I do feel like I dominate everyone, not in the sense of talking etc since I only speak if the T directly asks me too. I speak the least of anyone. I feel like I dominate on the horror/pity scale. It feels like there is this huge ugly creature in the middle of the room that I bring in there with me on a leash that we all talk around and pretend isn't shocking or negative.
I am sure that I exaggerate my effect on people all the time. It would help me believe that's what I am doing in this case if, after group, I didn't get all of those, "I'm so sorry about your son", "I don't know how you do it" etc. It sucks to be pitied.
Wow, you put into words what I was never able to. My little girl, who would have been 29 this November, was born severely disabled, with MANY problems. It was obvious immediately, as she didn't maintain eye contact for long. She was as limp as a rag doll, and I thought she was ugly, and that made me feel SO very ugly! She really wasn't ugly, but at that time, the only thought in me was hatred, and everyone and everything was ugly! I, saw, and felt also, like when people saw us, they immediately pitied me. Lots of staring and stupid comments, like : "Oh, the poor thing!", and "God only gives special children to special parents!" I was one of those people who never knew what to say to a handicapped person, or their caretaker, so I couldn't blame them for 'putting their feet in their mouth'. I did myself a few times...
Well, she wasn't a THING, and nobody asked me if I wanted to be special!! She was very ill most of the time, till @ 18 months, I institutionalized her. I was spent, broken, and dying inside, and somehow had to find the courage and strength to take care of her brother and I. I was always 'in charge' of her care, right down to having her hair permed every couple of months, but emtionally and physically I did not have it in me to care for her myself.:cry:
She was a '2-person lift' and had a G-Tube, never spoke, and was @ approximately 8-18 months mentally. She was my happy Angel! No matter what, she had that grin! Our story is in my Trauma Diary.
I say to you, NOT with pity, but absolute admiration and respect that you are awesome! You gave up your career, and 'life', to care for your son!! I was not strong enough, but I DO know what it takes, and you are courageous. I know it feels like sh*t, and seems overwhelming at time, but I encourage you to go to groups, give them a time or two, then decide if you are comfortable their. In the groups I've been in, like a depression support group, we are all struggling to cope day to day, and have completely different 'causes' for being there. I think T's try to offer what is available, and trying a new group now and then can be good for us. I felt stagnant in my last group, and am going to try an art therapy group called ZenTangle.
BTW, in our groups, there is always there is always the option to 'pass' for the day.
Sorry, I didn't mean to ramble on so...
Hang in there, and grab what knowledge you can, from anywhere, or anyone.
Be blessed with strength & courage & wisdom!