Thank you Gizmo, Most days I feel like someone stuck their thumbs through my temples and into my brain. It's a very literal feeling that my brain doesn't function how it used to. You know when you ears go pop and you hearing sort of goes in side out, like your under water; it feels like that in my brain most of the time. I know how it used to be was with hyper-vigilance etc but this feels SO unfamiliar mentally and emotionally.
I'm definitely having mood swings; I cry really easily. I'm worried about my mental health, which despite having ptsd for over ten years I have never thought before because I knew which way was up.
I keep trying to find how I used to feel and what I used to know and have conviction in. I can't but I go over it because I can't figure out how it unravelled when I was so sure I was doing the right thing and working so hard at it.
I'm afraid that I've inadvertently turned into a ghost of a person, with no fight left in me and nothing gained from all that's gone before.
Still, I looked at cycling holidays in Holland the other day. It's been three years since I got CFS and I think I've balanced out enough to try. Holland is FLAT all over and doing about 30 miles a day for a few days is a pretty steady pace. I am a bit scared of getting back on a bike though. I stopped driving around the same time my body burned out. I couldn't co-ordinate myself and 'thumbs in the brain' thing meant negotiating traffic was scary. It really knocked my confidence. However, Holland is uber bike friendly; canals, country lanes, cycle paths everywhere. The routes I'm looking at aren't traffic heavy.
So I thought I might try getting my bike fixed up again. There's a free, city ran scheme to teach you how to service them.
You know the funny thing is that I blame myself more since all this stuff happened. When I had ptsd I never did.