Is Your Team Actually A Team?

[holdenmonty]

Thank you all for sharing your thoughts on this.
I suppose I really need to figure out what it is I actually need from these people. Ah, therein lies the crux of the problem...I don't actually know what I need and keep hoping someone will figure it out for me! I suppose that's my job though. Thanks for the reminder.

It is really tough though I never really knew what I needed until my therapist recommeneded talking to the phycologist about being put on some meds to help out and then the phycologist told me how doing meds and therapy is like a two pronged aproach at helping me and that there is research that shows that people that are on meds as well as therapy do better then just therapy or just meds.

 

[Ronin]

I discovered lately doctors I thought I shared with soo much had almost no idea what went on in my life past two years or so, re-asked me about total basics we've sorted ages ago and it was all surprising all around, so nope, apparently sharing doesn't work not only between people taking care of me, but me + carers line altogether.

When I had regular therapists, they didn't work together with my psychiatrists, and my GP had the most idea who all is involved. Awareness, yes, team work, not even remotely. Currently I'm not taking shots at either because finding a therapist that won't dysbalance me is bit of a crux, psychiatrist I need mostly for medication and not much more, and I'm quite satisfied with other channels of help.

 

[Hope4Now]

I discovered lately doctors I thought I shared with soo much had almost no idea what went on in my life

Yes, I have this issue too if I'm understanding you correctly. I have parts that will not let me share the full extent of symptoms or experiences, etc...even to myself. Have had more success this past couple of weeks with trying to spit it all out to the t and docs...telling myself "this is real...it is not normal to feel this way...you need help and that's okay...etc. It is probably the reason nobody ever looked at PTSD or dissociation as an issue...even when the chronic pain started on top of everything else that's been going on for many years. I certainly never made the connect.

 

[Ronin]

I minimize, heavily, and don't share things I don't think people I'm talking to can help me with; it's not even derealization as much as not being used to share in a way that registers to people as a call for help, I think? (Not very clar on phrasing this).

 

[Ladyghosthunter]

Sadly, in a world where a business would rather hire someone out of college with a degree so they can mould them into a political way, we have to be careful to keep to ourselves when we have this issues. It stinks, it sucks, it's a load of crap not being able to be ourselves but this is the truth.
It makes me feel phony....

 

[Seasounds]

@Hope4Now

telling myself "this is real...it is not normal to feel this way...you need help and that's okay...etc. It is probably the reason nobody ever looked at PTSD or dissociation as an issue...even when the chronic pain started on top of everythingelse that's been going on for many years.

I agree.

In this case, if all of the different Providers were listening to each other, and at least one was listening to fully to you, who could summarize to the rest, hopefully someone would've been thinking holistically/mindbody. That way addressing the core problem could've started while managing your symptoms occurred.

Integrated and insightful care, imagine! Sad to say it has got written out of the budgets. I guess this is where pro-active patients supply the missing link.

For me, the first sign since childhood was asthma-unable to breathe. Like you in your case, the providers could not even imagine, nor bear the truth, that lie beneath this condition.

When I ask you, what would you like from your team, I thought what I would want. I would like all of the to let go of what they think is the problem, and do open ended listening-- walk a mile in my shoes.

With such care, validation, of what is and isn't normal, and compassion could be reflected. Also, creative problem solving. Like, maybe they could've figured out the cause of my month long migraine! Instead, since they weren't doing the job, I did.

I get your frustration. Thanks for voicing it and creating this thread. We are not alone. :)