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Sufferer I'm 64y.o. And Finally Addressing My Ptsd Thru Emdr.

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Marymickaela

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I'm so glad to have found this forum as I need support to deal with my PTSD and the EMDR I’m starting to deal with it.

I’m 64yo and live a quiet life in northern Illinois with my husband of 43 years. We’re both retired, but I keep myself busy quilting, photographing my 6 grandchildren, working as an ESL tutor at our local college and taking classes. We have 3 grown daughters, ages 40, 37 and 29 and I have a good relationship with all 3 of them.

I grew up with an extremely abusive father and had to be a mother to my mother. I remember as a teen I had started dating. We’d be sitting on the back porch and my date would go to put his arm around me and I would throw up my arm, as if to ward off a blow. It was embarrassing. At 19 I filed assault and battery charges again my dad after one particular beating. I was so proud of myself for standing up to him. I thought I had broken the cycle of abuse, married a nice guy who’s never touched me. However, as my new therapist points out he has difficulty showing me any affection, but he doesn’t give me a hard time about going to therapy.

I think I’ve been the abusive one in our relationship with my husband saying once “that only venom comes out of your mouth” and I always hated it when my mom would say “you’re just like your father”. Raising my 3 daughters I had difficulty showing affection, esp. during their teen years. I’ve been a very angry person most of my life, but covered it up and most people think I’m really nice.

In 2003, due to multiple stressors from work and family I had a nervous breakdown, took a major drug overdose and was hospitalized and dx’d Bipolar. I have a really hard time accepting this dx. I was in a deep suicidal depression for several years and have been in traditional therapy since 2004.

In 2005 during an acupuncture treatment to help me sleep I experienced a repressed memory of being gang raped around age 6 or 7. It was terrifying and I was at a loss of what to do with this memory. Every time I relaxed, such as taking a bath, the memory would startle me, my heart pounding in terror. The memory finally subsided until about 2 years ago when a trial involving some college boys digitally raping a girl was shown on TV. I thought OMG, that’s what happened to me, however, I never thought of it as being raped. I recently asked my brother if he remembered an incident when he was around age19 and my father was choking him. My mom was pounding on my dad's back and we were both screaming at my dad that he was "killing him" as my brother's face had turned dark blue and he couldn't breathe. When my dad stopped, my brother later came into the kitchen and told my mom and me that if my dad ever touched him again he'd kill him. My brother said he had no recollection of this ever happening. That floored me that he couldn't remember something so awful.

I have many diagnoses: major depression, bipolar disorder, severe anxiety, ADHD, OCPD, and finally during a psychological evaluation in 2012, PTSD. During that evaluation I didn’t tell the doctor about the repressed rape memory, but was still dx’d PTSD. At the moment I’m stable, but on way too many meds with my goal to decrease or get off many of them. I started having dental and eye problems this year and the doctor asked me if I was under a lot of stress. I didn’t think I was.

It was only after this trial I did research and learned about EMDR therapy for trauma. I found a therapist in 2012 for EMDR but we just weren’t a good fit so for the last 2 years I was back to traditional therapy seeing my therapist once a month for check-ins. I finally found a trauma specialist the end of this April who treats with EMDR. We’ve spent the last two months with her getting to know me. I like her a lot and feel we’re a really good fit. We’ve now developed a list of “Targets” that we’re going to work on and found my “safe place” to use to help keep me grounded, as I tend to dissociate when talking about traumatic memories. I have trouble feeling any emotion.

This last week I had two acupuncture treatments with a licensed auctioneer for a painful shoulder that’s been going on 6 weeks. I asked her about the rape memory and after listening to the details of my memory she is sure it did happen as does my new trauma specialist and two prior therapists. My psychiatrist says the only way I’ll really ever know for sure is maybe hypnosis, but do I really want to know?

My therapist says we’re going to finally start EMDR this week at my next session. I have a full page of “Targets” and she wants me to rate them from 1 to 7 with 7 being the most traumatic and to pick one. I don’t know what to pick.

So again, I’m thrilled to have found this sight and look forward to getting and giving support.

Marymickaela
 
Welcome to the forum!

I'm not saying you don't have all of those diagnosis', but were they all just added on one by one by subsequent docs? A lot of symptoms overlap between disorders. And, with PTSD, misdiagnosis (especially bipolar) is quite common. It may help you to get an independent evaluation with a different doctor in order to sort out what is really going on. (In my experience, far too many docs just tack on a new diagnosis without a true and full evaluation....so people end up with a laundry list of diagnosis that may not be entirely accurate.)
 
Welcome to the forum!

I'm not saying you don't have all of those diagnosis', but were they all just...
The acupuncturist I'm seeing and new therapist both question the bipolar dx. I asked my current psychiatrist last year if he were meeting me for the 1st time would he think I was Bipolar and he said "no". He was basing it on the psychiatrist I was seeing before him who was in the same practice. The depression part I have no trouble accepting, but he said you only need 1 manic episode to be dx. Bipolar. I have thought about getting a new evaluation as when I had the psychological eval in 2011 or 2012 the doctor said he didn't think I was bipolar. However, they are seeing me on meds to keep me stable. It will be interesting to see as this EMDR therapy progresses if I can get my doctor to dismiss that dx. However, it's almost impossible to get it taken off your records. My youngest d was dx'd bipolar in her teens and has been stable for several years on no meds, but the doctor won't take the dx off her chart.
 
Ditto the diagnosis stuff...so much overlap because of the dysregulation to the nervous system. Not surprisingly there are many bipolar diagnosis in a 12-step group I attend, and I naturally assume much of it is trauma-related. And many of us used alcohol or drugs to regulate.
The depression part I have no trouble accepting, but he said you only need 1 manic episode to be dx. Bipolar.
? Then I have bipolar, no doubt. But I'll stick with CPTSD. I relate to depression, but definitely have "up" moments...not so much in between, though it's gotten better through therapy and working on the regulation stuff. Meds have not worked so well for me.

Good work on seeking help. A lot of anger with this sort of childhood is not uncommon at all. My mom expressed it outwardly, which was frightening. I direct anger inwardly, toward myself, which causes all kinds of other problems. I relate to having a hard time showing affection or being warm. I sense a pretty thick bubble around myself and have to remind myself to smile at work and try to step just a tiny bit beyond that. That alone is very exhausting work sometimes.

I hope the EMDR is helpful (I've never gone that route so don't have much to offer there). Hope the forum is helpful for you too. Welcome!
 
There have been times when I can see having some sort of mania in the past. It was like my mind couldn't focus on any one thing and skipped all over the place, jumping from topic and topic to topic, talking a hundred miles a minute. In 2003 I impulsively started a photography business and started buying expensive equipment to turn my living room into my studio. I knew it was going to be brilliant. For example I bought studio lights, returned them, bought different ones, returned them. Backdrops, returned them, bought different ones, returned them before I found what I thought was right. My husband was beside himself trying to reason with me. I wouldn't listen. I'm extremely impulsive. I started this probably in July and had my nervous breakdown in November.

Two years ago I purchased 7 different cameras, returning each one before finally finding one I liked. When I get animated I remember shopping with my youngest daughter (now 29) and I saw this really expensive Halloween outfit I wanted to buy for my granddaughter. She had to physically remove me from the store explaining to me it was too expensive and my gd didn't need it. As we walked away, I kept trying to return and she had to keep redirecting me in the other direction. When I had my full time job I remember skipping down the halls at work. I was 50yo. At one time I had probably 4 quilts in progress at the same time. I was so obsessed I lay in bed thinking that I couldn't wait to get up and start working on them. I couldn't monitor myself.

I could give you lots more examples, but you get the picture. Is it Bipolar? or ADHD which was diagnosed officially at a Center that only treats ADHD. I also have a dx. of "Obsessive Compulsive Personality Disorder" which was diagnosed after taking classes at our college and working on the quilts. I wasn't able to shut my brain off or put limits on the time I spent working on projects/classes. In 2001 I spent 3 months working non-stop making 17 cheerleading books for my daughter's squad. All while working full-time. I probably spent over $1,000 on these books. The coach said she'd never seen anything like them.

I really don't know.
 
In 2003 I impulsively started a photography business and started buying expensive equipment to turn my living room into my studio. I knew it was going to be brilliant. For example I bought studio lights, returned them, bought different ones, returned them.

I do this sort of thing all the time. I get spurts of energy, plus I'm always looking for that "cure" or thing I can distract myself with or make myself feel worthy through. I'm not saying this is how it is for you, but for me I chalk it up to my lack of sense of self, inability to center, and that dysregulated energy. I've wasted a lot of money. But I've also started some good projects along the way. Impulsivity isn't uncommon to complex trauma either. I've also spent thousands of dollars on books...hundred easily on books I haven't actually read. I don't have OCD but I have had obsessive-compulsive type behaviors with these interests that pop up. It's actually gotten a little better and more organized in the past couple years. I think a little before spending or telling myself a new venture will totally change my life.

I've also over-worked and over-done everything. For me it's that energy, running on fumes feeling good, and also distraction. As soon as I had to slow down (injuries, sickness, burnout) I felt really empty...keep wanting to avoid the emptiness (also a symptom of the trauma I've experienced).

Anyway, I can't tell you if you have bipolar. Maybe you do. No matter what, if the symptoms are really troublesome or out of control, it matters that you find stuff that helps, whether you can get certainty on the diagnosis soon or not...ideas like mindfulness type things, any ideas from your therapist, meds if helpful.
 
Meds definitely have helped, but I'm on way too many and hate it. My prior therapist of two years and current psychiatrist have spent years trying to help me come to terms with the bipolar dx. and make me see how important my meds are. Now I'm starting this new journey/experience so don't know what to think. They have seen me when I've been unstable, whereas, my new therapist hasn't. During my last "what they say was a manic episode" I was trying to take a Spanish "at home" final. I couldn't focus, would sit down, jump up, sit down try to read but couldn't see the words on the page. This went on constantly for at least 3 days. My psychiatrist finally put me on Lithium and I started getting better. However, I had a horrible reaction to the Lithium and gained 15lbs in just a couple months. She left the practice and I started seeing my current psychiatrist. He took one look at the tremors I had and immediately stated "this is unacceptable" and took me off of the Lithium and switched me to a different med. I'm still with him and I know he wants to get my meds reduced, but since he believes I'm bipolar he's hesitant to take me off some. I also have a terrible sleep disorder. We've tried every sleep med on the market. I've had 3 sleep studies, even going up to Mayo. I currently have an order for another sleep study, but my husband says "what's the point since you don't sleep?"
 
Hopefully you can stick with the new doctor a while. I'm all for treating symptoms. But hopefully some of it gets easier through time in therapy work, whether actual bipolar or not...its all nervous system dysregulation. Good luck with the sleep study...don't give up!
 
I am so much better than say 10 years ago. I had a great CBT therapist for 7 years, but decided I really wanted to try EMDR, found a therapist who treated with EMDR, but we weren't a good fit so switched back to another great CBT therapist. However I felt like she was more a friend and I was going in once a month to touch base and I always talked about why I couldn't lose weight. I just happened to come across this new therapist in April. She's a trauma therapist who treats with EMDR. I was having dental and eye problems and told they were related to stress, which is why I wanted to give EMDR a try. Like I said I really like her and feel she's taken time to really get my history and getting to know me before starting the actual EMDR work. But this week we are starting and I need to choose a Target. I'm excited, but also anxious. I feel I've dealt with my life trauma more in the last two months then in over 10 years of previous therapy.

I've been talking about doing EMDR work with a friend and she sent me the following email this morning:

"Lots to think about during your EMDR therapy. I am like you, all of this will probably lead you back to the bad stuff from your home situations with your dad mainly. I know there was some good stuff that was mixed in there somewhere. I guess bringing things back that was sad will not do you any good. I think the best thing is to Not Dwell on the negative. Take all the positive, fun things that made you smile, made you laugh, made your heart tug...those love tugs are the ones to dwell on. You can't change the past, with all of its blemishes, and hurts...grab those things that you loved and obsess on those. That has to be better and healthier... shove the hurt into a trash can and close it."

This is why I'm glad I found this site as I need to have the support of others who understand how childhood trauma has impacted our lives.

 
Your history sounds a lot like mine in quite a few ways. Abusive father that broke my shoulder bones when I was 2 years old and other abuse to me and my brothers. I have also been diagnosed with bipolar at one point and was on meds for it for 8 years. I have fibromyalgia and Hep C thanks to US Army. Wife just left me a few months ago while I spent time in a psych ward, found no psychiatric issues. Except being there for three weeks and wife giving me 44th anniversary present "when you come home I won't be there" fired up my PTSD to full strength. The psych ward tried to kill me three different ways (not on purpose but dead is dead). While I was there some very old very bad nightmares came back full power. I haven't had them since I was a child. I also had what I am certain are repressed memories come to light.

On this particular area of memories it is very important to realize that they may be false memories. This is called "confabulation" where your brain is trying to recall something, usually something very negative but it isn't able to retrieve all the details. It then creates details that seem like the very real thing. When this happens you will not be able to tell it is false and will swear that is very real even when it is illogical or impossible. When somebody tries to explain that to you you will try to brush them off because you are certain it really happened.

These false memories are most common for childhood memories and can cause all sorts of problems. It is possible for them to be strong enough and seemingly important enough to cause major personality changes.

On my bipolar I finally found out about something just by accident that fully explained what was the real problem. My bipolar was very short cycle, often just one day deep down with the next day far better. What it turned out to be was dairy products. For many years I had been "overdosing" on dairy products, especially cream and ice cream and cheese. It turns out that any dairy product that still contains casein also contains Casomorphin. That is an analogue to morphine and is about ten time stronger than morphine. There is much less of it so you don't get stoned (much) on it and if you eat dairy every day you have a very high tolerance for it.

I did not know this and I quit dairy because it also contains antiplatelet peptides and I have low platelets. Within two days I was undergoing full blown morphine withdrawal including a very nasty side effect called Hyperacusis. However, after all that settled down it became obvious I was no longer experiencing so called "bipolar". This all happened last year and I have not had a depressive episode since. I am missing a wife that took off because she has some problems of her own and I now have full up PTSD but I no longer have "bipolar".

I definitely recommend reducing meds to the lowest amount possible. I am on three right now but my dose levels are tiny, from 1/4 to 1/10 of usual with the exception of codeine for the fibro. The codeine also helps when coming off the casomorphin.
 
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