Stem Cell Transplant ( Sct )

[Tinyflame]

Dear Deb, you ARE beautiful inside and out.

And when my sister's hair grew back after chemo etc, it was more beautiful than ever, it's like a baby's hair, never damaged. Gorgeous locks to come..

But most of all, your H didn't marry your hair Deb. He (and we) loves YOU.

((((((((((Super Big Hugs xoxoxoxoxox)))))))))) love and prayers for you, xoxoxox.

(PS, friend of mine ('with hair') was wearing a head scarf yesterday, very chique and gorgeous, looked like she just got in from Paris. :) ;) TRUE. :) )

 

[The Albatross]

Doing a good turn (donating your hair) and taking the initiative is courageous and a compassionate act Deb. You are making decisions for yourself and that's great.

I hope that your family settles down and straightens up... or that you tell them, "I'm not available to discuss this with you right now..." and shut off the phone.

 

[CraftyCath]

Ditto to all the above Deb. x

Don't stand for any bad behaviour from family, put them straight (in love of course).

Wishing you all them best for your procedure. You are in my thoughts and prayers and I hope you don't get too bad an effect from the chemo. Well done with the hair thing, I think you did the right thing and now someone else can benefit.

:hug: and :hug: to you. x

 

[intothelight]

Had a bit of a rough time with the implant of the catheter. I told everyone the sedative would not work and it is kind of one of those "sure" with a "I know better smile". Well, I was not at all sedated during the procedure and normally that is not a problem, but this time the "tent" went over my head.

Finally I got one of the nurses to put the "tent" back a bit and just talk to me. The surgeon is a little freaked out because I started to hyperventilate and my blood pressure went up. He was going to stop and see if they could get me under a general some general anesthesia, but I finally got someone to listen and understand that it wasn't the procedure, but the state of consciousness, having my face covered and not knowing what was going on.

Yes, when you touch me I jump!!! I know when you are inserting something in my jugular vein it is not good to jump, but "listen" to me!! That is the problem when you don't fit into the cookie cutter patient model. You have to retrain everyone each time there is a new procedure.

Glad I stuck to my guns and kept reiterating what I "needed" in order for them to achieve what they "wanted". I don't think anyone in that room would understand just how much self control it took to lay there awake and allow this procedure to be completed. It wasn't all that painful, but the whole situation of being strapped down, having your face covered and feeling this "thing' going under your skin was bad enough.

Today every muscle in my body is sore. Probably just from tension, but I did sleep for a good ten hours. The effects of the adrenaline exhaustion. So leaving here in a few minutes to have chemo hooked up to my new catheter. First round of the two rounds of nasty chemo this procedure requires. Well lets see who's tougher. Chemo or me.!

 

[CraftyCath]

Dearest Deb,

Well done for sticking to your guns! Medical staff can be so 'practical' at times. They just see the procedure and not the patient. I'm so glad you got them to listen as your needs far outway their wants. Well done. :tup:

I hope all your aches and pains settle down soon, good luck with your battle with the chemo, show it who's boss! And afterwards, when you are feeling a little better, do something nice for yourself - you deserve it.

:hug: and more :hug:. x

 

[JustBe]

(((Deb)))

You are one strong lady! I'm here, hoping you will have an easy day.

 

[Froggie]

Take it easy for a couple of days as this is still a sort of evasive but minor surgery. As for the chemo, it's not a battle against one another but a collaboration to get the "enemy" = cancer. Visualize the chemo as some sort of golden dogs that are going after the cancer to catch and eliminate it.

Things got easier for me when I stopped thinking that chemo was an enemy, but an allie - my T's wisdom work here.

I'm with you all the way and put your limits to others reactions, you've got enough to deal with your own that come from the cancer/PTSD combo. Many hugs to you ((((Deb))))

 

[The Albatross]

Very glad you had the presence of mind to be consistent with giving your needs a voice. Hope you're going to take it easy for a while.... sort of acclimate to what all has happened. You were on my mind a lot yesterday.

 

[Icon Nikon]

Sorry they would not listen because your end goal was the same as theirs, just you are an individual.

And cancer is no match for you Deb. If cancer wanted to win, it should have chosen a less daunting being!!!

Hands down, YOU win, no doubt in my mind!

Sleep whenever and as much as you can! We will watch over you!

:hug: HUGS :hug:,
Alex

 

[amethist]

Take it easy for a few days Deb, let it all flow through and feel it glow as a bright light heading in the right direction.

Sounds a bit corny I know, but it may help.

 

[Deleted member 12723]

(((Deb))) My heart goes out to you. You are very brave and couragous. Good for you for donating your hair. I think that was a beautiful thing to do.

You managed very well in getting the cathiter in. I am so proud of you for taking such good care of yourself. You are in my thoughts and prayers for the chemo. I hope you get to go home and have home health care. That would be better, but if not I imagine you will touch alot of peoples lives.

You are on special lady and you make a profound difference in the lives of those around you. I know you have done that for me. I really feel for you and what you are going through.

I hold you in my heart. Big hugs.

 

[intothelight]

Did mange the first round of chemo, but I haven't been able to keep anything down, not even water. I am non pump that is sending medication and fluids to my bladder and my kidneys to protect them from this chemo.

Headed back to the hospital in a few and I am going to request an IV and some stronger anti-nausea medication. Managed to add a few extra pounds before this started, but I tend to keep weight on as best I can. Constantly being sick isn't going to help.

Well of to more adventures!!!!