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Interested to hear others' experiences (especially those with dissociative disorders)

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Thanks @Freida
When T told me I had people in my head I laughed at the nonsense. Once she got me to "see" them it was ....unreal. So we started with the parts that made me feel better -- like the warrior part who fought for her life. I could accept that kind of part because she wasn't a winey ass.
makes sense...

So did T see your parts before you did?

Can i ask how she got you to 'see them'?

I imagine that would have been scary as f*ck...
It took years before I recognized the screamer part, and more years before I could start accepting "her" version of my life.
💜
I fought the concept hard at the beginning, then I read The Body Keeps the Score, which became my bible. He does an incredible job of explaining parts and how they work and where they came from and what not, so I didn't feel as crazy when I thought about them. It was a hard read -- threw it across the room many times. 😀
I've been meaning to read this for a good long while... that and the one by janina fisher - fragmented parts of ourselves or something like that?

One of the main issues I'm dealing with atm is the problem of having strong intention to di certain things to help my therapy journey, then finding out days, weeks or even months later, that i haven't done them and I'm not sure how or why. Like i only become conscious of it again after the time i should have done it. Which T sees as part of the dissociation and amnesia. So f*cking annoying.
But it made sense, so ......

It was all in hindsight till about 2 years ago -- now I can kinda get screamers view in real time so that's making the process go a bit faster
You mean her perspective on the world now? Or her experience of the trauma?

Thanks @Freida 😊
 
So did T see your parts before you did?

Can i ask how she got you to 'see them'?

I imagine that would have been scary as f*ck...
I think she saw them first but I was so against the idea that she kind of let me come to my own awareness rather than telling me flat out. She started me with the Internal Family Systems idea first, then started the discussion about how people use dissociation to cope. Then came the bkts and that helped figure out exiles and firefighters and the whole crew. Once I could visualize that concept it made things way easier And ya, it was pretty freaking awful.

The biggest challenge for me was finding out I had trauma. I knew some bad stuff had happened, but I had NO idea how much or how bad it was. I buried that crap way down in my brain, so when it started coming up it was horrifying. But it helped make sense of the idea that I had parts to help me cope -even if I didn't know they were there
Which T sees as part of the dissociation and amnesia. So f*cking annoying.
Yep. Stuff just falls out of my head if I don't journal right after my session.
You mean her perspective on the world now? Or her experience of the trauma?
Her experience of the trauma. I HATED her. HATED HATED DIE BITCH DIE kinda hate. And at the beginning I didn't really know why. So the option of her trying to tell me about more traumas and figuring out what she did to keep me alive was a really tough thing for me to get my mind around.

Many years of therapy later I'm finally allowing her to show me the traumas that I had hidden and I'm starting to accept those them as mine, so the need for her to exist is kind of dissolving. slowly. sigh
 
I think she saw them first but I was so against the idea that she kind of let me come to my own awareness rather than telling me flat out. She started me with the Internal Family Systems idea first, then started the discussion about how people use dissociation to cope. Then came the bkts and that helped figure out exiles and firefighters and the whole crew. Once I could visualize that concept it made things way easier
sounds like she guided you through it all in a very structured way.... what's bkts? I know a bit about family systems but not sure what bkts is...

And ya, it was pretty freaking awful.
😔
The biggest challenge for me was finding out I had trauma. I knew some bad stuff had happened, but I had NO idea how much or how bad it was.
T has said he thinks that my brain is possibly hiding stuff re memories from me... and I'm just like, please can we not talk about things which haven't happened... like, if they surface then fine. But until they do, I don't like discussing that as a concept. Also because it feels invalidating that what I have brought isn't enough to explain my symptoms (though i admittedly I haven't shared everything I do remember)... it's just all such a head f*ck

I buried that crap way down in my brain, so when it started coming up it was horrifying. But it helped make sense of the idea that I had parts to help me cope -even if I didn't know they were there
Yep, I can see that....
Yep. Stuff just falls out of my head if I don't journal right after my session.
I'm writing entries in an online journal which my T can access too... and I'll forget what I've written sometimes after a week or so... or what he's written... I found something I'd written 4 months ago - absolutely no recollection I'd written it. None. Not after rereading and rereading. And it's in my hand writing.
Her experience of the trauma. I HATED her. HATED HATED DIE BITCH DIE kinda hate. And at the beginning I didn't really know why. So the option of her trying to tell me about more traumas and figuring out what she did to keep me alive was a really tough thing for me to get my mind around.
Huge. You've done so well. That's so much work. Just wow really.

I see what you've written and it's like you're standing on the other side of the river. I can't see a bridge and no idea how you get there. But I'm glad you found / are finding your way...
Many years of therapy later I'm finally allowing her to show me the traumas that I had hidden and I'm starting to accept those them as mine, so the need for her to exist is kind of dissolving. slowly. sigh
This sounds huge too... 😊
 
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what's bkts
Sorry -- Body keeps the score
T has said he thinks that my brain is possibly hiding stuff re memories from me... and I'm just like, please can we not talk about things which haven't happened... like, if they surface then fine. But until they do, I don't like discussing that as a concept. Also because it feels invalidating that what I have brought isn't enough to explain my symptoms (though i admittedly I haven't shared everything I do remember)... it's just all such a head f*ck
Ya -this is pretty common. Which sucks. And I et the whole "invalidating" thing cause what I brought originally was pretty damn bad, so the idea that there was more that was worse took a long time to get my mind around. T had to keep reminding me over and over that our brains are wise and will only allow us to see things as we are ready. Which never really made sense because I was NEVER ready 😊


I see what you've written and it's like you're standing on the other side of the river. I can't see a bridge and no idea how you get there. But I'm glad you found / are finding your way...
Not quite on the other side yet, but I'm getting there. And honestly a lot of what kept me going was coming here and talking with people who were in similar spaces and getting hope from the people who were a bit further along that I was because it showed me it could happen
 
Sorry -- Body keeps the score
Of course! Duh !
Ya -this is pretty common. Which sucks. And I et the whole "invalidating" thing cause what I brought originally was pretty damn bad, so the idea that there was more that was worse took a long time to get my mind around. T had to keep reminding me over and over that our brains are wise and will only allow us to see things as we are ready. Which never really made sense because
I was NEVER ready 😊
I think by default no one ever is..I mean even if it is ready to do the work, who is willingly going into this with a 'I'm ready to take it all on' attitude!? I can see what your T means though...
Not quite on the other side yet, but I'm getting there.
Well done...
And honestly a lot of what kept me going was coming here and talking with people who were in similar spaces and getting hope from the people who were a bit further along that I was because it showed me it could happen
Yes yes end yes.

Quality community of strong and wise people here, who really care. It's gold dust and I'm grateful.
 
Did you feel you had defined parts at the beginning of this journey?
Yes and No. At the beginning I thought I just had normal parts like everyone does (work me, party me, romantic me, etc.) and for a long time I told myself I must just be "putting on masks"...but once I started very actively tracking my emotions/body sensations and really paying attention to myself, that's when I realized weird things were happening...all the time...like someone else would take control of my body and I went "to the back" completely out of control of myself, at the mercy of some other part that wasn't me or some other part would yell at me in my head so belligerently who also was NOT me...it was terrifying. I also got a lot of strange feelings that "didn't belong to me" and engaged in a lot of scary and confusing behaviors. I also then started to pick up on the time loss, which for me was primarily in the past (we have minimal present day lost time, although it does happen). We also started noticing skill loss between different parts. Our parts are actually pretty distinct and recognizable.

Many of my parts are full-fledged alters with their own life history and desires and take full executive control of the body. One fronted when processing her trauma and has decided she never wants to front again and now she lives in a safe room in my head. Some parts have only ever lived in my head and have never fronted. Some are just bundles of emotions (like suicidal part, numb part, laughing part) (these ones are probably not true "alters" although separating them from "me" has helped in my healing as to not get completely flooded by them). Then there are fragments which don't seem to do much but just seem to hold a little part or piece of the trauma.

Parts come in a lot of different expressions. You get the parts you needed. It has taken me a LOT of work to get to know my parts.

Was this mainly through journalling?
What kind of strategies? I don't think I'm at this stage in the therapeutic process, other than doing a bit of mirror work, which seems to help. But I'm still finding it very strange the idea of 'communication' with parts....I don't know why it's such a blocker

We have pretty much done everything we can think of. Nearly everyday. Weekly at a minimum.

-Journaling
-Writing letters to each other or to T
-Trigger tracking/mapping
-Drawing
-Painting
-Music
-Tracking my moods/activities/behavioral shifts/which parts are around in a mood tracker app EVERY DAY (typically on a 3-hour interval).
-Daily check-in with all known parts
-Internal meetings
-providing opportunities for parts to engage in preferred activities (even if they don't show up)
-practicing noticing each other and sharing space at the same time
-practicing switching (we still suck at this, we are still mostly at the mercy of trigger switching)
-Asking parts to share any information they may want to share (preferences, ages, roles, desires for the future, fears, etc.)
-Anchoring/preferred items for parts who need them
-Grounding techniques that work for each part

i seem to not find the time to do things like journalling, so will have tu make a concerted effort. I think my amnesia is s big problem with regards to moving myself forward in a structured way. I set out to do things and then they don't happen because I lose sight of the fact I was supposed to do them...T thinks it's me getting blocked by parts potentially
One of the main issues I'm dealing with atm is the problem of having strong intention to di certain things to help my therapy journey, then finding out days, weeks or even months later, that i haven't done them and I'm not sure how or why. Like i only become conscious of it again after the time i should have done it. Which T sees as part of the dissociation and amnesia. So f*cking annoying.
and I'll forget what I've written sometimes after a week or so... or what he's written... I found something I'd written 4 months ago - absolutely no recollection I'd written it. None. Not after rereading and rereading. And it's in my hand writing.

I would recommend actively working on memory gaps. Sometimes we can't remember, sometimes we can only remember retrospectively, and then sometimes we find ourselves present when we normally would have had amnesia...and writing it down, regularly tracking when the amnesia comes, looking for patterns, and working towards shared consciousness. No judgement. Just noticing.

It is a LOT of effort. Checklists, whiteboard, sticky notes, alarms, reminders, shared communication method, regular internal check-in, asking inside, system calendar....

It is a huge commitment. It is not easy. It is massively time consuming. But I fully attribute the progress I have made to the time I invested.

And then begin being curious why parts of you are preventing you from completeing things. Write it down.

i think this is what's missing for me. And I'm scared to do it.
I'm still finding it hard to genuinely connect to the idea I can be thankful for parts who seem intent on destroying me. It's really hard. But I do get the logic.
I have to remind myself constantly (even still) that "all parts are good" even the terrifying ones.

I have a dissociative part that likes burning our flesh off and another one that yells at me mercilessly and another few that engage in traumatic sexual re-enactments and another one who wants us to commit suicide...Why the hell would I make space for that??? But once I did, everything began to change, they had an opportunity to move forward and take on a new role.

Their behaviors ALL finally made sense once I made space for them and got to know them. I had to understand them in light of the traumatic environment where they developed. The behavior was normal and helpful inside the context of abuse and trauma...it just wasn't helpful anymore now that we live in the safe present.

It was scary, but I can tell you that helping parts heal their trauma and get to the other side has been, although awful and scary, also a super rewarding and beautiful experience.


I'm realising I have no idea what my triggers are
I made a trigger tracking chart if you'd like to use it (I have attached it). I read basically every book on trauma I could get my hands on and pulled out all the helpful stuff to make this chart.

Understanding my triggers was foundational.


I think you've done amazingly. I know only snippets of your journey, and it's been so hard. But well done. And keep going.
thank you we appreciate it.


T has said he thinks that my brain is possibly hiding stuff re memories from me... and I'm just like, please can we not talk about things which haven't happened... like, if they surface then fine. But until they do, I don't like discussing that as a concept. Also because it feels invalidating that what I have brought isn't enough to explain my symptoms (though i admittedly I haven't shared everything I do remember)... it's just all such a head f*ck
I agree. There is no need to let your brain run wild. It is more important to begin noticing and see what comes up.


I hope this post isn't too overwhelming. We really dove in headfirst because we were feeling so bad we were desperate to try anything and everyrhing to "get better." We also still struggle with avoidance, so just start where you can and in areas that make sense for you and your life. We also realize we have a really amazing support system, without wich we wouldn't have been able to tackle our trauma in the way we did.

Everyone's healing journey is different. Take what resonates and leave the rest.
 

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