I’ve been recently been diagnosed with PTSD after 12 years at the wrong diagnosis. I’m finally at a point now where I can’t continue. My mind is a mental place. I lost my son when he was a baby 12 years ago and I’ve never really truly come to terms with it. I have constant flashbacks and memories of our time within the neonatal unit coming into my mind. I struggle deeply with trust I’m at a point in my life now where it is affecting every single aspect of it I no longer want socialise with friends. I know it’s having a knock on effect with my relationship. The negative thoughts I’m having of my relationship catastrophise every scenario I couldn’t tell you the last time I lived in the present moment, I don’t even think I know how to I live in a constant fight or flight mode and it is truly exhausting honestly I would love to wake up one day and be in the present moment It’s not overthink every single scenario it’s not overthink. One sentence someone says to me my mind is such a negative place is the truly really hope out there is there a way to fix my mind? I’m just in constant agony. I’ve lived with depression and anxiety for such a long time. I’m no longer on medication as I don’t want to continue on medication, I want to heal. I don’t wanna be in this cycle in my mind anymore. Is there any help out there any online zoom support group meetings has anybody got any ways that have helped them and how they’ve done it thank you.
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Sufferer New here and need help after 12 years of the wrong diagnosis.
- Post starter LC987
- Start date
arfie
Diamond Member
hello lc. welcome to the forum. sorry for what brings you here, but glad you are here.
hearing issues have excluded me from the zoom boom, so i am clueless on that score, but a support group genre i find myself wanting to recommend is grief support. i lost my adult son in a car accident nearly 6 years ago and it still hurts. i suspect it always will. grief support has also helped me grieve the parts of me that will never be because of childhood trauma.
but the most important tool i have used in my healing journey is, "small steps, big faith and lots of prayer. be gentle with yourself and patient with the process. share freely. share often.
welcome aboard.
hearing issues have excluded me from the zoom boom, so i am clueless on that score, but a support group genre i find myself wanting to recommend is grief support. i lost my adult son in a car accident nearly 6 years ago and it still hurts. i suspect it always will. grief support has also helped me grieve the parts of me that will never be because of childhood trauma.
but the most important tool i have used in my healing journey is, "small steps, big faith and lots of prayer. be gentle with yourself and patient with the process. share freely. share often.
welcome aboard.
Friday
Sponsor
Welcome to the community! 
THIS is the single most helpful thing I’ve ever come across; both from day 1 & a decade later >>> The ptsd cup explanation
There’s a lot more, of course, focused on this, that, or the other facet. Most of which is mastered & moved on / no longer necessary. The PTSD Cup, though, is like the art of how to live, again.
We spent the better part of 2 years in & out of the PICU & Medically Complex Kids Ward at one of the best children’s hospitals here in the States. And the next several years in gradually decreasing levels of care. It’s a whooooooole different world, living in the hospital with your kid fighting for their life.
It’s jarring enough going home, and suddenly losing all the support (the most basic things; like being able to sleep, because other people are awake & watching & the beeps heard through my dreams reassured me he was still breathing; or there being someone who makes omelette from 1-4am & a buffet all day long, so if you CAN eat? There’s food. And a dozen other things no one outside of hospital sees as a “thing” that neeeeeeeeds support (or just ain’t gonna happen!). To the complex social needs everyone has being met by people who actually talk to each other, about the good, the bad, the silly, the raising money for a tombstone, or the logistics of still having to pay the electric bill at “home” when you don’t actually live there, anymore, you just wash clothes & clean out the fridge & kick the stupid trash you forgot to take out last week. The bad days full of rage, or isolating, and no one taking it personally. Your closest friend’s bereavement. The first time your kid codes. A thousand, thousand things.).
Bad outcomes??? Are even worse. Apart from the fawking obvious as your heart & lives shatter, there were months and years where no one but “us” (other hospital parents) even showed up for our friends, who’d lost their babies. Or listened when they wanted space. People too afraid to say the wrong thing, or do the wrong thing, leave this… vacuum… meanwhile well intentioned idiots keep doing the worst possible things, and think it’s “good for you”., and try to force it. Sigh. People. The ones you want there vanish, and the ones you could throttle… give you a lot of practice in not throttling them.
I’m doing the insomnia thing at the moment, so my apologies if I’ve just landed in the throttle-category! Imma bit cross-eyed tired at the moment.
Again, welcome to the community. Sorry for what’s brought you here, but glad you found us.
THIS is the single most helpful thing I’ve ever come across; both from day 1 & a decade later >>> The ptsd cup explanation
There’s a lot more, of course, focused on this, that, or the other facet. Most of which is mastered & moved on / no longer necessary. The PTSD Cup, though, is like the art of how to live, again.
My PTSD came from much earlier, but my kid getting sick is part of what kicked open Pandora’s box, after I’d spent a decade durn near asymptomatic.
We spent the better part of 2 years in & out of the PICU & Medically Complex Kids Ward at one of the best children’s hospitals here in the States. And the next several years in gradually decreasing levels of care. It’s a whooooooole different world, living in the hospital with your kid fighting for their life.
It’s jarring enough going home, and suddenly losing all the support (the most basic things; like being able to sleep, because other people are awake & watching & the beeps heard through my dreams reassured me he was still breathing; or there being someone who makes omelette from 1-4am & a buffet all day long, so if you CAN eat? There’s food. And a dozen other things no one outside of hospital sees as a “thing” that neeeeeeeeds support (or just ain’t gonna happen!). To the complex social needs everyone has being met by people who actually talk to each other, about the good, the bad, the silly, the raising money for a tombstone, or the logistics of still having to pay the electric bill at “home” when you don’t actually live there, anymore, you just wash clothes & clean out the fridge & kick the stupid trash you forgot to take out last week. The bad days full of rage, or isolating, and no one taking it personally. Your closest friend’s bereavement. The first time your kid codes. A thousand, thousand things.).
Bad outcomes??? Are even worse. Apart from the fawking obvious as your heart & lives shatter, there were months and years where no one but “us” (other hospital parents) even showed up for our friends, who’d lost their babies. Or listened when they wanted space. People too afraid to say the wrong thing, or do the wrong thing, leave this… vacuum… meanwhile well intentioned idiots keep doing the worst possible things, and think it’s “good for you”., and try to force it. Sigh. People. The ones you want there vanish, and the ones you could throttle… give you a lot of practice in not throttling them.
I’m doing the insomnia thing at the moment, so my apologies if I’ve just landed in the throttle-category! Imma bit cross-eyed tired at the moment.
Again, welcome to the community. Sorry for what’s brought you here, but glad you found us.
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