I guess one thing I feel as though no one understands is that I'm suffering from a form of body dysmorphia (so I've been told), which is extremely debilitating and hard to treat.
It is debilitating. I hear ya on that. I have been reading about how much it is limiting your life. You went from living such a full and active life before, and now, you almost never even leave your home. That is a huge change, all the way around. BDD (and the other disorders, on top of the loss of what you used to look like) have really had a huge impact on your daily life, your relationships, even your plans for the future. It is very difficult to get through treatment. There are some very effective treatments out there, and the treatment involves a hella lot of hard work. Sometimes treatment for some of these kinds of conditions that can develop from the physical and emotional consequences of trauma can feel like really walking through the fire of the worst feelings that a sufferer has.
However, what I'm going through is even worse than BDD, because my detect is real and obvious and people will comment on it, unlike the typical BDD case.
I don't have BDD, and what I know of it is through a friend of mine who has BDD along with several other diagnoses. I can imagine a little of how people making comments would FUEL it to be even worse. When she describes herself, I struggle to understand how she sees what she sees in her own body... I just don't see it. Yes, she has real problems with her body that are clear, but I don't see it like she does, and it's so painful for her. Then people make comments to her now and then, and my goodness, they do really fuel the BDD to be even worse. It is a triple whammy to have a real disfigurement, BDD, and then to have to deal with people making any comments, taking any notice at all. It can feel like the worst fears are coming true for someone with BDD for anyone to even comment at all.
With my friend, when her BDD was really bad, it's like my words themselves would go through the BDD filter, and to her, it's like I'm saying different words than I'm actually saying. I would try to encourage her, and she would only be in even more anguish and pain. It broke my heart. It was like she was in an isolating hell. It was like a prison for her, and all I wanted to do was break her out of it...
But yeah, I hear ya, or I am trying to understand, about how bad this is in the middle of it, enduring all of this.
Add to that the PTSD, depression, and anxiety and there is a serious recipe for disaster. Plus I loved my face and body before this horrible accident, so it makes it an even bigger loss.
It is a significant loss to grieve. :hug:
My friend who had some of the same combo of disorders, she actually did get to the point of having to be hospitalized. She engaged in some really unhealthy ways of trying to cope with all the pain and suffering she was in. The loss of hope for the future was really hard. She had panic attacks often too. Frankly, they gave her a really bad prognosis when she was first hospitalized...
It's been three years since then. She is now free of the BDD and working as a full time teacher. This is a public job - one she never thought she would be able to do. She does amazing things for those kids. She is happy. Really happy. I spent time with her today.
I think you have a lot to offer people too. You are tenacious, bright, and communicate in an authentic manner.
And your words describe a very stark picture of the really awful existence that you live right now.
Please don't lose hope. Please keep reaching out.
You don't write very much about your therapist, other than the therapy isn't working and that she admits that people do make comments about the scar. Do you feel like she is able to understand any part of what you are doing through? Is she a trauma and/or BDD expert? Or is she one of the therapists that kind of just do general therapy that covers everything and anything? If she is the latter, it might help explain some of why she just doesn't understand what you are going through as well as you need to be understood and heard out.
Therapists are not likely to agree with your view of yourself (this is common for most forms of therapy). But having a good understanding of your experience of yourself and your prison that you are in is important, even essential. Regardless of what kind of therapist yours is, it does seem like she is trying to understand and validate what she can by telling you that people do comment about the scar. It does seem clear that you need someone who really gets it and really understands, and can help you effectively to reach all the goals that you have.
I'm trying to understand too, and the more you write, the more my heart goes out to you.
Thank you for being brave enough to share what it is like for you.