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What Was It Like For You When You Were First Diagnosed?

  • Post starter Post starter just me here
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Twenty years ago I was diagnosed with an illness that was also incurable. It was also, like PTSD, something that a lot of people didn't "believe" in and was invisible for the most part physically. I had Chronic Fatigue Syndrome. It also needed to be diagnosed on the basis of so many symptoms over such-and-such period of time.

I was unable to work after the first six months but on a casual basis I looked fine. I was out of work for two years and didn't know if I would ever go back to anything. I rested, took walks and sat in the sun a lot. That's when I first met my husband and we were married before I was recovered.

I did recover, mostly thanks to taking a long regimen of lots of Chinese herbs meant to rebuild all the systems of the body. It was gradual but was great to see some progress. I still live my life the way I do today to reduce the chance of any relapse. I know what's bad for me.

Feel like I'm experiencing some of the same feelings with this, that I've been here before. Scares me because it's all so unknown.

I'm mostly angry right now that it was someone else's fault that I have this and that I have to go to therapy to have my head pried open with a can opener; that I have something that will last the rest of my life. Because of the way the trauma happened, there is a dividing line in my life. One day I am normal and happy, the next there's this descent into Hell.

I'm hoping that my brain is resilient enough to repair itself to the greatest extent possible.

Congrats, just me here, on your recovery from Hep C. You hold out a lot of hope in thinking about the possibility of future treatments :)
 
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