General Medical trama of a loved one

[grammyjules61]

Today marks 105 days of ICU visits, living out of my car to be near spouse after MVA. Severed spine, now paralyzed, on trach, 6 surgeries, no rehab will accept due to class action against insurance company.....and the list goes on. My life has changed and I need to know I can do this! Anyone in similar situation???

 

[Friday]

Welcome to the community!

My son spent the better part of 2 years at a premier children’s hospital. Only inpatient for about 6-9 mo in total? It was in pieces. 5 weeks here, 2 weeks there, kind of thing. Inpatient, I lived with him in the hospital (they had daybeds for parents in the room). Outpatient we often had as many as 5 appointments per day, so we were still THERE, there was just also a lot of driving back and forth. If we hadn’t have lived so close, we’d have been put up at the Ronald McDonald house.

You can absolutely do this.

Most good hospitals have social workers to do both case management, resource acquisition, etc. for the patient …as well as… have a helluva lotta resources for spouses, parents, family.

 

[arfie]

when my husband's gall bladder exploded, ushering in a 2 month death watch and a year of recovery, i wondered often if he had the easier end of the trauma. he got to sleep through most of it and had access to some of the world's premier drugs to help him through the parts he was awake for. all i had was all his work on top of my own work, caretaking and anxiety enough to knock out a politician. a few hospital chaplains hovered in the hallway during the harshest of the bedside waits, but they never made contact.

rocking you gently and crying with you, jules.
sometimes life sucks harder than an industrial hoover.
steadying support while you ride it out.

 

[grammyjules61]

Welcome to the community!

My son spent the better part of 2 years at a premier children’s hospital. Only inpatient for about 6-9 mo in total? It was in pieces. 5 weeks here, 2 weeks there, kind of thing. Inpatient, I lived with him in the hospital (they had daybeds for parents in the room). Outpatient we often had as many as 5 appointments per day, so we were still THERE, there was just also a lot of driving back and forth. If we hadn’t have lived so close, we’d have been put up at the Ronald McDonald house.

You can absolutely do this.

Most good hospitals have social workers to do both case management, resource acquisition, etc. for the patient …as well as… have a helluva lotta resources for spouses, parents, family.

Thank you for responding. Spoke to MANY social workers..."sorry, wish there was more I could do." World renowned facilities and no help for families. Today is a rough day, so I'll keep my post simple. I feel like I'm drowning!!

 

[arfie]

I feel like I'm drowning!!

that's more than a feeling, jules. we are standing by with life preservers.
keep us posted.

 

[grammyjules61]

when my husband's gall bladder exploded, ushering in a 2 month death watch and a year of recovery, i wondered often if he had the easier end of the trauma. he got to sleep through most of it and had access to some of the world's premier drugs to help him through the parts he was awake for. all i had was all his work on top of my own work, caretaking and anxiety enough to knock out a politician. a few hospital chaplains hovered in the hallway during the harshest of the bedside waits, but they never made contact.

rocking you gently and crying with you, jules.
sometimes life sucks harder than an industrial hoover.
steadying support while you ride it out.

Thank you. I'm sorry for what you've gone thru. Today is a rough day....I'm the punching bag today, so I'll keep this short. Thanks for the response!! Hugs

that's more than a feeling, jules. we are standing by with life preservers.
keep us posted.

Thank you!

 

[Whattodo]

I don’t have anything useful to add other than - the cheesy phrase of ‘you’re stronger than you think’. I never thought I’d be able to deal with any of what I am now due to my partners PTSD…I may be on the edge of cracking up, but still going.
I hope everything gets better for you

 

[grammyjules61]

I don’t have anything useful to add other than - the cheesy phrase of ‘you’re stronger than you think’. I never thought I’d be able to deal with any of what I am now due to my partners PTSD…I may be on the edge of cracking up, but still going.
I hope everything gets better for you

Thank you. Ditto to you!