Relationship A Big Thank You... And A Piece Of Advice

[Deleted member 38137]

Sigh! Yep. PTSD in the movies is always neater and tidyer than in real life.

The implication that Lt...

As a long term survivor of the AS, I, of all ppl should know that there's good days and bad. Lately, I'm pretty good. That might change tomorrow. I might feel like absolute shit. I'm pretty sure that's what happens with my Vet.

Helplessly, my friends and my family have watched me weather the storm of chronic pain. It's really heartbreaking when your kids have to pull you out of bed in the morning because you are SO STIFF. But then again, it's not every day.

When I'm stiff and out of remission, you can't touch me without causing pain. Even if a massage hurts so good at the time but my body can't take it. Think of your Vet the same way. He might want you to rub his goofy little brain but can't take it. Just a thought

 

[Deleted member 38137]

She's extremely overweight and I struggle to eat. It's my mom. She has so much past trauma and now she...

She needs to do the work. That's it. It's hard. It hurts. But she needs to do it. She has a beautiful daughter to think about. This disease is a fight. EVERY DAY. But it's possible to get it to a dull roar. When I am in huge flares, I get depressed too. BUT THIS ILLNESS DOESN'T DEFINE ME.

Don't let her forget that.

 

[Muted]

Thank you, I've never known of anyone else who has it. It helps to have some insight, because she refuses to talk about the pain but I can see it...

 

[Deleted member 38137]

Thank you, I've never known of anyone else who has it. It helps to have some insight, because she refus...

It's rare for women. I'm THE ONLY one my physical therapist has ever met and number five for my rheumatologist. So yeah, your mom and I are oddballs. Lol.

Do your own research though. What drugs is your mom taking? Several of them prescribed also cause weight gain. Do the research on them.

Best thing for pain is as little as possible. Exercise and adequate Vitamin D intake will help a lot.

You should see the list of drugs they've thrown at me over the years. I've only succumbed to tramadol and flexeril. They work without making me gain weight and have crazy side effects!!

 

[dulcia]

This is an array of very amazing people for sure. Happy you are here.
I am so very sorry to hear of your...

As a supporter, I greatly enjoy hearing from sufferers and wish I could hear from them more.

 

[Muted]

It's rare for women. I'm THE ONLY one my physical therapist has ever met and number five f...

It is rare and pretty miraculous you both got diagnosed. I know she's on a ton of medication, but can't take the one that used to really help her anymore. I'm going to mentioned those you talked about and see if she is taking them or if she could try them. Thanks!!

 

[ldj]

@tiredtexan - I agree! @ladee we value the insight your input gives us :)

 

[ladee]

I will try to read more from this side. And share if I feel it will be heard.
It would help if you let us know you would like our input. I hesitate many times because this is not made clear.
It's nice to know that what we have to say is valued.
I can only speak for myself here, but I won't post to a supporter uninvited.
Gentle hugs across the miles if accepted.

 

[ldj]

That's really useful feedback @ladee, thanks!!! I've often posted stuff hoping/wanting the response of sufferers because, as useful as it it to hear the experiences of fellow supporters, sometimes there's an element of the blind leading the blind! Hearing your views from the other perspective is so invaluable in helping us understand what you're going through. I have sometimes wondered how many sufferers read threads in the supporters section - it had never occurred to me that you wouldn't feel confident posting here unless invited! Please consider yourself officially invited to comment on any of my threads!
Hugs gratefully accepted and returned :hug:

 

[ladee]

I don't think, for me, it is not about feeling confident. What goes thru my mind is how we can just wear someone out when we are on a roller coaster..so it was more about consideration for the supporter of hearing from someone with PTSD trying to share possibilities of why he/she may be acting out.
Just figure sometimes y'all are so exhausted hearing from one more person with PTSD could send you over the edge. I am joking here but there is truth to that statement also.
I personally don't see how or why you do what you do.
I know I can go from A to Z in a single day...and having someone to support that just...well...can't wrap my mind around it.
So yes...if you mention my name in your post I will know to read it...no offense intended..some days I don't remember my own name...lol
Thank you for being receptive to hearing what goes on with us. I can only use my own experience and won't speak for others but will be glad to share.
Hugs.

 

[Deleted member 38137]

As a supporter, I greatly enjoy hearing from sufferers and wish I could hear from them more.

...[/QUOTE]

You hear from one everyday. You just want to punch him in the eyeball sometimes. Lol.

From what I'm reading on here, and what I experience in my "other" home, you can set your watch by a PTSD sufferer. Periods of isolation that are preceded by nitpicking. Unexplained outbursts. Episodes of obsession. Stories of combat that are verbalized in a half ass joking manner. Acting like an asshole and then periods of regret.

Do I sound about right?

I think we take it to heart too much. He drives me nuts still, but I get it better now. If you knew someone was HAMMERED and talking crap, you'd be like YOU'RE DRUNK and give that person a drunk pass.

PTSD sufferers need a different kind of pass. An IGNORE THEM, READ A BOOK kind of pass. Stand your ground. Say what you wanna say and then ignore him til he starts acting right.

My Vet is non violent so I think I probably have it easier than some. Resting bitch face works. Try it. :)

 

[Sighs]

Resting bitch face would escalate my vet exponentially. When he is lashing out he needs to be treated like a small child sobbing his heart out. That sounds easy but can be really really hard when he's smashing things and telling me I'm a c*nt. Sigh!