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Is Being OK Scarier Than Having PTSD?

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Fantabulous

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In a thread in the Carers section, a couple of people mentioned their sufferers have said that being OK (healing, being stable, etc.) is a lot scarier that dealing with PTSD, and that could lead to resistance to therapy, etc.

That is interesting to me, and I'm curious to hear from sufferers their thoughts on that. I know there is no one right answer for everyone, but I'm interested in learning more about that belief. I guess I can see the point (fear of the unknown?) but for those who have PTSD from fairly recent combat, would feeling "normal" be an unknown? Seems like you could remember what you were like before the PTSD took hold.

Would you be willing to share your thoughts or experiences on being afraid to heal and "move away" from your PTSD? Is it connected to a fear of facing the trauma, or something else?

I do not want to offend or bring up a touchy subject, so please forgive me if I have stepped over any lines or done anything wrong.

Thanks!
Fantabulous
 
Those not willing to heal, atleast really give 110%, quite honestly bring continued suffering upon themselves. There is a big difference between trying and not trying. This is why I do not really encourage any person to be on this forum that isn't here to help themselves. Honestly, you cannot help someone who doesn't want to help themself. Secondly, being around such people when you are trying to heal, is in itself creating a toxic environment regardless where that environment is... group, online, etc.

Facing your trauma is a huge fear, have no doubt, hence the major issue to begin with. Like I have said before... I have friends who refuse to help themselves, and they really are very toxic people to be around. Drinking, smoking, sleeping with anyone they can, even if married or partnered, etc. They are constantly living a destructive lifestyle. You can't help them... but you can choose to be around them or not.

Healing trauma is not healing PTSD. If you have PTSD, then it is stuck with you for life, and even after you heal your trauma, you will still endure bouts of primarily anxiety and depression in sliding amounts during your life. Severity is a sliding scale... some will suffer little, some will suffer daily or weekly, some once a month or two maybe. It all depends on individual factors, environment, lifestyle, etc.
 
This is just my experience, and I am sure that there can be several different reasons, but personally I have found that "healing"/ "progress" can be frequently very painful, because you have to address what was painful enough to avoid in the first place. So there is an element of pain/ uncertainty/ fear there, for sure.

Also expecting a "quick fix", it took me much time to be able to partially cut myself the slack to (try to) be patient. I'm not the best example!

Also, what is "familiar" (not necessarily at all healthy), can be less-stressful, in a way.

I cannot speak for a "before" and "after" identity for ptsd, because I was not an adult when it started, so who knows what parts just involved growing up/ maturing? Except to say I distinctly remember identifying it with the end of childhood.

I can only say, trauma is like grief, to me; I don't think anyone comes out on the other side of it the same. Not necessarily without 'good points'/ strengths, just not "the same".

Also, how can anyone "unsee"/ "un-feel"/ "un-experience" something, without sheer avoidance. -I can only imagine what vets/ people in the Military go thru- I can't, actually. My deepest respect goes out to them.
 
Well personally, because I have been abused all my life, being "okay" is terrifying because fear is all I know. This is all I know.
Another part of it is that I've been so trained that I do not deserve to be okay. So thinking about me being okay in the future scares me because I don't feel like I deserve to be so I'd be doing something wrong.
However, that's just me from an abusive situation.

Manic
 
I recently had a friend tell me that the hardest thing to do (though the most productive) was to forgive everyone who had hurt her. The reason she could not do it before, is that doing so would force her to live her life, which terrified her. It's not a simple question, as you can see, but a rather gut-wrenching series of decisions to move forward. I can't say that I'm capable of this myself, I can only assume there are others that feel the same doubt, I just don't want to get any worse and maybe that's the best I can manage for now. My hat goes off to anyone with the moxy and courage to fully heal, which I DO believe is possible, though as Anthony points out there will always be residual effects, not doubt.

Your question is a good one, and really cuts to the heart of the matter. Cheers.
 
I can't say that I'm capable of this myself, I can only assume there are others that feel the same doubt, I just don't want to get any worse and maybe that's the best I can manage for now.

I think you have hit a very important point Dave. I don't think its so much the forgiveness but the actual act of facing what happened, coming to an acceptance (for some forgiveness is part of this) and then not hanging on to it is the hardest.

As to what Fantabulous has asked..... to me I see the definition of the word OK being the key. Someone can be plodding along and thinking they are ok but, if they have not dealt with their issues, the scary part seems to me that the past may catch up with them at any time and they don't know when it will happen as they are actually not managing but actually just coping. :think:
 
It is extremely hard to face what you have been through. To look at yourself, and to see the person that you have become, because of PTSD. It's raw, and it hurts.

I had PTSD for about 30 years, before being diagnosed. I used every bad coping skill there was, and it became a way of life for me. Changing was one of the hardest things I ever had to do. It was almost as if, at 41, I needed to learn to live over again. Not and easy task to do.

It's not only changing your bad behavior/coping skills and learning new and healthy ones, but it's also changing how you think, and learning to replace the bad/negative thoughts to new/healthy ones. Everything about you must change, in order for this to be successful......

It isn't easy, as I and others have said, and unless a person is committed 100% to do this, then it won't happen. They have to be willing to put in the time, effort, and pain to do this........
 
Familiarity is its own Comfort

A huge thing made it very difficult for me to go from what I was to what I am: familiarity. Even though I was sick, I knew what to expect and how to deal with it: headaches, upset stomach, not eating much, anxiety, depression and my two favorite quilts under which I spent so much time. This was my routine and I had control of it (so I thought). This routine became my friend. My friend protected me from the world outside and the world inside my head. The mere suggestion of letting any part of it (or all of it) go was just like saying, “Stop breathing now, you’ll be fine.”

Who I was before this all started was irrelevant to me. I equate it to having become a mother. Who I was before I was a mother (slept in, ate just about whatever I wanted to) had no bearing on my life once I became a mother. It was the same with recovery. Abuse defined my childhood, so abuse was familiar. I knew the rules of it – what to expect, how to cope. I had no idea what the rules were for being normal – in life, in a relationship, etc.

The only comfort I could have was with that which was familiar to me: abuse, pain, anxiety, etc. Yes it was a sick familiarity and a sick comfort, but it was all I had. I wasn’t going to let anyone take what little comfort I had away from me, and I certainly wasn’t going to trade anxiety for “peace” or pain for “warmth” when I had no idea what those things were. They sounded iffy. I’d read about “peace”; it could be shattered. Who wants that? At least if you’re already anxious, there’s nothing to shatter.

Then we got to the crux of the issue: trust. Well how in the Sam Hill are you supposed to trust anything or anyone when all you’ve ever known is a profound lack of it? Here’s how I did it: excruciatingly small and terrifying leaps of faith – in myself. Could I trust myself to make an appointment and keep it? Could I trust myself to make sure there were enough clean washcloths so I could soothe my overheated face with a cool bath when anxiety hit? Over time I found I could trust myself to do these things. That’s when I realized my husband wasn’t doing laundry to show me what an unclean person I was (paranoid me thought this). He was doing laundry so I’d have clean washcloths at the ready. He wasn’t showing me up; he was showing me love. I learned to trust this. It was a long, difficult road, but I did do it – starting with myself and eventually extending this to him.

My husband tells me that after he got back from combat he wanted nothing more than to return to what and who he was before. I had a very hard time relating to him on this point. We conflicted often because it seemed like his goal was to go back and my goal had always been to go forward. I thought the only “right” was to go forward.

As an artistic person I find it very helpful to draw what I’m feeling. I applied this to how he was feeling, hoping I could come to some understanding of it.

I drew a dot on a piece of paper and wrote next to it, “feeling dark.” Then I drew a half circle going up that curved left. At the top of this half circle I wrote the words “feeling light.” I told him I started at “dark” and moved up to “light.” I asked him to draw a line representing how he felt.

He drew a dot next to “light” and then drew a curved line down alongside my half circle that ended at “dark.” When I asked him where he’d like to go from there, he drew a half circle from the “dark” dot that went up the right side of the page and ended at “light.” My line was pink; his was blue.

His pain had him traveling the same route as I had, but from a different direction. Our recoveries, however, were not along the same route. We thought we couldn’t understand each other even though he was experiencing the same things I had, but it was only because we went at it from two different places – he started at “light” and I from “dark.” Also, I was pretty much born at “dark,” and he ended up there as an adult.

His path back to “light” would be different from mine, but he would still end up at there. I had come to “light” from the left. He wanted/needed to get to it from the right. All I had to do was call out to him from a different direction. I had been calling to him from the left, where I’d come from, but he couldn't hear me. Once I started calling to him from the right he could hear me.

Until then I had not realized he might travel a different road to recovery. I was sure my way was the right way, and that deviating from that could only bring trouble. And because I thought that way, I was the one causing so much trouble – mostly for him.

I felt pretty stupid once I realized the error of my way because we have a special needs daughter, and I often explained her learning process to her teachers who said, “she just isn’t trying.” I would tell them that knowledge is like a park, and that everyone gets to the park a different way. Most people walk or run to the park, but there are those who skip, somersault, bicycle, use a pogo stick and even swing from tree to tree to get there. The teachers were only teaching to the walkers and runners. They were ignoring the equally capable skippers and bicyclists, writing them off as stupid or not trying. Who was really stupid? The teachers. (To be fair, she had lots of good teachers who even taught kids whole new ways to get to the park.)

When it came to my husband, I was the stupid teacher. I realized I was treating him like a runner when he was really a bicyclist. This is what I had to do for myself when I started recovery: accepting my faults as integral parts of who I was instead of damning myself for them and trusting myself to take care of who I was going to be the next day or week. I was someone who took a pogo stick to the park, but instead of accepting this, I punished myself for not being a runner or a walker like everyone else – which is to say I thought I wasn’t “normal.”

Every person on this board gets to the park (recovery and healing) a different way. The majority of people get there by walking or running – and the mental health community treats everyone like a runner or walker. But a lot of people take a different way – on a big wheel or in a wagon. When the person who is supposed to be helping you won’t acknowledge the best way for you to get there, they block you from getting there. The worst part is that we often block ourselves. So the most important thing to do is find out who you are: if you’re a walker or runner then fine, but if you’re a gymnast who loves back flips or a line dancer, then treat (and train) yourself accordingly else you’ll never get there.
 
We learn in therapy and in this forum that what we have is a permanent condition - this in itself is scary; think about it, it is essentially a life sentence, we will walk in a field filled with 'landmines' for the rest of our life. Being Okay is going to be a scary journey.
For me, it depends on what stage of PTSD I am in when I look at this prospect/topic. If I am anxious and sufferring, then I am NOT going to be wanting to face that for the rest of my life...then comes the depression and the feelings of being hopeless. The cycle for me has been seemingly endless for the past year and a half and at times it is difficult to imagine my 'future' life without these cycles.
I am struggling to cope and control my symptoms, struggling damn hard, to the point where there are times where I delve too much into the trauma and push too hard because I want it to be over with. I just want to be normal again but everyone is telling me that I won't ever be 'normal' again, I will be a 'new normal'...now what does this mean? What it means to me is extreme fear of the future. When I go back to work, how long will I be there, when will I get hit hard again or for that matter, will I ever be able to go back to work??????
Right now the future for me seems extremely bleak - so for the sake of complete honesty, 'being okay' is going to be a hell of a scary place for me to live; thing is, it can't be scarier than where I am right now.
 
"Hope" isn't Just a Word

When I was depressed (not sad; I was emotionless and empty) I thought the idea of “okay” was scarier than where I was because I knew I didn’t have what it took to be “okay” – the ability to smile, chat someone up politely, feign interest, etc.

I was terrified of the prospect, and a lot of it had to do with being told over and over that PTSD is a life sentence. For me personally, that turned out to be huge load of crap. Yes, I felt completely doomed, but did that really mean I would be doomed forever? Somewhere out of the dank, dark fog that was my reality, some tiny voice squeaked out, “That can’t be right.” And it wasn’t.

When my special needs daughter was 4 years old, the specialist said she’d never read past a 6th grade level. Had I treated her according to his assessment, she’d probably still be reading 6th grade books. I decided he didn’t know what he was talking about. She’s about to enter graduate school and is well on her way to becoming an anthropologist. Sure it took a lot of work to get her there, but there’s a big difference between “It will take a lot of work to get there” and “You’ll never get there.”

I applied the same thing to my own life and condition. To this day I will become a bit nauseous when I get a whiff of the men’s cologne, Old Spice, but I used to throw up uncontrollably. Later in my recovery I would become nauseous and have to leave the area, but I didn’t throw up. Eventually I was able to remind myself (out loud in the beginning) that the here and now is mine and that what happens to me is within my control – not someone else’s. I’m in control of whether or not I smell that nasty odor because I can leave the room - something I couldn’t do when I was six years old. Later in my recovery I started carrying a tiny container of baby powder (because it reminds me of my very loving grandmother, may she rest in peace) and would smell that until the other odor went away. By replacing the negative trigger with a positive one, I slowly but surely regained control. There have even been times recently when the smell of Old Spice triggers the smell of baby powder without me even having to reach into my purse.

Yes, I used to be afflicted. Now I have a scar – because that’s what happens naturally as one heals.

We don’t point to someone’s appendectomy scar and say, “You still have appendicitis and you will have it for the rest of your life.” If an appendectomy took 5-10 years to perform, it would be like PTSD and its treatment. Progress is made during surgery even as blood is lost, breathing is labored and blood pressure goes up and down. Afterward the patient is left with a scar. We don’t call that scar a “life sentence of appendicitis” just because one has a scar, remembers having appendicitis and is reminded of the pain and healing process every time they look at the scar. I don’t see PTSD, or any mental health condition, any differently.

So PTSD is for life, but that doesn’t mean that how it feels at its worst is the way it will feel forever. I can’t imagine where I would be now if I believed that. I understood it would be a lifelong healing process, and it has been and it still is. I have been healing all these years. This is to say I’ve been getting better and better.

Of course I remember all the things that happened to me. I don’t think I’ll ever forget, and I’m not sure that’s really the point. It would be great if I could forget, yes, but making that a goal and working toward it seems counterproductive. The goal for me was to get control over my own mind and body, and I did just that. Whether or not that is “normal” is beside the point. I have control of that which I can control. That’s good enough for me.
 
If you liken the ongoing challenges to a room full of all the food that you need to eat for an entire year it seems very daunting. But one taste, one bite, one plate at a time is manageable. When adrenaline is up, thinking ability is down. When adrenaline is down, thinking ability goes up. Focusing on things are day at a time or even a half hour at a time makes the whole ordeal easier to keep in proper perspective.
I think being OK is scary because when things are going quiet and smooth, we end up waiting for the next shoe to drop. Because it is in the nature of survival to look for the next danger. But slowing things down and reminding ourselves that just because we feel something, it doesn't make it a necessarily real, helps us feel grounded.
Granting yourself patience, time and permission to sometimes make mistakes is a huge gift to give ourselves.
O
 
Diana,

Your post made complete sense to me. Maybe it was the way you described it visually, but as I was reading your post I kept thinking "Oh. I get it now." It just made sense. Thank you for sharing.

I am not a sufferer (I have a friend with combat PTSD but he's not talking to me right now) and I guess I never really grasped the whole idea of "different people get to the park in different ways". On one level I knew that (different people learn in different ways) but reading what you wrote just took that to a new level for me. I work with university students, and I'm going to rethink how I get everyone "to the park".

Fantabulous
 
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