EEG?
Pseudo-seizures pretty.much just means that you don't fit the clinical (? Typical) signs of epilepsy that. That's it, really
I'm sorry your doctor acted like an idiot. (I have many less polite words.)
Pardon me for asking, and feel free to tell me to uh, go away (or any less polite words).
Have you had an EEG?
Pseudo-seizures pretty.much just means that you don't fit the clinical (? Typical) signs of epilepsy that. That's it, really
DharmaGirl
VIP Member
And Pseudo-seizures are harder to treat, since the meds for seizures don't work for them. At least that's what a neurologist told me. I am really sick of the medical community dismissing things because they don't have all the facts. If it's "all in your head" aka stress response, they feel they shouldn't have to deal with it.
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