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Making Peace With Concept Of Having A Mental Illness

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MT Johnny

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It's LONG, LONG, LONG. Sorry.

That is something I am trying to do - and actually making some progress compared to where I was a few years back.

At the time I was (mis)-diagnosed as bipolar, I had a very sudden and extreme reaction, "Oh my God, it's a death sentence" - and I thought it was all over for me. In my dark thoughts, I figured it would mean loss of career, loss of home and family, loss of assets, and eventually homelessness and death on the streets in some slum, or locked up in jail or prison or a psychiatric facility. And actually, all of this was not so much for medical reasons, but out of fear of stigma, and out of self-stigma, and also out of some stuff regarding my father and his mother, both of whom had MI issues and I guess I did NOT want to be like him in any way, especially that way, because he is anathema to me, my tormentor and someone I do not mourn.

It felt very unfair and very unjust and was profoundly dehumanizing to me. I felt like nothing medical, it felt like some form of being swept up in the criminal justice system, like punishment for crimes that I didn't commit, like I was being forever removed from the world I knew. It felt hopeless. My self-beliefs before diagnosis were that I was a bad person, in the sense that I wasn't able to achieve the perfection demanded by my abuser father, but that I was a good person morally, that I contributed at least something to the world, and that I could make a difference in other people's lives. After the diagnosis day, I felt like the lowest of the low, a terrible person, I told myself I deserved my fate and that I was the scum of the earth.

I felt that my "crime" which got me there was not worthy of the punishment I received. My crime was expressing frequent suicidal thoughts, but not intent or planning. And honestly, after the fact, I was told by more than one MH professional that the sequence of events by the initial psychiatrist was inappropriate for the situation, perhaps unethical in some ways, and caused me much unnecessary trauma.

I found the initial psychiatrist to be not only incompetent - she couldn't recognize PTSD and differential from bipolar, AND, she made a 5 minute diagnosis based on a 1 page intake questionaire before I ever even said more than 3 sentences to her, AND, frankly, she was one of the meanest, rudest, least-professional individuals I have ever met, after dealing with her for about 3 - 3 1/2 months. When I realized what she was, I told her off and told her I never wanted her to ever contac me again - which she did, stupid quack, with the infamous line "I sense you are a little upset" - I guess she would have sensed that Hiroshima was a little explosion akin to a firecracker had she been there.

I also found the day hospital program degrading and frightening and extremely sad and tragic seeing the others there. Yet I found humanity and dignity in the other patients, and rooted for them in a way I denied myself. They were merely people in a bad state seeking help, nothing wrong with that at all, I was the scum of the earth being punished on Blue Cross's dime.

I so railed against the bipolar diagnosis. It terrified me medically. It terrified my socially. It just plain terrified me. It was the worst period in my life, and that is saying a lot because I've had a lot of downs in my life, my childhood was a living Hell, and I've suffered a lot from the aftermath of that. This was worse.

And I wondered and still do if that is legitimate, despite how it makes me feel. At times, I think, yeah, could be bipolar. I know I have raging PTSD, with all of the typical crap that goes with that. I could be bipolar as well, although I have never had anything resembling mania. And, what they viewed as possible hypomania at a few times in my life I just viewed as productive, up-mood periods when I was actually happy - as if that were some kind of strike against me. Like Kelly Clarkson says:

If you go, they'll say you're following
If you don't, then you're too good for them
If you smile, you must be ignorant
If you don't, what's your problem?
If you're down, so ungrateful
And if you're happy, why so selfish?
And, you can't win
No, you can't win, no

...
If you're thin, poor little walking disease
If you're not, they're all screaming obese
If you're straight, why aren't you married yet?
If you're gay, why aren't you waving a flag?
If it's wrong, you're knowing it
If it's right, you'll always miss
You can't win, no
You can't win, no


So, my world has been F'ed up ever since. Internally, emotionally, I have despaired that this worst-case scenario would come true. Externally, I've fought it, fought through the pain and the self-abuse and the fear, but not always in good ways, and in some ways that have caused me a lot of harm and prolonged my misery.

But I know now NONE of that is real. Some has come to pass in some ways, but not at all in ways that I can't get over, if only I can heal and accept and make peace with it.

I've done little things and big things. Little things like never getting off on the floor where my therapists office is if anyone else is in the elevator. Hiding my prescriptions for psychotropic drugs so no one finds them. More extreme things - I took out a PO Box initially so anything coming the mail in any way related to my diagnosis and Partial Hospital Program would NOT come to my house where others might see it. I got a second cell phone a la Walter White from Breaking Bad for the same reason. I went on a really crazy spending spree under the theory that it didn't matter because I was a walking dead man anyway, and I might as well blow it as have it taken from me. Some things worked, some didn't. My T justifies it by saying it was all about survival, but the reality is, sometimes you gotta call an a** and a** and that was what I was. Played musical psychiatrists and psychologists for a while until I found ones I liked, and to be 100% honest, who told me what I wanted to hear, although I do believe it conforms to my reality, not like they are just lying to me to appease me.

How messed up was all of that? Seriously, HOW MESSED UP WAS ALL OF THAT? Like, totally. It was a mix of incredible self-stigma, fear, paranoia and/or hypervigilence, self-pity, the crash of my self-esteem, stress, lack of sleep,

So, I need to drop all of that, as it is destroying me on a 24/7 basis. Honestly, I told my T yesterday that I would like to get to a point that I not only achieve radical acceptance, defined as admitting the reality but not liking it, but where I'm OK with it, like Eminem says, "I'm friends with the monster under my bed" (Eminem and Rihanna, 'Monster', from the Marshall Mathers LPII).

But I vacilate between the two extremes - the dark world of the "I'm a dead man walking" and the real world of "nothing that bad has actually come of this". It has been a tremendous internal fight. External factors, the chatter about mental illness in the US, have not helped, especially the aftermath of the Sandy Hook tragedy, which came just a few months after my world crumbled - and that especially filled me with dread, as some of the chatter thrown about and the actions taken amounted to a knee-jerk, pitchfork and torches attack on the mentally ill, a kind of "round them all up and throw away the keys" attitude from certain sectors of society. Especially the NRA, which proposed a national registry of anyone with any mental health issues -as if we were sex offenders or felons.

When the calmer side of myself emerges, I think now, "WHY SHOULD I?" Why should I be ashamed or embarrased or live in constant fear that the men in white coats are coming to take me away forever, or that my family will throw me out on the streets where I will die in the gutter on some frigid January night, or be murdered by some other street person? Because none of that corresponds in any way with my objective reality. No one has stigmatized me, although relatively few people know, but some of the really key people in my life do. No one has been mean to me. No one has mocked or ridiculed or shamed me for picking up a prescription of Prozac at the Costco Pharmacy. No one has done much of anthing horrible to me. Yes, there has been some family upset, yes, my finances are a mess, yes, my career has suffered because my concentration is poor, my motivation is often lacking, depression takes over, but I still have my job, and my employer has been nothing but kind, gracious, and understanding. Yet, I still try to survive, despite the suicidal thoughts and the grief and the anger, and my heart is in the right place, I am a good guy, I do good for others, I just need to get my head there, and then keep it there to the maximum extent possible.

I want to live, to thrive actually, and I need to make peace with myself, with whatever I am, and realize that I'm OK, whether I'm bipolar or just PTSD'ing or whatever.

I'm trying to make peace with the monster under my bed - make that in my own head.
 
There's a lot here I want to comment on... I need to stop, take a breath, and figure it out. No dx of bi-polar but the same reaction to the PTSD/depression/et al.
Making friends with the monster under my bed...
heh.. pretty much...
more later...
 
My mom was diagnosed as bipolar and in her last years we all wondered if that was really the case or if it was just easiest diagnosis. She was depressed and she had PTSD from her husband my evil stepfather, but bipolar never fit. Seems very good that you are examining everything under a microscopic view @MT Johnny.
 
It has been confusing medically. Throwing aside all of the emotional crap, the paranoia, the crazy extreme fears of that diagnosis, I still wonder and would like definitive answers.

I have absolutely no doubt about the PTSD/CPTSD diagnosis, I fit on all the categories in the DSM IV diagnostic criteria, I can go down the list and see myself in almost all of the points of each axis.

It's the BP II diagnosis that makes me wonder, especially when I fall into theses deep depressions as I have lately. Major depressions, yup, gone through those, but they coincided with major life stressors like terminal illness of loved ones, a big job change out of necessity, etc.
the hypomania thing though- it's like the Kelly Clarkson lyrics, you can't win, because if you say "oh, I have these periods of depression that generally last for months, but then I have periods in my life when external events are less stressful, my life is stabile, and I accomplish a lot" they called it hyomania - it's like, is that a symptom or is that just being functional?

Real honest here, the two things that make me wonder are the depressions and the fact I am terrible with money, I way overspend at times, like the past 2 1/2 years, in really stupid ways, but it always seems "necessary" to pursue a goal - this time the goal of saving myself. I have had period too when I didn't spend and saved a lot. Hate to say it, but the thing about it is I am a spoiled trust fund baby and always relied on the family money for things big and small so my own income and savings was always just for discretionary spending and "fun".

So yeah, I wonder if those make me fit on the bipolar spectrum - otoh, Lamictal did squat for me, I can take SSRI's and they don't turn me manic at all, so ??????
 
Diagnosis is where art and science collide in psychology, it takes the right touch to know what questions to delve deeper into before stamping a label on the file. I've run into plenty of unskilled practitioners so I'm not surprised by the many times I've seen a misdiagnosis thread on this forum. It was much easier for me to get into effective and helpful treatment once I found a p-doc capable enough to see the difference between the symptom and the causes- several aspects of ptsd are disorders all by themselves, and treating just one of the parts wasn't effective at all for me.

Would it help to consider diagnoses as shorthand? Maybe it's a kick in the ego or it could feel like a curse, but it's just a quicker way of expressing a list of possible symptoms you may be dealing with. It'll be okay, I know it stings but the shame/guilt makes sense- that's a ptsd thing, many of us around here will relate to that.
 
This has been a long slow process for me over the last year and a half and I have by no means 'arrived'
All I comment on is the PTSD and all the raging symptoms there in.

I was horrified when I learned about it and at the same time, when the dx was given to me I remember thinking 'oh, thank god. I know what it is' . I really thought that I was crazy. I still do... often. I remember my therapist looking at me funny when I was initally very accepting. He didn't seem to understand, yes, I had taken some on line tests to try to figure it out on my own which was part of why I had wound up in his office but the bigger problem at hand was that I thought I had a real, serious, brain disorder that I would never overcome. heh.. well... I may still never overcome it but...

I thought I would have to be on drugs to manage it. It was, in a way, reassuring to hear that I was acting and feeling the way I was because of something that had happened to me instead of something I had inherited. It doesn't matter at the end of the day. I see that now. A traumatised brain- a mentally ill brain.. to the outside observer, it's all the same. It's semantics to them.

I know I will wind up living alone for the rest of my life. I'm kinda ok with that. No one is going to want to try to take on my crazy and have a relationship. I can barely bring myself to trust my therapist- let alone someone who would want to be intimate with me.

I OFTEN ask, well.. cry "WHAT IS THE MATTER WITH ME" at my therapist. I labled myself as crazy. He's told me over and over again, very softly, very gently: 'you're traumatized, Desi. There's nothing wrong with you'

Well, shit. That made me cry again. But the truth is so much different. There IS something wrong with me. The thing is that it's not what people think. Hell, even when you TELL them that you have PTSD (and may I say that telling people is not always the best idea) the reactions range from "I can see that" to "you don't act like you have PTSD" (I'm not triggered right now) to "...." and running away.

I've been selective about who I tell.

I told my mentor and she ran. We'd had a falling out shortly before the last time I saw her. I understand now why I was acting the way I was. I apologised for my behaviour and explained what I was going through. It didn't matter. I lost one of the best people in my life because of my inability to control my behaviour back then.

I told my best friend. He reacted with "this is no surprise" and has been- especially recently- my biggest advocate and supporter. Even on the far side of the country.

For me this has been a process of coping with what others think of me. I know I've been through something traumatic enough to have warranted PTSD. It was for an extended time. I have problems with it because it was inflicted by my ex husband. I feel a great deal of culpability in it. He blamed me in the trial for the restraining order.

*sigh* I am a great lover of research. Never understood why but I am. Give me a topic and let me go wild. I'll know everything there is to know about it before I am done. I have read more scholarly articles about PTSD and the effects on the brain than I have ever thought possible. I understand that this is, in some ways a brain injury. Ok. I've never seen anyone call it that, no. But really. Parts of the brain don't do what they should? They have shrunk because of exposure to trauma? Sounds like an injury to me. When a muscle quits functioning properly and atrophies that a sure sign of an injury.

I often find myself in the midst of a breakdown (anxiety attack)or a depressive episode or at the end of a flashback thinking... what the hell? Why are you acting like that Desi? You have always been the badass who could stand up to anyone and do ANYTHING. Now, you fall apart if you smell a certain cologn?

I talk often about "bullying my way through life" and with a couple of really terrible exceptions, I think I have up until recently. And I still sometimes can. If I can get my feet under me I can fight it out, fight it off, fight through whatever is bothering me. Give my depression and anxiety the middle finger and say I don't give a f*ck about that shit. I'm just going to do what I want to do.
I just haven't been able to do that of late. I've missed a day or two here and there.. but a week? I missed a week of work because of PTSD... or rather because I was suicidal... which is the same thing.

That qualifies as a pervasive illness I believe.

Some days you get the bear and some days the bear gets you. Some days PTSD just f*cks my world over. It f*cked my world over last night again. I tried to read a book and stumbled across a trigger and it ended the night. I fell into a fit of raging, crying anxiety and spent the night fighting the urge to try to rip my skin off. I wound up under the covers beside the bed because I couldn't convince myself that I was worthy of having a bed. *sigh*

Right now I'm fighting through an anxiety of being outside on foot that I can't overcome. The bear has caught up to me and we're duking it out and some days I have the upper hand and some days I don't

RIGHT NOW I am trying to convince myself to go get on my bike and do a hard ride up a canyon. I NEED to do that. Not so much for the work out but for me. For mental health. For the endorphins. For the breath to fight the bear. Because really, the bear does have me right now and not the other way around.

The fight's not over just... I'm losing right now.
I am still angry I have this. I still don't always accept it. But the days that I do accept that I have it, very quietly? I can usualy get some peace.
 
Yes, from other forums I have learned just how common misdiagnosis is with PTSD. It's also true about bad doctors, it seems from talking with people many of them have had nightmare stories. Seriously. a five minute diagnosis without even talking to me, then fast forward to X, Y, Z treatment plan?

I was very very caught up in the label. Therapists/psychologists keep telling me the label doesn't matter, just treat the feelings. But it did matter to me for the wrong reasons, fear of having BP and what that meant, as well as for the right reason, getting the right drugs and therapies.

It's actually progress that I can even consider the possibility of BP, since I ran so hard and fast from. Ironic, I was almost giddy when I was first confirmed with the PTSD diagnosis - that lasted until I figured out PTSD was still a neighborhood in Hell, just a different one across town from BiPolar Acres.
 
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