Charmedone
Diamond Member
I have never responded before as it was too painful... shortly after writing here, unfortunately the little boy died.. :(. It is so sad that he did not prove the doctors wrong, BUT his mum is amazing and the life that he did have was beautiful despite his profound special needs and him never being able to smile, he experienced all the things any 5year old would and MORE!! My favourite memory is of doing a sensory story-The ginger bread man with him and when I got to the bit "run, run as fast as you can, you can't catch me I'm the ginger bread man!!" I am 99% certain that he responded, he had bells in his hand and on that same part of the story he would jerk to make the bells ring...could be coincidence but I think it was him joining in! He truly touched my heart and many others too. I miss him terribly and my thoughts and prayers go out to his family.