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Sufferer Not New To CPTSD; Asperger's/Autism Spectrum Possibly Compounding The Mix

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erikjms

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Hi I'm new here. My name is Erik, as might be fairly obvious. I have a rather long and complicated history partially just because I've survived to live twice as long as I was ever expecting to, but also because I suffered multiple and protracted trauma as a young child, and I happen to be queer in more ways than one, and it seems likely that I am on the autism spectrum, only undiagnosed. Who was screening kids for Autism in the 60s? Yeah. Nobody, really.

I am 48 years old and have been in therapy most of my adult life and have collected a long string of diagnoses. The latest have been Major Depression Severe Recurrent with Psychotic Features, PTSD, and Generalized Anxiety Disorder; I would be diagnosed with Complex PTSD if the diagnosis existed yet (I think my professionals think that "PTSD" is a more comprehensible diagnosis than "DES-NOS"--I am applying for disability in the US right now and unfortunately diagnoses are a bit political in this process). I am also differentially diagnosed as being on the Autism spectrum, but right now I cannot afford to pay a specialist for an adult screening. All of the free/assisted programs here only work with children.

We suspect I am on the Autism spectrum for a number of reasons, but those are not really the issue I came here to talk about but that those features of my personality seem to have intensified the effects of the traumas I experienced when I was small. I was molested by my older brother over the course of one summer when we were left home alone because both parents were working; he was supposed to be old enough and responsible enough to deal with anything that might come up. Ha. Then the following summer, at age 12, I was raped by a stranger while playing alone at the beach near my Grandmother's house.

I should probably mention that I grew up female, or female-assigned as we in the transgender community often word it, and so these things happened to me while I "was" a girl. I transitioned to male-presenting in 1997 when I was 35. Not that it matters that much, but girls are more likely to be molested than boys and having been socialized as a girl had a lot to do with why I never told anyone about either the molestation or the rape until I was grown up.

Prior to and alongside all of this, I was very badly emotionally and spiritually abused by my parents and the church they attended--unwittingly, in their eyes, since they thought they were acting in my best interests in trying to "save" me, but being told from age 7 that I was going to burn forever in the Lake of Fire for the sin of existing did a number on me. Because I was extremely introverted (possibly autistic), I was unwilling to "walk the aisle" and be "saved" at our church until I was more or less coerced into doing it when I was 13. That in itself was a traumatic event to end a long obsession with whether I was going to hell and whether I was going to be "left behind" when my family disappeared in the Rapture: I was taught that it was going to happen very soon and very unexpectedly. I had a panic attack anytime I was home alone and they were the slightest bit late coming in.

So, that's the shortest I could get my story so far. I had a very bad depressive crash in the winter of 97-98 and have spent the last 12 years fighting to recover from that. It was the worst one I have experienced thus far and the one that earned me the "with Psychotic Features" rider. I have talked to my therapist many times about the things that happened to me, but large parts of my being have been absent until relatively recently, and so the recitations have occurred in a somewhat dissociated state. I'm not particularly well-integrated, and aspects of my personality fled in the crash and some of them have taken all this time to return. I'm not sure I am done with trying to welcome old parts of myself back, but I think that I might have experienced the last return about three months ago. I can explain this in more detail if anyone is interested.

I am hoping to meet some other PTSD sufferers here and I would be very interested if anyone else here is on the spectrum and how you see that affecting the severity of your PTSD. As I mentioned, I am extremely introverted and have always been behind the curve in social development. I have some sensory issues as well, and I think that all of this may have intensified my reactions to what happened to me.

In any case, I am trying to figure out just how I am going to live the rest of my life. I am hoping that maybe participating here would be useful in that.

Thanks for reading.

Erik
 
Hi Eric

Welcome to the forum.

There may well be others here who have similar issues that have along with ptsd, I don't know who they are though. They will let you know in time, but for now have a look round the different areas, you may just come across a thread or some useful information that could help you move further forward.

Take care and good luck.

Amethist
 
Thanks, Amethist.

I got a little overloaded looking at articles on the Home Page so had to take a break but the two articles on CPTSD by Pete Walker resonated deeply with me, especially the one about emotional flashbacks. I get those all the time and I have never had a name for them other than "anxiety attack" or "meltdown" but the way they occur and what precipitates them are exactly what he spells out there. Since he is in the Bay Area I am going to ask my therapist if she knows of him and/or has read any of his articles. If not I might ask her if she's willing to read that one in particular because I feel bad that after 12 years I still hit crises where I think I've misunderstood everything she's told me and that she believes some awful thing about me instead. I think it might be helpful for both of us to dissect what happens, and I like the terms he uses: they ring true.

Erik
 
There are several folks here who have struggled with an autism disorder; search with those terms and you'll find their posts.

Welcome to the forum.
 
Welcome Erik!

I wanted to thank you for having the courage to tell us about yourself. I think you will find the support and answers you are seeking here on the Forum. It's a great place to start understanding C-PTSD and PTSD. Their symptoms often mimic other types of disorders. I'm of the opinion "don't care what you call it, just fix it!" I've spent many years in therapy trying to identify why I feel like sh*t all the time. Every year of work I do seems to bring up yet another diagnosis. I've come to accept that some of my symptoms will NEVER go away. Just have to learn to balance them somehow.

So glad to hear you have a therapist you can talk to. I've lost mine recently and am still on the search for an educated one. For me, it's only been recently that I have been having bad problems with the PTSD. I've never worked on just that issue. I've done alot of CBT to work on my childhood trauma/abuse/rape. Maybe we will be able to share histories later when you feel comfortable here. Anything I can do to help...

See ya around....
suzie q
 
Thanks, suzie.

Yeah I have a long collection of dusty psychiatric diagnoses. My first was schizoid personality disorder, which I think I earned by sitting on my therapist's couch taking about ten minutes to answer such difficult questions as "How are you?" (That can be a very difficult question!) I was 19 years old then, and it's been almost thirty years of nearly constant therapy since, trying to excavate down to whatever it is that makes me tick in a very, um, unique way. I've been through many therapists and psychiatrists and other diagnoses. I've been with my current team for over a decade. It has taken me nearly this whole time just to find parts of my personality that fled in the big crash. It is difficult to do work on trauma when the little person who experienced it is so deeply hidden that neither I nor the person I am talking to can find him/her. And it's taken all thirty years to get to a place where I could even begin to list off what happened to me; I've been deeply ashamed of most of it for most of my life, even though none of it was my doing.

Autism isn't really "fixable," but many features of CPTSD seem to be able to mimic it, and it would be helpful for me to have some idea of who I was before the abuse/neglect started so that I could sort out what "normal" would consist of for me, or at least what sort of recovery I can hope to achieve. Unfortunately it is currently a bit of a chicken and egg question because everything started so early.

I'm really good at answering questions, but a bit slow to share information on my own (autistic spectrum behavior number 3925), so if there is something in particular you are interested in hearing about, ask away. At the moment I'm still testing this place out for how safe it feels but I know that ultimately I will find out by talking to individuals since that is what groups are made of. Thanks for stopping to say hello. :)

Erik
 
Hi Erik,

This thread ended up getting randomly tagged by Google (I get e-mail news alerts on PTSD), so I had to jump in and say hi. Welcome to the forum! I think this is a pretty safe and supportive place.

DES-NOS... haven't heard that term in a while. I wonder if those of us who have C-PTSD ever end up being diagnosed as such? The neuropsychologist who diagnosed me understood about cumulative trauma, but she officially wrote it up as PTSD caused by one particular incident (a car crash). The next psychologist I worked with just picked a different incident that she thought was "particularly traumatic". So, yeah, heavily politicized; everybody has to watch what they say.

Best of luck with the disability application. It's supposed to be a painstaking process here in Canada, but I was approved on the first application, so who knows.

I think it's interesting that you mention similarities between C-PTSD and autistic-type symptoms (dissociation and meltdown/shutdown?). You seem to have a good understanding of what you're looking for. Hope the articles and discussions here do help, and I hope to see you around.
 
Hi Erik,

This thread ended up getting randomly tagged by Google (I get e-mail news alerts on PTSD), so I had to jump in and say hi. Welcome to the forum! I think this is a pretty safe and supportive place.

Hi! Thanks for stopping in. Does this mean I'm famous? :D

I have already learned quite a bit just browsing over the site. It's interesting because I have spent quite a bit of time learning about PTSD but there is always something new somewhere. Of course, I am a bit slow to trust, especially in large groups, but I don't really experience internet forums as large groups unless I end up talking to a lot of different people.

DES-NOS... haven't heard that term in a while. I wonder if those of us who have C-PTSD ever end up being diagnosed as such? The neuropsychologist who diagnosed me understood about cumulative trauma, but she officially wrote it up as PTSD caused by one particular incident (a car crash). The next psychologist I worked with just picked a different incident that she thought was "particularly traumatic". So, yeah, heavily politicized; everybody has to watch what they say.

I don't actually know whether I have a particular incident listed as precipitating the PTSD. I might ask my therapist about that. Last night I started to make a list of discrete sources of trauma in my life, most of them from childhood; I got to the fourth one before running out of steam. There are at least two more, but when I get started writing I always think of something else.

Best of luck with the disability application. It's supposed to be a painstaking process here in Canada, but I was approved on the first application, so who knows.

Thanks. I have a lawyer helping me at least, and she is funded by the city and through private donations, so I don't have to pay her. She tells me that the analyst for my case has said they do not need any more information, so we are waiting to hear the first ruling. In the US, 60-70% of applications are denied the first time through. If that happens, we will appeal, but that is where it gets grueling: it could be a year and a half before I got a hearing. I'm battened down for the long haul, myself, but will be pleasantly surprised if I get approved soon.

I think it's interesting that you mention similarities between C-PTSD and autistic-type symptoms (dissociation and meltdown/shutdown?). You seem to have a good understanding of what you're looking for. Hope the articles and discussions here do help, and I hope to see you around.

Thanks! I'm sure I'll be here for at least a little while. Most of my social life is conducted online; my introversion in face-to-face life is something I was born with, but trauma has made it worse. If the internet hadn't exploded when it did I don't know what I would have done, but it did, and here we are. :)

Erik
 
Hi Erik,

Welcome to the forum. I was also raped/molested as a child and I believed I was going to burn in hell for all of enternity by the age of 8. My oldest son was diagnosed with Asperbergers when he was 8 years old. He is 16 1/2 now and starting to drive. What is so strange is that before he was diagnosed with Asperbergers and before I was diagnosed with PTSD, everyone said he took after me. He IS a lot like me. It's interesting how we both have a lot of the same issues. My son has a lot of sensory issues as well.

This is a great place with lots of wonderful people. I'm glad you found us!

Jen
 
Thanks Jen. It sounds like your history may be similar to mine. It seems to me like not that many people know about what goes on in some fundamentalist families in the guise of a "normal" religious upbringing. Some kids seem to weather it ok, but others of us, not so much.

It's also interesting that I know a number of adults--online, for the most part--who were diagnosed as being on the autism spectrum after their kids were diagnosed. I don't mean to imply that I think you must be, but I've met a number of people our age and a little older who did not receive an AS diagnosis until one of their kids turned out to be on the spectrum. Many of us were overlooked in the 50s and 60s, I believe.

It is not always clear to me what came first in my case; some of my quirks I seem to have been born with, but others certainly follow the pattern for CPTSD. In some instances, though, an autism spectrum diagnosis would explain my reactions to some of the things I experienced when I was small and why I was traumatized where others were not. I have also heard many stories about the strange things I did as a very young child and many of them fit an AS profile as well. I banged my head, rocked back and forth, had to have the tags cut out of my clothing and was very sensitive to the texture of my clothes, was late speaking, etc etc.

Maybe I have some things in common with both you and your son! Either way, glad to meet you.

Erik
 
Erik,

I really commend you for posting about your trans status. I am a brand new member here, dealing with PTSD and anxiety, stemming from childhood sex and emo abuse, and am also trans. I chose not bring that up in my intro post, because in my experiences with this stuff, my transition has been blamed on my abuse history, which I think is total BS. I had gender variant behaviors before I was exposed to abuse.

Seeing how people responded to you about this, makes me want to be more open! Good luck on your journey!

Devon
 
HI Erik,
Just want to say welcome to the forum. I hope you find the people here as wonderful as I do. It is a very safe place. I can relate to much of what you say about yourself though I am not autistic. There are some here who have that diagnosis too. I am sure you will make contact with them. You've already found the articles. Take your time, read lots and share as you are able.

So, that's the shortest I could get my story so far. I had a very bad depressive crash in the winter of 97-98 and have spent the last 12 years fighting to recover from that.
I too had a complete breakdown. It was 9 years ago and I have never been the same since. I had been in therapy for 7 months then moved so quit. I have been in therapy for a year now and finally seem to be making some progress. I doubt that I will ever be the same again. Acutally I hope I won't, I want to be better. I would like to retrieve the positive aspects of myself that I lost though and am working towards that.

There are certain traumas that I only have partial memory of though I am starting to recover them. It is hard to remember, but I seem to need to do that. It has been hard work and slow progress. I start EMDR therapy next week with a psych that is almost 2 hours from where I live and will also be seeing my regular T. So some intensive stuff coming up, which hopefully will be well worth the pain and effort.

I do hope you find this site helpful. Great info here and lots of people who can relate to your struggles, people who will offer you support and understanding.

Welcome to the forum!
 
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