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...this Stinks.

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Jenfa

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It's like.. you can tell someone about it with words and the words go into the air and away from you but writing it in black and white is really playing on my fear of commitment.

As an infant, I would have multiple seizures and become very ill. This was puzzling to the pediatricians because it's not common for a baby of that age to become that sick, so I was basically a phenobarbital baby. I didn't talk much, and I hid from things. Having primary Raynaud's disease, light and sound always startled me but back then there was no way of telling that I had a compromised immune system. It makes sense in hindsight, but it left me very skittish.

The 'spare the rod' wasn't an issue in my house as a kid. We just beat the crap out of each other daily. I have so many floaters in my eyes from getting knocked clean out by my brother that wearing glasses is sort of futile. Hell, I can't even tell when my glasses are dirty. My parents also liked to get physical. My mother likes to slap, choke, pull hair, call names etc., but my father didn't really do all of that. He would let things brew and boil up to a point of explosion. If you were on the other end of that explosion, it didn't matter who you were. You were getting a man-beating. It was rare that this happened, but you never forget it. He was a commercial fisherman and also a drinker. When he went out, it was usually for about 2 weeks or longer, and when he came back he was pretty drunk from what I hear. I wouldn't know because my mother shipped me to my grandmother's house when that happened.

My grandpa taught me how to play cards. He was such a calm, gentle man that you couldn't help but feel at ease. However, my grandmother had earned herself the nickname "Little Hitler" from the town. That's where things went wrong. The sexual abuse started at 6, and lasted until 8. I told my mother and father, but they didn't believe me since it never happened with any of the other kids. I brought it up again in my teens when I entered therapy, and they flipped out and yelled at me. It wasn't until grandma was 95 and confessed to it herself that they believed me. By then, I was 32. She apologized, and I accepted. Nobody else has apologized for making me give her rides, make her coffee and pastries when she comes over, cater to her for the last 25 years. It's a hush-hush thing see, because she's 97 now (yes, she is still alive) and probably won't live long so just forget it type thing. She was a devout Catholic for all of those years as many second generation Sicilian woman were or are. For years as I became sick with my immune system, grandma was sort of convinced that I was possessed instead, because that makes more sense? Whatever. So, her and her sisters would put me on the table and pretty much drown me in a bowl of holy water and say a bunch of prayers in Italian that i didn't understand. I don't think it was until one day my mother went to drop me off there, and I threw up in the driveway from stress. She told me I could stay home that day, but I couldn't do that the next day because she had something to do.

I resented my mother so badly that we constantly fought. In fact, we fought viciously up until the day of my father's accident, and not a day more. When I was 32, my father fell into an empty pool that we were installing and broke his neck in 3 places. I found him in the foot of water, and ran to get a construction worker that was working on my apartment at the time to help me bring him out. We did cpr for a few minutes until I realized that air was not getting in. I knew that he as aspirated. I instructed the worker to push on his diaphram as firmly as he could. He did, and it all came out of his lungs. I had to scoop it out with my hands and take out his dentures so that it could come out. When I put his head to the side to allow it to spill to the side, I noticed that his neck was not right. I knew. We were both covered in blood and vomit when the emts came, his eyes were fixed and dilated. During that moment, I called my brother who is a doctor and lives in Nevada and told him to make travel arrangements. At that time, he was not responsive at all and was going into shock from hypothermia. He did regain consciousness a day later and was told what happened. He couldn't speak, or even breathe for himself and was told if he chose to live on the machines to blink once, and if not to blink twice. He blinked twice. I knew he wouldn't ever choose to live on machines beating his heart and breathing for him. I know I wouldn't want to. It was his decision which makes it easier somehow, I guess.

My Dad stopped drinking in the mid-eighties, got a regular job and became who we always knew he was. He was 66 when he died, which is the age my mother is at now. Even though my Dad stopped drinking, my mother sort of always treated him as if he were drinking. She was angry at him for leaving her with 3 kids alone so much, and I can empathize.. but I think some of that anger was guilt, too. Since his death, my mother and I have come together to get to know one another as adults. I didn't know her or understand her as a child or a teen, or even in my twenties for that matter. It took something like this to make us become trustworthy of one another. We are still working on it since we live together. I'm on permanent disability, and cannot afford to live on my own with my son, so instead the lower level of our family home was made into an apartment. It's very much a shared house in it's entirety, though. We have also come to an agreement that my grandma can't come over anymore, no matter how old she is. It's a start.

Wow. That's tiring. I could take a nap after thinking about all of that (coming from a person that can stay awake for 4-5 days in a row). I understand that people are animals. Animals aren't always smart, or right, or even healthy. All I can do now is accept that my fears were valid, and also accept that people can only do with what tools they are given. These women had no tools to give to me, so expecting some is not realistic. Outside sources have helped me gather enough to pass onto my son whom needs them sooo very badly. The cycle will not stop in the future.. it IS stopped as of yesterday as far as I'm concerned. I refuse to carry it anymore. My niece is 6 now.. I mean really. Mother stands in front of a moving train for child, it took a confession of a sociopath to tell an entire family of women not to send their lambs to the wolf.. but alas, do not give up. My niece is safe now. If I have to be the family jerk for that to happen, so be it. I'll tattoo it on my forehead with pride.

I haven't spoken to my brother in a few months. He is Mr. Right, and I am Ms. FU. at the moment. I do not trust him, however I like him a lot. He is funny and the life of the party, so easy to get along with.. until you really need him. Then he disappears for a few months and will not return any calls or texts, or even emails. He will occasionally "Like" something I post on Facebook which I do not understand why he bothers. He triggers me like no tomorrow. Like right now lol I can feel my blood pressure soaring writing about him. In his wedding speech, he called me "The other half of my soul, my sister Jen", but in the same week he called me a sociopath crappy mother who's kid doesn't love her, so I guess he is a bit confused. Perhaps more than I.

Okay, now I can take that nap. That's exhausting.
 
Yeah. I left out the 20 years that I traumatized myself basically. Nobody did a bigger number on me than I did. I'm pretty sure I'm glad that I can't remember it. Sometimes, people tell me stories of stuff I said or did when I was absolutely wasted. It was a long time ago, but I'm still shocked at some of the stuff. It took a long while to forgive myself for that..

At 18 my parents took me to a private psychopharmacologist. At $200 an hour, you would think he might care a tad, but alas, he was a complete waste of oxygen. He started me on so many meds at once that I was a walking circus. Pair up 3 or 4 antipsychotics with enough xanax to choke Richard Simmons... omg. I could barely walk. AAAaand because I was so smart on that cocktail, I mixed with it with alcoholic cocktails. Basically, I made the worst look good, and the good look on in horror. Ah the children of the night. What a mess they make.

People think that songwriters write the song, pass it to whomever and go about life. Some do, but some also get into that life if they also play an instrument. I wrote songs on the piano, but I played bass. This put me in the center of a really bad place for someone in trouble to be. But I did it anyway. Weighing in at an astonishing 87 lbs., I'm sure I rocked whatever I was doing, ... right? ....(LOL) I can laugh now because what I do remember was rather funny. Hmmm...

Not all of it. That toxic blend led me straight to dope. Xanax or not, there was dope. From 18 to 21, honestly.. it's so hard to remember anything at all about that. I know that I became a dancer, a hustler, sometimes a handyman. I did anything it took to get that money. I remember painting a house, up on a ladder on the 3rd floor. The next day, I was pulling weeds. The next day I was stripping. The next day, I was cleaning someone's car. After I got to the point where I thought I was doing poorly (lmfao) I called my mother and asked if I could come home. She promptly said yes. I paid the last week for my motel room/home-sweet-home and got my ass out of there.

I can't believe I'm walking around today to be honest. My life was begged, borrowed and stolen at that time. House to house to house, my friends came and gone, dying like the plague. My family life was completely disconnected from that world. I made sure that it wasn't in my own city, or near anyone that could try to stop me. It reminds me of my last and final detox, which was at home.

I begged my parents to help me detox at home. I had done it in facilities so many times, and it was terrible. I ended up meeting people in those programs that were as wild as I was. That wasn't going to work this time. I called my primary care physician, whom was also my family physician. Both parents, and sister's. I told him that I wanted to do this at home and had support to do so. He got me on some klonidine and had me come in a few times, but it worked. I was done. I was beyond done. What a crappy life that is. Mind you, this was all before I was diagnosed with anything concrete, at age 22.

After the physical symptoms of the detox were over, I became a recluse. I hated going to meetings because .. well, I don't even know where to start with that one. I got in trouble every time I walked out the front door. I just wasn't ready to do anything with anyone. I ended up inside for a while. I kind of still prefer to be in, and not social to this day for that very reason. I really don't trust myself in certain situations, and it's pretty dumb for me to put myself in them if I recognize that. In fact, I become paranoid of people sometimes because of the class acts I've come across in my travels. It might not be fair, but to me it's just safer that way. I know that nobody does things for nothing. Everybody has something they are aiming for in their actions and proposals. When someone tries to get to know me on an intimate level, I tend to shove my arm into their body and tear out their soul, in which I begin to beat the shit out of it. Call it a quirk.

I'm still trying to give people a chance. I didn't for a while and that was kind of sad. But, thing is.... I kept giving the same people the chance, when they already proven to me that they couldn't hold that responsibility. It's easy to see in hindsight, I guess. I learned how to give the right people the chance, and how to set a boundary with those that try to set me back. Being an adult with neurological and stress issues, I can choose my treatment by people now. I'm not isolated as a kid anymore with it. Sometimes people try to throw those few years in my face. That's when I tell them that until I can become a time traveler, then I'm not sorry anymore. I was saying sorry for the past, sorry for the way you feel, the way I feel, that I'm sick, that I took a nap, omg u farted I mean it was everything. How sorry can one person be?

Well, they can be zero sorry like I am now LOL. "I'm not sorry, but I like ya." - Sharon Needles
 
Thanks :) I'm still remembering things here and there which is weird. Just when you think you remember it all, as soon as you start writing it down whoa.. the floodgates open lol.
 
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I have to talk about my brother. If I don't, then I will probably implode in an embarrassing, seizure-like adult fit.

It's hard to explain why I will never be jealous of my brother's success. Most people think I should be, or that they would be. Truthfully, I think he is wasting his life away.

As kids, being the youngest, I took the bottom end of all of the beatings, blame, and frustration. However, over the years my brother and I became the very best of friends. We were waste byproducts of a forgotten era, or perhaps just an era we forgot. Who knows. What I do know is that as soon as he entered medical school, his personality changed into someone I didn't know. He became a chameleon. Whomever he is around, that is who he caters to. Every conviction, ideal, sense of self that was all gone. It was now just a game of sorts. I didn't pay much mind to that until he started to be that person to me. I'm still sort of shocked that he thought it would be perfectly acceptable to be a despicable person just because he had financial success to float on. His personality shifted into a very cold, hurtful person.

We got along most of the time, but during the fights things would get really bad. I would try to understand his new view of the world, the "screw the poor and those not on my current level" sort of attitude. As if he doesn't remember where he came from. People are insurance companies. They are paychecks. They have annoying problems. They aren't as smart as he is. They will be told what they want to hear as long as it benefits him. The worst part about it is that my family is encouraging this. They inflate his ego every opportunity they get (mother and sister). When my brother flies into town with his family, you can bet that my mother and sister spend about $500 in bullshit to impress him that they don't have. I mean wtf he is the millionaire, why are they trying to impress him with money and new furniture and total bullshit that doesn't mean anything? Are they trying to mirror his lifestyle when he is around to seek approval? Approval of what? We live in nice neighborhoods, it ain't like we're shacking up at the YMCA. I don't understand why they do this. They will financially hurt themselves and set themselves back for a man that has so much money, he's begging for ways to write it off. I don't understand what this means.

It's been a few months since we've spoken now. I'm not so sure I want to talk about this, or anything with him. I just don't see how I can look into his face and be just like every other asshole out there and said "Yes Sir, I agree with you Doc since you got the money roll. What? You want me to stick my nose a little farther in your ass? Sure omg I've been waitin'.. ". ..I just can't. I even tried once. It worked for a few months then I couldn't do it anymore. I mean, I know people suck and I am more than willing to let them suck but this is too much. How can someone be so kind and in tune with the world and people, and then like a switch be a complete narcissist? That doesn't even make sense. Narcissist can't turn that crap off and magically be super empathetic. It makes me wonder what was happening to him when he went away to school. I know there are things that were very difficult such as being in a different part of the world etc., but I'm starting to wonder if something else happened. He's obviously bipolar as I'm pretty sure all of us kids are, but this is different. Even in mania or rage, there's always empathy. Too much empathy, actually. But him... hmm. Head trauma, drug overdose that led to a stroke perhaps, underlying illnesses, ... could be anything. I know that he has a problem with either his heart and/or blood pressure. I don't think he knows it yet, but I just do. Perhaps the sleep apnea that he's had for years has taken a toll, paired with stress and exhaustion. So that's why I say I do not envy his life. He is working himself to death.

I see guilt on him, and I do not know why. They don't call me the human lie detector for nothing. It's insane that anyone would try to bullshit the bullshitter. Ain't that like the dishwasher telling the chef how to cook? Makes no sense. I used to be so good at lying that I could fabricate a lie instantly, and show excitement for future prospects of my said lie. Some people use the expression, "lie so much they believe themselves", but hell to the no. It was crap and I knew it. Thing is, when I ask someone a question that there is only two answers to, the truth and a lie, the spotlight becomes much brighter on their language and expression. If I were to outright lie to someone that asked me a question, I probably would make sure to plan an answer to the scenario in which I wanted to cover up. Most people don't think that far ahead if it's in the moment. They look at stuff, or themselves, or the ones who think their really good at it look right in your eyes. People don't stare you down naturally when answering a question lmao. They just can't look away because they might miss that tiny look in my eye that says, "I don't believe you.".

My lying was about drugs and money. Or better yet, money for drugs. Before and after that period in life, I had nothing to lie about. It's hard to believe anything anyone says when one minute they will be your guiding light and the next they're talking to you like your IQ shrunk 20 points because you're not being agreeable. Just because I don't agree with your sassy ass doesn't mean I'm stupid. It means I'm saying that you're stupid, see. That's how it works.

I firmly believe that no matter how upset two people get in an argument that some things are still sacred. I don't like attacking someone's character or personality, or just saying things just to cause upset. That's where my brother and I differ. He will say the most awful things in the heat of the moment that sometimes I think that's why people just tend to agree with him. Who wants to be ripped to shreds every time they don't say yes? He's a bully. Bullies say things like you're a sociopath, you're crazy etc. because they just don't have any valid argument to make. They know exactly what words like that will do to people like me. They know that I will stew with those words and dig my own grave until it gets taken back. It never got taken back, though. Sometimes I think someday it will, but that's not realistic.

It's hard to say goodbye sometimes. Walking on eggshells isn't what I thought having a brother would be like as an adult. When I look at his eyes, I can see the prediction of failure on my part for being productive in any way, shape or form as a parent, a person, a sister. What comes out of his mouth is different. He will be laughing and happy and playful with you, even if he believes that you are a waste of a human being. See, I can't even have a conversation with someone I disrespect to that degree. I have my values and ideals and if they are way beyond the line I would want in my life, I shut it down before things get ugly knaamean? Apparently not everyone does that. You learn something new every day.

Well, I don't have to jump in bed with the devil so-to-speak just to get along. I don't have money or anything like that, but I'm ok with that. As long as I can sleep at night with myself and my actions, knowing i did the best I could is all I can do. It just keeps feeling like I have to grieve for him, like he died. Watching that slow death, I said goodbye so many times that I don't even want to say it this time. I just want it to be over already. My therapist feels that it's something that will pass because she's being an idiot right now. It's not idiotic to think it would pass, but it's idiotic to think it should pass. I don't care if he's my brother or anyone else, enough is enough. You can't love someone in one breath, and cut them down in the next. I am not on board with that life goal. If he wants someone to talk about himself to, he can stand in the mirror and talk to his bff because that train left the station already.

I'm not supposed to be smoking right now, and I am. I feel like crap about it but thinking about that guy makes me bug out. It's like, I wish people would settle their differences in Thunderdome. Two men enter, one man leave. Or one Jen leave. If I had to MMA fight with chainsaws live or die style, he is who I would pick to go against. Firstly, because he's fat and old. Secondly, because I know his biggest weakness. Himself.

If this guy doesn't go get himself checked out, I do fear that he will drop from all of whatever he is doing. When he does, I really don't know what I will do. He's left me in times of need not just a few times, but every time. "But Jen, it's family!". Is it? Is that what family is supposed to be like? I don't think so. I don't hold grudges, but I do remember facts.
 
The house is awake. It sounds strange but I grew up in this house, and it goes through periods where it sleeps. This means that nothing weird happens in it. Weird things always happen in this house, and in the entire neighborhood. I don't think anyone on my street would debate that. It's something I never really felt comfortable telling anyone. Not so much because they might think I'm crazy, but because it would piss me off to not be believed.

I used to get very scared as a kid at all of this. I would wake up with names, dates, situations in dreams that were far beyond a 6 year old to pull from her imagination. I can sort of understand how a crazy person like my grandma could be led to think some of the things she did, being uneducated. But the one thing that always seemed consistent throughout the years in the house is that the prominent energy really liked to mess with the head. My brother and sister will testify to that. Whatever you were the most afraid of, that's what it became. But it wasn't always the same energy. That was just the one.

I wasn't even scared at first. I don't think I knew to be scared of it. Looking back through adult eyes oh my gosh.. Now there are horror movies about that stuff, and there I was giggling because I thought it was strangely funny. I seriously think I pissed it off by not being scared. I had dreams about him. Being nose to nose with him. Even though he was so scary, I felt so bad for him. I remember in the dream reaching out and patting his head, even though he looked like a Klingon or whatnot. Thing is, he didn't get mad at first when I did. He had to stew on it for a year or so. I'm convinced of that.

All of our dogs ran away for years. We lived in a relatively wooded area, but we couldn't keep an animal willingly on the land to save ourselves. Weird, to live in a place called Dogtown, and you can't keep a dog there. They would bark violently at nothing all day long inside the house. Just stare at the wall for hours. Not eating. Neighbors dogs would seem like they would purposely run in front of cars on the one road that runs through. If you drive the road at night, you swear you can see people standing on the side of the road as you pass, but then you look and they are gone. But the thing that was in my house, he could follow you around. Be in your car, walk with you, you name it. My heart is pounding so hard right now. Thing is, I still feel bad for him.

Even though he's been gone a while, I still think about him. When the house wakes up, I always think it will go back to the way it was, but it never does. I can deal with what's here with no problems whatsoever. I will always wonder though..
 
Yeah. I left out the 20 years that I traumatized myself basically. Nobody did a bigger number on me than I did. I'm pretty sure I'm glad that I can't remember it. Sometimes, people tell me stories of stuff I said or did when I was absolutely wasted. It was a long time ago, but I'm still shocked at some of the stuff. It took a long while to forgive myself for that..

I understand that completely - and it is a rough thing to forgive in yourself, that you were doing what you thought you needed to do at the time. Kudos to you for recognizing it.
 
Food is not my friend right now, and hasn't been for 3 months. I'm just realizing this as an issue again, but it's not the same eating issue as it used to be. I did experience anorexia for a long while, but it didn't begin with the want to be thin. It actually started because I replaced all meals with drugs. Once I got rid of the drugs, the eating part stayed the same and I had no idea how to stop it. That went on for a few years until it got a little dangerous. 82 pounds sounds very light, but when you are 4'10", people actually say, "Wow! You look great!", because the optical illusion of height is a factor. I became less "short" and more "proportioned". I blame television for that.

Once I started to pee blood, I said hey yeah let's not do that anymore. I forced myself to eat, and when forcing yourself to eat you tend to only eat what you like or crave. Can a person live on cheese, candy and coffee? Probably not. Having undiagnosed Raynaud's Disease, I went for sugar and caffeine to try to hype up my system and warm me up. False energy, in other words. It would last for an hour then back to so cold that I had to go to sleep. I would keep a thermometer by my bed just for shits and giggles to see what my true temp was when I woke up because I was freezing and shaking, but I was also soaked from head to toe in sweat.. so what was it, hot or cold? It was a steamy 94.8 degrees. So that was indeed a cold sweat lol. The extreme food cravings for super salty and super sweet make sense to me now. My body was trying to help itself, but my head had no idea how. After my son was born and the Fibromyalgia started, I convinced myself that it was hormonal or just stress. It wasn't until late one night when everyone was asleep that I figured out otherwise.

I love to draw. Well, doodle. If I see plain something, when I'm done with it, it will be a very decorated something, no doubt. Okay so it's about 3am and I'm just not tired, so I start doodling with the tv in the background. Nothing stimulating there. So I go to add some color to the picture and the harder I look at the thing, the more I can't seem to see the shade of the color I'm using. It was so strange. I could see the contrast, but not the hue of the color itself. It was a bright red, too. In a second, my vision whited out and my heart was beating so hard and loud that I couldn't hear anything but my pulse in my ears. It was throbbing behind my eardrums and eyeballs and I started to sweat really bad. I thought I was having a heart attack, so I found my way off of the chair onto the floor, and began crawling with my eyes closed up the stairs to go find someone. I knew I couldn't see, so I counted the stairs on the way up on all fours until I got up all of the flights. I made it into my mother's bedroom and started to say her name to wake her up. Here's how that went.

"Ma... Ma wake up."

".........zzzzzzzzzzzzz..........."

"Ma!,.... Maaaaaaa....."

"Jen what you want."

"Ma I can't see wake up."

".....Jen go back to bed."

"Ma!"

"..........zzzzzzzzzzzzzzzz............"


So... I turned around and crawled my ass right out and into the kitchen thinking maybe I could get a phone or something but it was way up on the counter and I couldn't see anything. I could hear now though, I mean it was muffled but I could hear. I think being on the floor helped the blood move around to where it needed to go to eventually. Once I could see, I went to get the phone to call an ambulance but then I stopped. I felt like my mother would get mad at me if I called them. I held that phone for so long, then I put it down and put myself in my bed. The next day, and for 2 years after that day, everyone thought it was a panic attack. I kept insisting that it wasn't, but they were pretty convinced. It wasn't until I went to Brigham and Women's Hospital in Boston and saw the top rheumatologist that they sort of started to believe me.

I've been on this god damn medical journey forever. I mean.. why is it so hard for people to believe or empathize with something like that? Is it because they can't see it? But they do see it, when I hobble around with the back of an 80 yr old but wtf do they think I'm enjoying that? I don't remember asking for help other than hey man call 911 and that was once. I don't have people do laundry or cook & clean, that's my job. I don't ask people to watch my son, that's my job. I don't ask people to take care of my mom, that's my job. These aren't jobs that have been assigned to me. These are the jobs that make me who I am, I want these jobs. I'm not trying to get out of anything or fool anyone, or have someone say awwwww what I want is if I'm asking for help, you better believe that it really was my last resort. I've always had a hard time asking and accepting help. I learned from an early age that help doesn't come and I got to get it done myself. I am fully aware that a person with no pain is likely dead, and so I accept fully that this is a physical thing that yeah hurts, but it's ok. It's like I told my kid, "I don't know if anyone ever told you this or not, but it's true. It's okay to be uncomfortable sometimes.". And it is. I just feel that if I have all this other crap going on internally, I'd like to minimize the crap coming from the outside.

Just can't shake the feeling that if I could pick up and move somewhere warm and nice that I could in a sense begin my life. I couldn't begin it when I didn't know what was wrong with me. I had 6 (no lie) false positive results for Hepatitis C in my life during a 5 year span of time. I didn't know that it was the other conditions triggering the test, so for 5 years I was pretty convinced I was not going to be here to have to plan, or save, or .. anything. Now I'm being told hey, this thing won't kill you but it will make you miserable for the rest of your life.. well how bout that. Yeah, I was pretty mad about that for a long time. I considered suing, but then I backed away. Just want to be happy, and I know nobody can see the future but knowing if you're going to have just 10 years or if you got 60 years left is something you need to know if you are planning for the future of a kid. Just scary.

I hated doctors. I got 12 diagnosis. The 12th is the one that I have now, and hopefully it will stay that way because I've already began to rethink my life along these guidelines. I'm 36 now, I'm not sure how many more times I'll get to begin life again.
 
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