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Multiple Disorders
- Post starter Lionheart
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I can understand that there is something invasive about taking pills. I feel that way too. I don't want anything to take over my body or alter my mind. With me, it is definitely a control issue. I don't want any one to be able to control me ever again. If I take a medicine but it is addictive, then I have given a whole set of people who have control over me by threatening to withold the med, insurance companies, pharmacists, my Dr. Real or just perceived. I don't want to be manipulated.
I can understand that there is something invasive about taking pills. I feel that way too. I don't want anything to take over my body or alter my mind. With me, it is definitely a control issue. I don't want any one to be able to control me ever again. If I take a medicine but it is addictive, then I have given a whole set of people who have control over me by threatening to withold the med, insurance companies, pharmacists, my Dr. Real or just perceived. I don't want to be manipulated.
The Albatross
VIP Member
Ah but our own neural or biochemistry manipulates us. It is though a tough decision.
intothelight
Sponsor
It never ceases to amaze me just how physically destructive stress is to a body. So many of us here suffer multiple disorders, especially autoimmune.
One thing that I have noticed with PTSD sufferers is the lack of self-care that so many of us engage in. There is that feeling of "not being worth it" that seems to be a huge roadblock in making ourselves a priority.
I loved the Spoon Theory, and I believe that self-care is critical as when our bodies are suffering our minds suffer more. I hope the medical community comes up to speed someday and understands that you have to treat a whole person. It really isn't just in your head, it is everywhere.
It took me getting diagnosed with cancer to finally wake up and put my mental and physical health first. I think it is also important that we know ourselves well and our own reactions. I have a huge pain tolerance and I need to keep that in mind and not ignore the little pains. They may be little to me, but could be something much bigger. It is important to keep up with physicals and routine tests.
One thing that I have noticed with PTSD sufferers is the lack of self-care that so many of us engage in. There is that feeling of "not being worth it" that seems to be a huge roadblock in making ourselves a priority.
I loved the Spoon Theory, and I believe that self-care is critical as when our bodies are suffering our minds suffer more. I hope the medical community comes up to speed someday and understands that you have to treat a whole person. It really isn't just in your head, it is everywhere.
It took me getting diagnosed with cancer to finally wake up and put my mental and physical health first. I think it is also important that we know ourselves well and our own reactions. I have a huge pain tolerance and I need to keep that in mind and not ignore the little pains. They may be little to me, but could be something much bigger. It is important to keep up with physicals and routine tests.
That is a major thing. The Native Americans medicine men treat the mind, body and spirit all at the same time. I like that philosophy. Cancer got my attention as well. But it took a very wise therapist to teach me to look inside and get back into the body 100% once in a while so I can see what is going on. One month the medical people can run a test that says I'm almost dead, A couple of months later, when I've done a holistic healing, or had a blessing they run another test and come back and "oh. That other test must have been wrong." LOL.
I'm currently reading a book that describes it from the PTSD point of view, and talks about how PTSD can cause all sorts of medical issues. The book is, "Invisible Heroes: Survivors of Trauma and How They Heal" by Belleruth Naparstek. A very interesting book. A person here recommended it. I'm embarrassed to say right this second I forget her name.
Osteopath doctors, I believe that is what they are called, look at the whole body, mind, possibly spirit(last part I don't know for sure). I think a lot of the newer doctors are beginning to look at it that way compared to when I was younger. My doctors tend to look at the whole picture, though not necessarily the spirit because I do not bring that up and, I guess, I would feel uncomfortable if they did. But that is just me. All of my doctors have suggested looking at alternative methods, or if they haven't expressed that they have told me that it was okay with them if I did. I have a great set of doctors.
I still believe, though stress can make things worse or bring out conditions, you have to be predisposed to them. You have to already have that weakness. I know the more stressed I get the worse my autonomic system becomes.
I too have a hard time taking care of myself. I'll push myself, knowing that it could cause an adverse reaction, especially where my kids are concerned. I've put things off. I've had doctors say to me, why didn't you tell me it was that bad. I think, I did. I just don't see the need to be 'loud' about it, but I guess you have to. Goodness knows I will be that with the rest of my family if the doctor's aren't, in my opinion, paying attention.
My 80 something grandma use to say it best, listen to your body. She said it took her until late in age to finally do that. She was always reminding me to do that. I guess she knew she had to. :)
I still believe, though stress can make things worse or bring out conditions, you have to be predisposed to them. You have to already have that weakness. I know the more stressed I get the worse my autonomic system becomes.
I too have a hard time taking care of myself. I'll push myself, knowing that it could cause an adverse reaction, especially where my kids are concerned. I've put things off. I've had doctors say to me, why didn't you tell me it was that bad. I think, I did. I just don't see the need to be 'loud' about it, but I guess you have to. Goodness knows I will be that with the rest of my family if the doctor's aren't, in my opinion, paying attention.
My 80 something grandma use to say it best, listen to your body. She said it took her until late in age to finally do that. She was always reminding me to do that. I guess she knew she had to. :)
I never talk to my doctor's about my spiritual side. I don't believe it's any of their business. LOL. I just thought it was interesting from the native American people to do that. I just remembered, that when I was young, I did try telling something to one of my mental health doctors, and they put down that am crazy, since I talk to dead people. I learned quickly not to talk about my prayers or anything spiritual to outsiders. I don't even really talk about it to people of my own faith very often.
wyrd_dragon
Not Active
Wow! The Albatross, Safenow, and everyone who talked about pain scales (both mental and physical) thanks so much. I had no idea this would be so helpful and cause so much positive discussion. It's interesting to see how many of us have experienced the problem of under-reporting pain or not having a framework in which to understand how it relates to 'normative' scales.
I was thinking that a scale for mental pain would be so very very useful as well, but haven't yet searched to see if there is one already out there. I think, if there isn't, I might try to work on one for myself as well. The 1-100 one that has been mentioned looks interesting and I may try it. Even with the Comparative Pain Scale, a 10 as 'the worst pain you can imagine' is going to be much different for me than for another trauma survivor, or someone who has not suffered trauma.
It's interesting to see how many people here spend a lot of time 'out of body' because of mental and physical pain. I do a lot myself, just up and off a little, the more pain (of any type) the more 'out of myself' I become. I practice meditation and have found working hard on 'grounding' helps. It makes me have to deal with my body but is more healthy in the end, for me. So much time spent depersonalized means I find it hard to really 'feel' the good things. Like throwing the baby out with the bathwater, hey?
As intothelight mentioned, self care is a constant struggle for us all. Personally, I think this extends not only to showering and eating and daily maintenance, but to things like reporting pain (always understated) and learning to ground myself or reach out to others. This forum, and especially this thread, is helping me so much. So thanks to all of you, and I'm glad to have helped :)
I was thinking that a scale for mental pain would be so very very useful as well, but haven't yet searched to see if there is one already out there. I think, if there isn't, I might try to work on one for myself as well. The 1-100 one that has been mentioned looks interesting and I may try it. Even with the Comparative Pain Scale, a 10 as 'the worst pain you can imagine' is going to be much different for me than for another trauma survivor, or someone who has not suffered trauma.
It's interesting to see how many people here spend a lot of time 'out of body' because of mental and physical pain. I do a lot myself, just up and off a little, the more pain (of any type) the more 'out of myself' I become. I practice meditation and have found working hard on 'grounding' helps. It makes me have to deal with my body but is more healthy in the end, for me. So much time spent depersonalized means I find it hard to really 'feel' the good things. Like throwing the baby out with the bathwater, hey?
As intothelight mentioned, self care is a constant struggle for us all. Personally, I think this extends not only to showering and eating and daily maintenance, but to things like reporting pain (always understated) and learning to ground myself or reach out to others. This forum, and especially this thread, is helping me so much. So thanks to all of you, and I'm glad to have helped :)
wyrd_dragon
Not Active
safenow, I'm into a lot of spiritual practice as well, and can see auras, ghosts, etc etc (too much to list and I don't want to go off topic).
I've been lucky enough to find a pagan/spirituality friendly therapist who not only believes in what I perceive, but uses my spiritual practice to help in strategies for my mental health. She actually suggested I have my spiritual group help me create an empathic 'shield' to aid me in keeping my anxiety and depression at bay.
People like her are few and far between, unfortunately, but I hope the world is moving towards more acceptance of holistic medical practice and taking the mind/body/spirit connection into account. I suppose I just wanted to say you're not alone, and there are practitioners out there who won't just write you off as crazy :)
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