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Dissociation - Acceptance Of Diagnosis

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Thanks SC...​

Can anyone else tell me what their initial experience was like with EMDR. As I stated earlier my T stated that we may use it down the line, but not until my level of depression is more stabilized, and she feels more confident that I will tell her when I am not ok (I have a tendancy to say that I'm fine, when in fact I'm not). At first I was disappointed because I just want to feel like I am actually 'doing something' to get through my PTSD. I understand her being cautious, as I have tried to take my life before, though it was a few years back. She told me that when we do start EMDR that she'd want me to not be alone afterwords, perhaps staying with a friend for the night.... and to stay the hell away from my family for atleast a few days. She wants to make sure that someone is with me. Will it be that bad afterwords? She made it sound kind of scary, but at the same time, I just can't keep going on living the way I am. I have nightmares and flashbacks everyday. I somehow manage to work, but come home and just 'check out.' I'm totally exhausted and my days are filled with this feeling of 'nothingness.' I feel so damn empty, numb, like I'm already dead... I just want to make progress.... to see some light at the end of the tunnel. I want to 'want' to wake up in the morning instead of dreading it. Anyway, I'm rambling on... any additional insight into what to expect in the very beginning of EMDR would be helpful. Thanks.​
 
I pretty much talk about myself constantly here but I was kind of struck by this post so eh, you can feel free to ignore.

I was diagnosed with DDNOS which is basically a fancy way of saying "Very subtle DID". Of the DID people I have talked to it seems more controlled, more subtle, more switching at will, which is what I do. I am not really convinced that the dramatic sort of DID really exists, you know? That dramatic, completely unaware, complete fugue state, "United States of Tara" stuff. I don't think it happens, and of the people I have talked to they are very much aware of it. I don't have DID but I have been told I have something "like" it. I dissociate a lot, which I have always known. I lose time a lot, I lapse time a lot. I've been told it looks more like I am in a daze rather than going all insane and Sybil-y. I have even driven and done complicated tasks that I didn't recall. Scarily once I woke up in my car, I didn't know where I was going or where I was, I had no memory of getting in the car, etc. It was pretty frightening.

I switch between modes of "function" rather than personalities, at will, and each mode is an enlarged personification of a specific or useful attribute. Compartmentalization isn't really the main part of it, though I think there are some memories I don't have due to going extended periods of time in another mode, I mostly have all of my memories. For me it was more for the abilities I gained as a result, or the things I could endure as a result. There are good as well as bad, useful/non-useful for me. For example a useful one is emotionless and a non useful one would be regressed. Most people can't tell the difference unless they spend extended (as in years) amounts of time with me. I usually can't tell the difference either. Sometimes I can look back at my writing and point out all the switches, they mostly just look like changes in mood.

I was just diagnosed with this but I have known about it since I was a kid, I just didn't realize there was a name for it. It wasn't necessary voluntary for me (I remember as a child having the desire to "change" into something otherworldly or different and I remember voluntarily "ignoring" parts of my own mind and molding my own actions and personality traits, but the choice to do that wasn't really thought-out - I mean I was four and five and six, it was more reactionary) but neither is it something I absolutely cannot help. I reflect the situations around me usually, if I notice it I can stop it, etc. It definitely doesn't mean you are crazy. It doesn't mean you are hiding parts of yourself. It just means that you need to gain a bit more awareness of how you react to the situations around you, what you do with yourself, how you respond, what you think, are those thoughts different, etc.

For me I can identify some parts easier than others, for instance the emotionless part, because I will have more of a capacity to think things which have no empathy component. That is probably the easiest one, so obviously when I think things like that I can stop and kind of you know, recognize that is not a whole identity, or I wouldn't want to act based on just a perception or a persona or whichever. And obviously realize that I feel threatened at that point, which is usually the precursor to doing that. I think if you look at yourself and your behavior you will find you know a lot more about this than you expect you do, it's just that it sounds so "insane" as you say because it's not really, you know, the label is so intense, you think it couldn't possibly apply to you, but of course labels are just labels. Usually the label and the reality are very different.

This is actually the first time I have really talked about this in a lot of detail well more detail, a bit, just because I am pretty much going through the same process you are now. It sucks to be dealing with something so "intense", that it feels like you yourself are imagined or fractured in some way because it just doesn't line up correctly, but with everything I guess there is a spectrum. For me I find it kind of a private deal, like I really find it uncomfortable to talk about any "parts" you know as that, feels more personal to me, like my whole mind rejects the idea that people "know", not really because I am scared of being crazy (shit I am psychotic I know I'm nuts) but more my individual insaneparts don't like being put in the spotlight.

But I have met some people who are very comfortable with it and they seem to be able to have perfectly productive lives, just with a little added strange to the mix. I think there is something called integration therapy used to help treat it which means becoming more aware of what happens, of who you are as a person, of how your thinking or moods change, of what situations that happens, why it developed, in response to what situations, etc. I'm not sure what the end result is but it seems to be successful to some people.
 
thanks sea...

i can relate to much of what you have written here, especially when you describe switching between modes of functioning versus personalities. I intellectually know that I am one person. It's more like I feel like a different person depending on the situation I am in. I am TOTALLY different with friends than I am at work or with family. I definitely have experienced amnesia for things that have happened in the past, as well as things that happen daily... not because I have more than one personality but because I am so totally 'checked out' sometimes. I can sit for hours, almost like I'm catatonic, and not even know it.

I also feel I am split off from my feelings. Some parts of me carry different emotions or traits. The part of me that functions at work is assertive, bordering on aggressive, yet very productive. The part of me that hangs with my friends is caring, compassionate, but the most depressed. The part of me that deals with my family is very shutdown, or sometimes playing the role of the peace keeper.

I too seem to have all my memories... (atleast I think I do)... but then LOL, how would you know if you did or didn't? But you're right it is intense to feel this way. And the word you use, "fractured" is exactly how I feel. Thank you for taking the time to write me. Peace and Best Wishes! :)
 
Does this make sense? I feel like I teach my body different, "programs" like driving/eating/washing/atterberg limit tests/ playing video games/talking/friends/ etc and I let it go on its own deal while I, and maybe possibly others, just watch and coach/sometimes do specific things I don't feel comfortable doing, but otherwise just daydream, I notice my eyes always unfocus and hours will go by in instants. Given that I've been so tired and stressed lately I do this pretty much all day... well tbh I just switch from face to face for every situation until I'm alone and i've forgotten what happened that day. lol it's confusing, does this sound like what you guys are talking about?

I went to 22 months of residential treatment and they pinned me with all sorts of stuff, (ptsd, dysthemic, borderline personality traits, adhd, add(I know they are the same), bipolar,ODD and maybe a couple more i dont remember) but when I got out my outpatient therapist said it probably all stemmed from ptsd, and then, idk when because my sense of time is terrible, it feels like yesterday when i remember it, but he mentioned something about alter egos one day and I've been trying to figure it out since, but its hard because I kinda lie every time I start to dig in, and lose my train of thought a lot. But I always feel like I have to keep saying it, keep digging, its like there's someone screaming help and I know they're down there but I also know if anyone knows the real me they would hate me, so I run every time I wake up. or something I can;t remember now It does this every time, I get going and feel like I'm about to reach it, and then it dissappears and the pressure in my head just vanishes and I feel really really tired

edit: a long time ago I learned to not think about things because I would start panicing when I thought I was doing something wrong (all roads led to Dad's fists and feet when I was growing up)

also edit: I know I'm selfish and weird and etc. et.c before anyone thinks that :P very used to being told how selfish and spoiled I am
 
Thanks for this thread, it has been very helpful as I recently discovered or acknowledged two inner children or fragments or pieces and know they are very different from each other. I had a very hard time accepting this concept and "freaked out" at first thinking of Sybil etc. like alot of others seem to have done. I am slowly accepting them and trying to learn more about them as well as access the feelings that seem to be "tied up" with them. That's the really hard part.
 
Hi Addy and everyone,

I read this thread and totally understand what your concerns are. I have been seeing my T for a year and he said the same thing, possibly DID. I personally hate labels, but after some research on my own, and having black-outs in therapy , then suddenly "coming back" and having a different voice and wondering WTH I said what I said to my T, I do think he's correct. But he knows I don't like the label, so we are going with CPTSD. It doesn't change my treatment plan, which will also include EMDR ( in the next couple months), and we are now working thru stuff with the PTSD workbook, which is helpful. It is a long hard road, and many of my "parts" want to sabotage and cancel therapy. My T knows this and we work thru it. I am not a trusting person at all (Gee, PTSD maybe?) so getting to this point was a big step. Now I will even text him when I have a question, which is big for me, as I don't like to ask for help and bother him.

Any ways, sorry to ramble. I want you to know that you are not alone in feeling the way you do ( and I am so happy to say I can FEEL something, even fear!) so just know that it's a long road, you can do it, label or no label, and it sounds like you and your T have trust and good communication going.

Best,
Shadowbreath
 
Thanks Shadowbreath,

We're now leaning more toward a DDNOS diagnosis... but I guess time will tell. But you're right about labels... they can get in the way of progress in therapy if we allow them too. Right now, I just have to try to have the trust and confidence in my therapist that she knows whats best for me (type of treatment, pace, etc). I'm not saying trust is easy for me, but I've got know other choice right now. I trust her more than any other therapist I've ever had... so I've got to hold on to that hope. Best of luck to you... and if you think of it let me know when you start your EMDR how your experience goes. My T wants to do this down the line when I'm a little more stable, but it kind of scares me. Anyway, it's late here... almost 1am. Time to call it a nite if my brain will shutdown.

Best Wishes!
 
Yes I believe dealing with the PTSD will help with the DID, DID is curable in most cases but co-morbid with PTSD it might always rear its ugly head if your PTSD is not being managed well.
I also have many symptoms of DID, but only associated with PTSD and anxiety. Once I handle the anxiety it goes away, as soon as I am in pain and anguish again, depersonalization, derealization and dissociations will come back.
 
Hi Addy, I went to my current tdoc with the same concerns, I was so upset. I had brought in pages of printed information regarding Dissociation all that it encompassed. My major concerned was DID, simply because what I read about it made me feel even more helpless. I already knew from reading the information that I was subject to "losing time", I just didn't know what I was doing when it happened and what it meant. Like Jimmie_joe and many others here I came in with a major list of Dxs but I was less concerned with those. I needed to know why I didn't feel like I wasn't me anymore and where the hell I went when I went away. Also why I wasn't getting better after having once had a life.

I can truly relate to Sea. My tdoc has thus far calmed me WAY down, helped me touch ground several times and certainly given great hope. At the same let me know it is a lot of work and will take time, I have severely Depersonalized and isolated myself for years now while having been given wrong Dx after wrong Dx, so it goes but I'm on the right track now and thankfully not alone. Like you have I have a Trauma Specialist and feel I'm in the right hands.

peace and healing,
Rain
 
I switch between modes of "function" rather than personalities, at will, and each mode is an enlarged personification of a specific or useful attribute.

I've had a fuzzy identity issue, probably since very early. Thanks, sea, the way you explain this makes sense. And yes, there is some stuff called Integration therapy - have seen it, and just started trying it, in my tapping course.
 
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