Thank you
@DharmaGirl. It was reading the new criteria in the latest DSM V that gave me hope - the 'consistent across time and context' part - because as I've said before -
if what was 'wrong with me' all those years ago was 'BPD', how come it completely went away for 12 years, only to return when further trauma (earthquakes) and the flashbacks from my childhood abuse started again? Why do I only have the 'symptoms' in a therapeutic context (and not in my professional life)?
The thing I wasn't able to post last night is this: nearly 3 years ago when I was trying to get treatment for my PTSD and severe eating disorder, I was caught between two systems of health care - the eating disorder team didn't want to treat me because I had trauma and they 'didn't deal with trauma'. The general psych team didn't want to treat me because they 'didn't deal with sting disorders'. Both teams wanted a quick fix and so I had an assessment by two psychologists - a full comprehensive assessment, the full personality questionnaire as well as a 1.5 hour long interview with the two psychologists. They were the experts on the local program designed specifically for those with BPD - I was assessed just in case I met the criteria and would qualify for the ONLY daily therapy program in my city. It was thought that if I somehow met the criteria, I'd be able to access more help than if I didn't.
One of the psychologists is the one I see now. It's coincidence it was her I ended up seeing 2 years later, in a private context. I had no idea it was HER, until I turned up, but she remembered me. She was the only one in all the many people I saw then who LISTENED and had the time for me. I'd phone her when I was upset and she never refused my calls. She was always kind, and sympathetic. I couldn't be happier with the 'coincidence' of seeing her privately now, because I never forgot her kindness!
From the assessment, they said I didn't not meet the criteria for their program. The program designed for those with BPD. They said I needed help fro PTSD and my eating disorder. BUT - because of my previous awful, damaging experience of being labeled 'BPD' I had made it VERY clear, that to imply I did have it, would be extremely devastating to me, and damaging.
SO - as I told my T, my concern is I gave them 'no choice' but to say I 'didn't' have BPD. My deep fear is maybe they did conclude I have it, and just told me I didn't, in order to 'protect' me from further harm. I am so afraid (!!!!!) of hearing true possible truth (i.e. my T does think I have it) that I have made it clear to her, I cannot know the answer right now. I am still SO incredibly fearful of her answer, I'm not in a place anywhere close to accepting what that answer might be. If she says I do have it, that would trigger me and I would struggle to cope - I think it would seriously destabilize me (due to the past experience of having all my distress ignored). Yet on the other hand - if she said no, they did tell me the truth and I DON'T have BPD, I'd not believe her - I'd still think she is protecting me from further harm :(.
I also worry that they never said I don't have BPD - only that I 'didn't met the criteria for the program'. I never clarified this, because I was so fearful of having those words associated with me - and I was in far too vulnerable a place to cope with the idea of being not treated again.
As hard as it is, I am kinda glad I have bought it up with her, because in all the 8 months of seeing her, it's always been in the back of my mind.
I feel afraid to share certain things with her - things that I need to talk about in order to heal - for fear she will conclude I have that awful diagnosis - and change her treatment of me (i.e., ignore my distress, think I'm attention seeing, being manipulative).
Yesterday she spent a lot of time reassuring me that she does not see BPD in the stigmatized way it was seen 10 plus years ago. If anything, it seems she is a huge proponent of changing the stigma associated with BPD and PROVING those assumptions are anything but true. She does not believe those with BPD manipulate, she believes their distress is real. She has been active in the research behind this, and was (and still is) actively involved in treating those with BPD in the much better, less rejecting kind of way people with it have always been treated up until recently. I guess it makes her a 'fighter for the cause' so to speak.
And of course, I sit here thinking 'is she telling me this BECAUSE I have BPD', or is she telling me this as an example of how she perceives those with it, to help me feel that IF my fears were confirmed, I'd have nothing to worry about? :eek:
I try to remind myself - a personality disorder is a personality - it's either there or it isn't, it can't 'come and go' - it is consistent across time and context. but I am still so afraid :(