Sometimes I wish I knew if what we say is truly kept confidential?
I used to trust medical personnel pretty freely. But after working at the hospital and all the personal experience with doctors, I can safely say that "private" info really isn't.
Newer research results out through the Epilepsy Foundation (ours recognizes more now than ever before, pseudo-seizures. While they still don't classify them as epilepsy, they recognize that in many epileptics, it is a secondary diagnosis.
Except mine were not recognized nor diagnosed as "pseudoseizures."
What I really get from this is really needing someone in your corner, and someone that you thought was... feels like they were not.
Yes. And it has happened repeatedly to the point where I don't have anyone truly in my corner now.
Have you been able to speak to the doc himself about it?
We messaged a couple of times. His attitude was kind of "you're making too much out of this" and "I'm doing my duty as a physician."
our trust has been broken, but his actions may not have violated HIPAA.
The doctor he provided my information to is NOT involved in my care in any way, shape, or form and was, in fact, fired because he made a grave medication error that could have killed me had I not noticed it. And that was 5 or 6 years ago.
I'm not going to do any kind of a report. I have NO support and it's just too much for me to manage alone. I'm not, though, going back to see him.