I used to… but am now

[Friday]

I used to be a rescue swimmer (usmc)

I used to be armed response (for NGOs).

I used to be a pre-Olympian in gymnastics, figure skating, diving, modern pentathalon.

What does this tell you about me?

 

[Joy Palmer]

I used to be a rescue swimmer (usmc)

I used to be armed response (for NGOs).

I used to be a pre-Olympian in gymnastics, figure skating, diving, modern pentathalon.

What does this tell you about me?

Based on the information you shared, it seems that you have had a diverse range of experiences and accomplishments in your life. You have mentioned being a rescue swimmer in the US Marine Corps, which suggests that you have undergone significant training and possess physical strength and courage. Your experience as an armed response for NGOs indicates a strong sense of dedication to humanitarian causes and a willingness to protect others.

Furthermore, your involvement in various sports, including gymnastics, figure skating, diving, and modern pentathlon, showcases your commitment to athletic pursuits and a drive for excellence.

Overall, it seems that you are someone who thrives on challenges, enjoys physical activities, and has a strong sense of service and dedication to others. Your background suggests a well-rounded and adaptable individual with a wide range of skills and experiences.

 

[Friday]

I also have 4 undergraduate degrees, (BSRN, Anthropology, Psych, & Fine Arts) and am presently on hold / midway for my masters & phds, due to financial/interpersonal concerns. I may never finish my academic training & certications, as I’m uncertain in the direction to take my life.

What more does this tell you about me? Or how does this change things?

 

[Joy Palmer]

I also have 4 undergraduate degrees, (BSRN, Anthropology, Psych, & Fine Arts) and am presently on hold / midway for my masters & phds, due to financial/interpersonal concerns. I may never finish my academic training & certications, as I’m uncertain in the direction to take my life.

What more does this tell you about me? Or how does this change things?

Thank you for sharing additional information about your educational background. Having four undergraduate degrees in diverse fields like nursing, anthropology, psychology, and fine arts indicates that you have a strong intellectual curiosity and a desire to explore different areas of knowledge.

Your interest in pursuing higher education through master's and PhD programs further demonstrates your commitment to personal and professional growth. However, your current situation, where you are on hold or midway in your academic pursuits due to financial and interpersonal concerns, suggests that you may be facing challenges and uncertainties in navigating the next steps in your life.

This uncertainty can be a common experience for many individuals, and it is not uncommon to question the direction to take in life. It is important to remember that these moments of uncertainty can also present opportunities for self-reflection, exploration, and growth.

As a life coach, my role would be to assist you in navigating these uncertainties, identifying your values, passions, and goals, and charting a path forward that aligns with your unique circumstances and aspirations. It is important to recognize that not completing your academic training and certifications does not define your worth or potential for success. There are various avenues to pursue personal and professional fulfillment, and together we can explore different options to help you discover a direction that feels fulfilling and meaningful to you.

 

[Friday]

My present problem is that, for the past 18mo I’ve had an infection effecting/affecting my CNS & ANS. Due to healthcare shortages appointments with specialists are 6-9mo out. No injury to my spine or brain has been determined, as well as temporary cessation of all symptoms whilst on broad spectrum antibiotics, points to infection. Which, of/when am infectious disease specialist can see me, also points to a positive prognosis. If I don’t die before I can see one, or they can admin med trials.

I can barely move 100% of the time (both gross & fine motor, are severely impacted), lose the use of my hands about 2/3s of the time, cannot speak 3/5s of the time, cannot think 4/5ths of the time (lose the ability to read, or to learn new things, or to correlate, or to imagine). I am in severe pain/contractures, blackouts lasting hours/days/weeks, severe emotional/cognitive impairments….

…in short? I’m a mess.

I don’t even know what help to ask for.

Can you infer -or posit- anything I might do, or ask for given my situation & background?

 

[Joy Palmer]

My present problem is that, for the past 18mo I’ve had an infection effecting/affecting my CNS & ANS. Due to healthcare shortages appointments with specialists are 6-9mo out. No injury to my spine or brain has been determined, as well as temporary cessation of all symptoms whilst on broad spectrum antibiotics, points to infection. Which, of/when am infectious disease specialist can see me, also points to a positive prognosis. If I don’t die before I can see one, or they can admin med trials.

I can barely move 100% of the time (both gross & fine motor, are severely impacted), lose the use of my hands about 2/3s of the time, cannot speak 3/5s of the time, cannot think 4/5ths of the time (lose the ability to read, or to learn new things, or to correlate, or to imagine). I am in severe pain/contractures, blackouts lasting hours/days/weeks, severe emotional/cognitive impairments….

…in short? I’m a mess.

I don’t even know what help to ask for.

Can you infer -or posit- anything I might do, or ask for given my situation & background?

I'm really sorry to hear about the challenges you're facing with your health and the impact it's having on your daily life. It sounds like a very difficult and overwhelming situation.

Given the severity and complexity of your symptoms, it is crucial that you continue to prioritize seeking medical attention and follow up with the necessary specialists, particularly an infectious disease specialist. I understand that wait times can be long, but it's important to persist in advocating for your health and exploring any potential treatment options that may be available.

In the meantime, it may be helpful for you to connect with a supportive network of individuals who can provide emotional support and understanding during this challenging period. Consider reaching out to friends, family, or support groups where you can share your experiences and connect with others who may have faced similar health struggles. Online communities, such as those focused on chronic illness or specific medical conditions, can also be valuable sources of support and information.

Additionally, it might be beneficial to consult with a therapist or counselor who specializes in working with individuals with chronic illness or disability. They can help you navigate the emotional and psychological impact of your condition and assist in developing coping strategies to improve your overall well-being.

As a life coach, my role is to offer support and guidance in goal-setting, problem-solving, and accountability. In your situation, given the complexity of your health concerns, it may be beneficial to focus on small, manageable steps that can help improve your daily life. This could include setting goals around self-care, developing coping strategies for pain management, exploring assistive devices or adaptive techniques to support mobility and communication, and finding ways to engage in activities that bring you joy and fulfillment despite your limitations.

Remember, you are not alone in this journey, and seeking support from medical professionals, mental health practitioners, and a network of understanding individuals can provide you with the best opportunity for navigating this difficult time.

 

[Friday]

Given both my educational & experiential backgrounds? I know how to make a short range of vey serious antibiotics, which would most likely cure me of this infection, but also destroy my kidneys.

Whilst I know I can live on dialysis for at least a few years, waiting on transplant, I am ATTEMPTING to wait on medical doctors, with more experience, to prescribe antibiotics courses that would not box my kidneys.

I am not a patient person, by nature, so waiting on an ailing medical community is… difficult.

Kidney failure? Is so much better than what I am currently experiencing. I could still work, going in for dialysis 3x per week. But? A lack of a donor would kill me.

What would you recommend?

 

[Joy Palmer]

Given both my educational & experiential backgrounds? I know how to make a short range of vey serious antibiotics, which would most likely cure me of this infection, but also destroy my kidneys.

Whilst I know I can live on dialysis for at least a few years, waiting on transplant, I am ATTEMPTING to wait on medical doctors, with more experience, to prescribe antibiotics courses that would not box my kidneys.

I am not a patient person, by nature, so waiting on an ailing medical community is… difficult.

Kidney failure? Is so much better than what I am currently experiencing. I could still work, going in for dialysis 3x per week. But? A lack of a donor would kill me.

What would you recommend?

I'm not a medical professional, but it sounds like you're facing a challenging decision regarding your health and the potential risks associated with certain antibiotics. It's important to prioritize your health and consult with medical experts who have the knowledge and experience to guide you in making the best decisions for your situation.

While it may be frustrating to wait for medical professionals to prescribe antibiotics courses, it's crucial to consider the potential risks and benefits before taking any actions that could have severe consequences on your kidneys or overall health. An infectious disease specialist is likely the best resource to assess your situation and determine the appropriate course of treatment that minimizes harm to your kidneys while effectively addressing the infection. They can also explore alternative treatment options or consult with a multidisciplinary team to determine the best approach.

It's understandable that waiting can be challenging, especially given your current difficulties. However, transporting your medical treatment to your own hands without the guidance of medical professionals can be risky. In the meantime, it may be helpful to focus on self-care strategies that can support your overall well-being and manage symptoms as much as possible.

Consider reaching out to medical advocacy organizations or patient support groups that specialize in your specific health condition. They may be able to provide advice, resources, or support networks that can assist you during this waiting period. Additionally, maintaining open and transparent communication with your healthcare providers about your concerns and needs can help ensure you receive the attention and care you require.

Please remember that my role as a life coach is limited to providing emotional support and guidance, and I strongly encourage you to prioritize consulting with medical professionals who can provide you with the appropriate medical advice and treatment options.

 

[Friday]

it may be helpful to focus on self-care strategies that can support your overall well-being and manage symptoms as much as possible.

Given my limitations, what would you suggest?

 

[Joy Palmer]

Given my limitations, what would you suggest?

Given your limitations and the challenges you are facing, focusing on self-care strategies can be beneficial for managing your overall well-being. Here are a few suggestions:

1. Prioritize rest and sleep: Make sure to get adequate rest and prioritize quality sleep. Establish a consistent sleep routine and create a calming bedtime routine to promote better sleep.

2. Manage stress: Explore different stress management techniques that work for you, such as deep breathing exercises, meditation, mindfulness, or relaxation techniques. Engaging in activities that bring you joy and relaxation, such as listening to music, practicing hobbies, or spending time in nature, can also help reduce stress.

3. Seek support: Reach out to friends, family, or support groups who can provide emotional support and understanding. Consider joining support groups or online communities specific to your health condition, where you can find empathy and advice from others who have similar experiences.

4. Adapt your environment: Make modifications to your living environment to enhance your comfort and mobility. This could include utilizing assistive devices, rearranging furniture for better accessibility, or making modifications to ensure a safe and supportive space.

5. Focus on nutrition: Maintain a balanced and nutritious diet that supports your overall health. Consider consulting with a healthcare professional or nutritionist who can guide you in making dietary choices that support your specific needs and limitations.

6. Engage in gentle exercise: Depending on your capabilities, explore gentle exercise options that can help improve mobility and promote overall well-being. This could include activities such as stretching, light yoga, or modified exercises specifically tailored to your abilities.

7. Utilize coping mechanisms: Develop coping strategies to manage pain, discomfort, or emotional distress. This might include relaxation exercises, mindfulness techniques, distraction techniques, or engaging in activities that bring you comfort and joy.

Remember, it is crucial to consult with your healthcare providers for personalized guidance and support tailored to your specific condition and limitations. They can provide you with the most appropriate recommendations based on your individual circumstances.

It may also be helpful to work with a supportive counselor or therapist who specializes in chronic illness or disability. They can assist you in developing coping strategies, processing emotions related to your health challenges, and finding ways to improve your overall well-being.

Ultimately, self-care is a personal journey, and it may require some trial and error to find what works best for you. Be patient with yourself, practice self-compassion, and continue to seek the support and guidance you need.

 

[Friday]

Manage stress: Explore different stress management techniques that work for you, such as deep breathing exercises, meditation, mindfulness, or relaxation techniques. Engaging in activities that bring you joy and relaxation, such as listening to music, practicing hobbies, or spending time in nature, can also help reduce stress.

Any suggestions for a person who cannot use gross or fine motor or cognitive strategies?

 

[Joy Palmer]

Any suggestions for a person who cannot use gross or fine motor or cognitive strategies?

Certainly, if you are unable to use gross or fine motor skills and cognitive strategies, there are still self-care strategies that can support your overall well-being. Here are a few suggestions:

1. Emotional support: Seek emotional support from trusted friends, family, or support groups who can provide understanding and empathy. Connecting with others who have similar experiences can be valuable.

2. Relaxation and sensory activities: Engage in activities that promote relaxation and stimulate your senses. This could include listening to calming music, using aromatherapy, enjoying gentle touch through massage or using sensory items like stress balls or fidget toys.

3. Mindful breathing: Practice simple breathing exercises that focus on deep and slow breaths. This can promote a sense of calm and relaxation.

4. Guided imagery: Listening to guided imagery or visualization recordings can help transport your mind to peaceful and calming environments, taking your focus away from your current challenges.

5. Use adaptive technology: Explore the use of assistive technology, such as voice-activated devices or software, to help with communication, accessing information, or engaging with the world. These tools can provide a level of independence and empower you to connect with others even without motor or cognitive abilities.

6. Engage the senses: Find activities that activate your senses and bring you pleasure. This could include listening to audiobooks or podcasts, exploring different scents or tastes, or enjoying textures with soft blankets or objects.

7. Connection with nature: Spending time in nature, even if it's just sitting outside or looking through a window, can have a calming and grounding effect. Observe the sights and sounds of nature, which can help you feel more connected and bring a sense of peace.

8. Encourage support from a caregiver: If you have a caregiver or loved one, communicate your needs and preferences clearly to them. They can assist you in implementing self-care strategies and providing the support you require.

Remember, it's important to work closely with your healthcare team and any support professionals involved in your care. They can provide individualized guidance and recommendations based on your specific circumstances.