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Relationship It’s Nothing Personal, But It’s About Me ..... Too!

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Nicolette

Supporter Admin
Before I start, if you suffer from PTSD and read this, please respect that this is based on my experience and not a personal attack on you, your illness or your symptoms.

From what I understand, I haven’t had to deal with many ‘significant’ PTSD events however it is forever present in my life, around any corner. There are now the pre-programmed thoughts and dread when something occurs, hoping, wishing that it doesn’t bring up an onset of PTSD symptoms.

A lot of my actions are pre-thought through as while a surprise is one thing, spontaneity can be dangerous if it is ‘bad timing’ which a lot is simply dependent on what level the PTSD symptoms are at. There is also the constant ‘fear’ of being disappointed – having to go somewhere on your own or not being able to do a planned activity, or not being able to be social; all based on no more that the level of symptoms on any given day. Something, it seems, that can be managed to a point but never controlled.

What I realized the other day, again no disrespect to a sufferer, however, while I totally appreciate it is not personal and it is an illness, disorder, disease (call it what you may) it does affect me and does become about me too. If I am in a relationship with a PTSD sufferer then I suffer too...... not on purpose, but I do as a direct result.

When I first heard about PTSD I thought ok, Post (after), Traumatic (trauma), Stress (get that and suffer from it), Disorder (ok, something that makes things a bit out of whack). No major deal... wow was I wrong! I now have a totally different view and while I wouldn’t change a thing, I would think about it twice if I ever ended up single and a new relationship had a PTSD sign on the entry. I think it is a little different if you are with someone and something occurs which results in PTSD.... but none the less daunting. While I have never been exposed to someone who has unmanaged PTSD, I have to admit it scares the beegeebers out of me based on seeing someone with managed PTSD have a significant ‘event’. To me, by my own definition I would be more likely to categorize PTSD as a serious illness and it even falls under the definition of disease.

A sufferer suffers and that is horrible, I wish I could do anything to make that sort of pain go away, but at the same time it pulls me down with it. I have found that, while I try not to, sometimes I have to walk on eggshells (and it hurts), I sometimes are with someone yet oh so alone, I am in a marriage but sometimes I am the only part of the partnership which is functioning and I feel I can never safely put my head down to rest thinking all will be ok... as you never know what tomorrow will bring.

PTSD affects me, it causes me stress, it impedes on my ability to cope at work as if it is not through lack of sleep worrying, it is worrying about what I might come home to after knowing what I left before going to work, or sometimes it’s as simple as sitting at work while other spouses call up and you know you are not going to get a call today; you will be lucky if your sufferer will even be functioning when you get home.

I have been single as an adult, in fact a single mother, and I get the work load that has on you but, for me, living with someone with PTSD is much harder than raring a child on your own. It’s not having to do the work which drains me but the emotional roller coaster that you join.

For years now I have given out advice and I know it is good and correct however, put the shoe on the other foot, and be in the midst of it emotionally involved and all that seems to slip through your fingers. You get they need to isolate but it hurts being alone; actually it hurts more being alone in a relationship than being single. It’s a known fact that the best you can do is take care of yourself and keep yourself busy but tell that to your mind which is fully of worry and concern.

I realize I am an amazingly capable person to get through this and maintain love and respect for my sufferer and to not take it personally. While I bet my life on it that anyone suffering PTSD would love for it to have a cure, I also bet that no sufferer intentionally sets out to hurt those they love. The cruel fact of life is that anyone struggling will most often lash out at those closest to them first. That’s when it is about me and I hurt too...... maybe not on the same level but just as with someone with PTSD, I did not ask to suffer like this, I did nothing wrong to deserve this, yes I am sure my pain is less in comparison but it is still my pain which hurts me and while in the midst of it, you have to hang on to all the good you know.
 
I catch myself telling my husband, "I know we've just spent all this time going over how dissociated I am but could we please just talk more about me??" :oops:

--Not to take away from the seriousness of what you wrote, I had to make a side comment....

I think it's very insightful for me to read what Supporters/Carers experience, it matters very much. Though painful at times, I find it very important to discuss with my husband. Thank you.

Rain
 
All I can think of saying just now Nicolette is, You got it. This is exactly how it is. It is about you too, you will suffer when he suffers, worrying is part and parcel of being a carer/supporter.

The being at work and not knowing what is going on at home, when they are in a bad way, can be terrifying.

For the last few days hubby has been in a mess with his back again, which brought on some of his PTSD symptoms, mainly through fear that he had done some serious damage to it again.

The isolating and stubbornness of wanting to deal with himself, but not being able to, made it harder for me to cope with. He is now though, realizing and excepting he does need help.

The feelings of loneliness and not knowing what each day will bring is more stressful than being a single parent any day.

Been there done that too.

th_BearyHugs.gif
 
Thanks Amethist

I think we will have to share a virtual hug on this one......

Hug Squeeze Heart.gif HugsTeddies.gif

(Click on the images - they move)
 
Thank you Nicolette, I agree. Sometimes I think the most important choice and gift a supporter can give - only if they want and choose to, of course- is to remain 'with' a sufferer, whether that be in mind, body, heart or spirit; to forgive, love and have the strength to do that- 'accompany them', if you will. Sometimes that's all that can be given (but that means everything).
[-And to be able to 'decipher' a lot-(like this) -lol
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]
 
Yes, and I read these and wish I knew what it is which makes sufferers to react variously to Carers. I do not lash out, you see- the guilt/shame of doing so quite seriously causes suicidal impulses ( I know this from longgg experience-even the impulse to do so can set off this mechanism ). Mine has to worry as to whether I'll hurt me in some knee jerk domino effect - unfair and wearing to him. I don't know if he considers himself a Carer- I do know this shreds him. He's here anyway, which does baffle me some days.

Believe me, I can't imagine any sufferers reading that would take it as an attack on us. An attack would contain genuine bile, you know? Resentful, ill-thought out diatribes by way of some breathless rant which would make zero sense in the end. This is just what you feel- an awful lot of love, but gosh it can hurt frequently-how could it not, no matter how well versed one is in the workings of this intrusive, swine of a disorder called PTSD.

I can only wear one hat at a time, but if I could wear 20 I'd take them all off to my husband and all of you lot.

With respect,

Anni
 
My husband often tells me that, he does not know how I do it, how I keep going day in day out. Then saying he could not do what I do.

My honest answer is, " I am used to it all now". I don't like it by any means, but we were together before PTSD hit, this is what makes it easier for me to keep going. Knowing him before and seeing what is left of the man he was.

From the initial accident, the minor broken bones, the alcohol abuse, detox from that, yelling at professional to take notice that all was not right, to now. almost 4 years on and just finished 2 years of therapy.

Still together, still battling through issues, still moving forward. TOGETHER.

All this said, I really don't think it makes much difference whether they have it when you meet or it invades years down the line. It still effects you too, in a bigger way than anyone can ever explain to you.

A good saying I have when things are tough, and he asks me if I love him is, " Of course I love you, but today I don't like you". He usualy replies, "I don't like me either today, but tomorrow I will".

Amethist
 
Nicolette, thanks for this post. I've been reading Supporters viewpoints here and it's really helping me to get things in perspective. I appreciate you sharing how you (and countless others I'm sure) feel; it reinforces a personal goal I've made to start sharing with my husband, not only considering his feelings and the stress/hurt he feels when I isolate, but actually taking some action to change my behavior in this regard. Painful to know how PTSD affects the ones we love the most, the ones who are always there for us. We need to hear it though, or at least I do. Anyway, thanks again.
 
Oh, Nicolette... this has really hit home, esp. this week. And on top of the extra responsibility and uncertainty, one can feel frustratingly underqualified as a "carer," esp. in terms of patience. If I was a sufferer, I wouldn't be my first choice for a carer, and knowing that is even more frustrating. My husband and I have had this dialog a few times: "I wish you could be in my shoes for just one day." - "Fine, if you be in mine." The truth is, neither of us wants the other's part either. We've all been given our own bite of the PTSD turd sandwich.

Anyway, a ((big hug)) for you, too!
 
I am new to this. I Have a husband with ptsd. We have been married for 3 years, and I read up on this horrible thing before we were married. I do remember the outbursts of name calling and put downs before we were married, and I never realized it was all due to this "thing". Now after 3 years, I am feeling so low and depressed . I am called names that I cannot repeat, I have been threatened, and been kept from leaving the house, accused of having affairs, called stupid and selfish. I feel so low now, I am unable to talk to him. He throws everything back in my face, or gets mad, I mean really angry if I try to express how I am feeling, because it seems to always end up being about him and how I dont understand . I go to work, he is retired, and put on a happy face, mostly because I am happy to be there. I come home, never any dinners made, so I usually eat in my car on the way home. I go to workout, as it is my outlet, I really dont have any friends, as we live in a rural area, and they are all his friends.( I moved from my home into his) I guess I just need someone to talk to . How much can a spouse (me) take ? and how do we not call it abuse? I am losing my self.
 
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