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Survey Question From A Sufferer.

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Mine cannot be managed with therapy: I tried everything. I have to believe whatever is working for you has been tried on me and did not work. I am sure I've helped some doctors buy some nice cars and boats though.

Xanax is the only thing that works some for me. I have been on this "temporary" drugs to some degree for over 20 years. It works for the day, but helps make me worse in the long run, plus I don't consider living sedated living, as sedatives prevent one from feeling joy as much as fear.

I can't relate to the "Enjoy the good times" remark. I don't have any.

I don't particularly find the "nothing works for me" style of thinking conducive to healing. If you buy into that, then you will never open your mind enough to let something work because you have already determined your fate.

You mention Xanax is the only thing that makes your fear subside but have you tried other types of meds like Paxil or other anxiety type meds? Do you see a psychiatrist? If not, perhaps you should.

It seems to me that you have determined what you need regardless of the opinion of medical doctors. You are qualified to know this? You know that by disconnecting the areas in your "memory" will in fact work and not disconnect the right side of your body? You know in the 60's lobotomies were supposed to "cure" mental illness too. I don't know if you have seen any of those repercussions.

I know this will sound course, however I don't think you are here to seek help or chat about how crapy it is to have PTSD, but instead push your ideology of the subject.

No, I wouldn't have a surgery that is approved by no one, never been attempted, and hasn't proven to have any effect or work. A doctors oath clearly states to do no harm.
 
Hello Rumors, if you put the effort in copying my text into the message it is that much easier for you to quote me accurately. "Mine [PTSD] cannot be managed with therapy: I TRIED everything" is not equal to "Nothing works for me". The first statement is a statement of objective fact about the past. Your paraphrase speaks of the present. I hope you aren't suggesting that stating a fact is not conducive to healing because facts are important to me.

About your remaining points I don't even know were to begin. Your comments seem to ignore not only information in the entire post you quoted from, but even the actual quoted passage: If I "tried everything" regarding therapies, then I did had an open mind about therapy. Your posted quote includes the information that I have been on Xanax for over 20 years so you know I have been affected that long, so if I tried all therapies over at least 20 years (actually 30). That is certainly "letting something work", so according to you something should have worked, so why didn't it?

I have tried many drugs, but only sedatives work. A psychiatrist gave me Xoloft which caused my worst flashback in 20 years because the idiots was too stupid to realize that drugs of this type do what LSD does to a greater extent: Increase serotonin levels. My brain recognized the increased serotonin, saw similarities between the Xoloft state and the LSD state set off a horrendous flashback, fear and additionally engrained avoidance behavior. Other psychiatrists misdiagnosed me for 12 years at which point other doctors told we I was chronic because the original doctors didn't address the trauma in a timely fashion. The worst of the lot did real damage. The best of them did not help me at all.

I have seen approximately 75 psychiatrist and psychologists in my life, many of which claimed to be trauma experts and I got nowhere except broke. Why in God's name would I do that again? Have you considered an obvious possibility? I may be damaged beyond repair. There are such people, just do a search for videos of WWI shell shocked soldiers. Many of those people never recovered and if transported to today would likely be just as untreatable.

Yes, I am more qualified to know about my condition! Full stop. Period. I explained at age 13 that my condition was a result of an LSD trip, the "experts" took 12 years to come to the same conclusion. I showed a psychiatrist at 15 (1978, before the creation of the diagnosis PTSD) that I had 8 of 10 criteria for shell shock and told her I had I kind of civilian shell shock-like condition, she disagreed, denied a trauma was involved which was again refuted by all doctor's 10 years later. My opinions, judgments, and understand of my condition has been proven superior to these saviors of your over and over. My last psychologist conceded to me that my approach to handling children after school shootings was superior to what he was trained to do and what they current do, so I even have a professional's opinion that I am qualified.

You are right about me not being here to whine about how crapy PTSD is. Why the hell would I want to do that and what constructive purpose does it serve. I am not into sympathy, just solutions.

You seem to be bringing baggage to this post from someplace that has nothing to do with this thread. Your comment is full of assumptions, misquotes, and indignation (over what I have no idea). I do not know what "ideology" you are talking about. If it is the ideology that that my condition could be cured surgically, I am not promoting a yet to exist procedure on anyone.
 
Ok, let's say you have tried everything. Can you name "everything"? I ask because every time I see someone state "I've tried everything, it doesn't work"----there is at least one therapy that I have tried that they haven't. So the question is "what have you tried?" I mean therapies and medications. Please share.
 
I just sighed because this is the first non-confrontational post I have answered in a while. Thanks.

CBT, hypnosis, EMDR, Exposure therapy, art therapy, relaxation therapy (with doctor proved tapes at home).

Librium, Valium, Xanax. imiprimine, paxil, xoloft, welbutrin, are the ones I can think of but there have been many more.
 
Ken Haley I do stress that you need to remain respectful here. Between this thread and your other, you are starting to make me think 'troublemaker'.

I have seen approximately 75 psychiatrist and psychologists in my life,

I have to admit I find this hard to believe. And to be very honest seeing so many (If that is true) makes me think that is not the professionals that are the issue but rather you outlook on your own treatment.
 
I have to admit I find this hard to believe.

Ayesha, I see you are a staff member so you can erase the post, ban me or leave the post.

If I were a moderator I sanction you this. You have every right to warn me if you think I am doing something wrong, but are you telling me that calling me a liar is being supportive of me, particularly from a staff member.
 
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Will he ever be back?

I guess I wonder because his last post to me I wanted to reply respectfully because I think Ken makes a very good point here. I think his comments suggest that he might be proof how drugs can damage a child's brain. Instead of seeking PTSD care, I wonder if he may need to seek neurological care instead.

That is one bad LSD trip! I have heard that there are people who never recovered from taking LSD. It is very sad he is that tortured from this. I guess my point is maybe he can't be cured therapeutically. Perhaps it is deeper now! I don't know, that's above my pay scale. Best wishes to him in his process.
 
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I tend to agree with rumors. I have a feeling he was going down the PTSD bunny trail when it wasn't about PTSD at all. He should have been following up with treatment for a bad trip. But, I see he is gone.
 
I have to say that when I hear someone say that 'they've tried everything and nothing works' that they haven't. When you have a condition like PTSD, mine was caused by my experiences in combat, it can be hard to determine exactly what is truly going on. It is still a difficult condition to accurately diagnosis as there are others that are similar with similar symptomologies.What occurred prior to the trauma, for instance can be a huge factor in ones predilection for and put one at greater risk for PTSD.

A fear response, to me, is about anxiety. A situation perhaps unfamiliar causes anxiety and as it grows it can become a fear. In combat you learn to control your flight response so that you can do your job. It doesn't mean that you aren't fearful it just means that you learn to function with it anyway. Please understand that these are just my opinions, that's all. What I've learned about my own condition through my own research, therapy and experience. It is different for everybody.

I will say this; therapy is hard. It is why the failure rate of people is high. We have to delve into and look at that which we just want to go away or that we've locked away. In order to succeed you have to have a number of things working for you. You have to have an overwhelming desire to want to get better and improve your condition. You have to have a good doctor, psychologist or psychiatrist trained and experienced in the area your condition lay. You need a plan and a way to learn how to change your thinking about both yourself and your condition. Many people yearn to go back to how they were 'before', can't be done. You have to remake yourself as the proverbial Phoenix rising from it's own ashes of it's former life. You have to desire a life for yourself and take steps to make it happen. It's not in anyway easy and I don't minimize that. It will probably been one of the most difficult things you can do in life.

More than a few years ago I was at the lowest point a person can be at, from my perspective. I was suicidal, depressed, angry, anxious, has no reason to go on. But I plodded along like a good Marine does. Luckily I gave the VA and therapy for PTSD a chance. I still have some miserable days but I do have some good ones too. I didn't have them before.

Sorry if I've rambled on here a bit but I hate to see people in such pain and feeling like there is no alternative except in Ken's mind to get surgery. This forum is different than the Combat PTSD one in that there are people from the very young to older and ones that have gotten PTSD in differing ways that I. It's a fight, for sure, but you just can't give it up. The people that come here have a chance since they've taken a step in the right direction. Ya'll just keep takin' them. I still have a lot to learn and look forward to that.

Hope ya'll have a great day

JarHed

P.S. Ken, I hope you find something that will help to improve your life. Best of Luck.
 
No. The odds aren't good. Though, there was probably a moment or two in my life that I would have considered it.
 
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