Fibro The fun filled world of fibro

[Freida]

Ya...mine is too much sugar and processed foods

 

[Mee]

Processed foods get me - but also - any kind of ‘over eating’ . As I have over eaten for a few years now it’s not surprising I am sore a lot.

still - there is also some ‘pain’ from missing out . I’ve thought about that a lot in relation to ritualised eating . Particularly at holidays like this time of year . I’m listening to my ‘whole’ need a bit more right now - emotional and physical - and it’s more self limiting than my emotional self, and less limiting than my self critical self that I confuse with physical self.

there are very few ‘bought treat ‘ foods I don’t feel I can go without ever again. I think the main thing is I’m really curious - I like trying new things. I cannot imagine not eating regional food in new places for example.


my wretched hormones have had my body so sore today I’m surprised other people cannot hear the pops and clicks and crepitus and what feels like- but obviously isn’t- ‘creaking ‘ of muscles. I think mainly it’s because I’ve been alone no one has

 

[Mee]

I got my saddle stool! It’s incredible. It doesn’t seem like the effort of standing up to cross the kitchen should be much but this makes the world of difference - it also makes my legs work different muscles . My left leg has not been able to lift for a few months now and since using the saddle stool for a week I am able to lift it sometimes myself! This was a great decision !

 

[Freida]

that is awesome!! So happy to hear it is working!

 

[mamachick]

Do others have extreme fatigue with this? I was diagnosed with CFIDS before fibromyalgia . Then I had many healthy years. My fatigue is overwhelming now.

 

[Freida]

Do others have extreme fatigue with this? I was diagnosed with CFIDS before fibromyalgia . Then I had many healthy years. My fatigue is overwhelming now.

Yep...its a constant battle. If i carefully monitor everything im doing i can keep it under control but the minute something goes south (eating,exercise, stress, blah blah) I'm camped on the couch

 

[Sideways]

Do others have extreme fatigue with this?

Absolutely. Especially during flare ups.

 

[Ecdysis]

So, I've had fibro for as long as I can recall... I assume it started in childhood/ as a teenager?

I guess I'm lucky that it's the kind of fibro that I can mostly just ignore/ dissociate away... Yes, it's a constant bother and painful and yes, I get beyond exhausted, but other than that I do feel like I can "ignore" it most of the time, even if I pay a price for that.

Anyway, I've got a new physical therapist who has tried this new technique and I'm wondering whether it's got to do with my fibro, or whether it's something else/ something additional?

So, the PT says that some of my muscles are "hypertonic" which is fancy medical speak for they are always in maximum tension. So, they're sort of like a steel wire. Anyway, the PT has this deep tissue massage technique which hurts like hell... Her touching those muscles is literally agony... I'm often close to tears from the pain of it... BUT... it helps...

The first time (when I didn't yet know it was helpful) I almost refused to stick with the treatment cos it was just so unbearably painful. But since then, because I've seen how much it helps, I grit my teeth and bear it.

I'm wondering whether this hyper-tonicity thing is related to the fibro or something separate?

The thing is, when the PT isn't doing this technique, these muscles feel "vaguely sore" but not in the intense way, like during the treatment. So I'd never have guessed that those muscles were in that state. They just felt permanently "sore".

Any ideas, fellow fibro people?

 

[Freida]

oh yes! massage is one of the best things I do and I can really, really tell when I've gotten off schedule. My gal told me that fibro starts with pain in the muscles, which makes you tense because you try to ignore it and go on with your life, which makes the muscles contract more, which hurts, which makes you more tense and so on. It's like the hamster wheel from hell

Getting massages won't fix it, but it does help me tremendously to keep it in check.

 

[whiteraven]

Do others have extreme fatigue with this?

I never used to, but I definitely have over the last several months. I think it's because I've been under an unusual amount of stress.