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Change In Ptsd Or Misdiagnosed?

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jmni

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I was diagnosed with PTSD in my late teens, early 20s.

I am not saying that my doctor was wrong and that I don't have PTSD. In retrospect I think that I have been dealing with traumatic events my entire life because of the behavior of my parents. But there are a lot of symptoms to PTSD. Prior to that I think I was experiencing avoidance and that type of thing and better at coping.

It seems more like I had a nervous break down because the PTSD symptoms got much more worse.

So my PTSD symptoms could of changed and heightened after a certain event. But I suspect that I wasn't fully diagnosed.

What do you think of that?
 
Well, I think after years of wondering what my diagnosis was, ultimately it only comes down to the things you do to better yourself. Therapy, self-motivating activities and pushing yourself to succeed, these are the things that matter. Often times the medications we take, no matter the diagnosis are the same anyway. I have been diagnosed with ptsd, and then later on diagnosed with panic disorder. I decided to just trust the doctors and therapists and not particularly worry about putting an exact label on my condition. Ask yourself, "What do I want out of life, and what can I and then must I do to get there". Not everybody knows what anxiety, panic feelings and the whole isolation thing feels like. But all of us who do experience these things can overcome them to a great degree, and we can all also be swallowed up by them instead. We can beat the odds, climb mountains simply because they are there, no matter the disadvantage.
 
Acute anxiety and panic can become so chronic that without medical help, it will build and build and leave the person incapable of functioning normally. When it happened to me I was basically bedridden. I could not watch TV without feeling ill. I did not want to eat, but occasionally would choke down some Ensure, a banana or plain hamburger with nothing on it. I did not want to get up or go outside, shower, or do anything but try to sleep. Sleep only would come in 15 minute waves it seemed, waking in a sweat. I became hopelessly attached and reliant on my girlfriend as I feared that feeling of sinking into my own head or suddenly not recognizing objects around me. Sitting or laying on my side would result in an escalation of the already terrible anxiety and into a panic mode, which seemed to happen regardless as my mind started to depress and dread my plight. Doctors kept me on such a low dose of medication that I never felt relief from it. I wasn't suicidal much but every day for 3 months, I wondered how on earth I would survive the next day. Some advise was to do active things to keep your mind of the anxiety, I even went for a run. Nothing worked, I could not sit, I could not stand. Panic was in complete control over me, there was no talking me down from it.

I would try and lay down and just shake inside myself. I'd have my Amanda sit right next to me and read out of a book and try to focus and eek out a few responses here and there. I fought the need to go to the hospital for financial reasons. I knew my girlfriend had to work. I told her I would be okay every night she had to work, but it was pure hell. Something terrifying and beyond physical pain. The sense that the shaking energy within wants to hold me down but also rip from myself. All of it centered around my fears of not getting enough oxygen, not breathing right and feeling the pain and cramping around my lungs and diaphragm which left me horribly fatigued and insomniac.

Ativan only gave me an hour of relief, of which I was allowed to have once every 8 hours as prescribed. The relief was a pitiful solution. After 4 months the one thing that saved me was the third antidepressant I had tried. I really don't know what I would have done without it, the relieving effects were so profound. Only then did I notice any effect from Ativan, Valium or Xanax. At this point I can function but needed much more therapy to start my life again, motivate, challenge my new found irrational fears. It took 2 years of therapy before I could go to a job interview again, or drive by myself. Be proud of myself.

Today I am dealing with my substance abuse issue that developed as a way to cope. I have finished therapy for now. I help out at my local animal humane shelter, taking the steps to get therapy for my sleep apnea, and I am going to enroll next term in school for pharmacy tech. So I know I have come a long way from just a few years ago. I feel far from 'cured' of anything. I still feel panic disorder, I still dissociate and have 'illusionary' type effects to my vision sometimes. Certainly I feel that the anti anxiety and depression medication has made an impact. I have simply gotten used to being nervous and even afraid and so I have also gotten used to 'just jumping in' and doing it! Finally I have something I haven't had in a long time, which is sense a self worth.

Still on 40mg Paxil, .5mg Klonapin 2x a day, or just as much Xanax depending on the level of anxiety or panic. I take 2mg of Prazosin also. For sleep, I sometimes rely on Diphenhydramine, Gaba, Melatonin or Valerian. Without these meds my anxiety will build and build until it becomes a run away panic attack that does not seem to end. Even with the shitty family abuse, drug use, death of my father, fighting, being robbed and touched once by a sicko on the school bus (hi schoolers should not have approval to ride on the same school bus as grade schoolers!) The problem with a diagnosis is that I might have it managed so well that I can only really identify with the panic disorder. I am not sure, the doctors aren't sure, and my therapists aren't sure either.
 
You're very lucky to have such a caring girlfriend. I think my doctor just didn't care and did not put enough time into the diagnosis. It only took her about two weeks and then she deferred me to a therapist. On top of that my parents were the cause of this nervous break down and this doctor was selected by my father's sleazy sister.

I believe I had PTSD before this but I had better coping strategies because I had a positive attitude about the future. I think I mainly relied on avoidance. When my outlook about the future was destroyed I think I broke down and the PTSD symptoms increased.
 
I believe this happened to me as well. My breakdown happened at work. I had a panic attack of massive proportions. My run away hyperventilation happened for so long I turned blue and my brain ended up damaged as a result, the shock damaged my nervous system and since has resorted to the primitive brain, the one responsible for survival, the breathing, sensation. A new map was written deep into my brain to function as a 'fight or flight' person. It has taken years to rebuild my damaged self. Respiratory alkalosis turned my world upside down. I could feel and see death knocking at my door. Thoughts of how my death would impact my girlfriend and the ones around me consumed me as I struggled to breathe. At the same time I was in denial, thinking I could handle this on my own and delayed a 911 call. It was only after I felt myself leaving my body that I was able to tell front desk to call 911. I was worried for her too, witnessing my demise. I later found out that the woman, who I was friends with and cared for a lot needed therapy and suffered from panic attacks after witnessing my breakdown. It took years to recover from it, the events, the denial, the thoughts of death pushed my primitive brain into overdrive. I let my job, my boss dictate my survival, my worry of not being able to go on vacation, to see my grandmother one last time before she died concerned me intensely. As hard as I worked as the only hotel maintenance man in a 80 room hotel made me proud and I loved my work. But the prospect of going another year without vacation and missing my very sick grandmother....all the planning me and Amanda had done going to waste broke me down suddenly. I wish now I could have controlled my hyperventilation, but it was all in vain as my body was not meant to turn back that tide.

I was able to return to work, my boss let me come back, only the symptoms returned with a vengeance and after a month I was so debilitated, going from clinic to hospital and rapidly draining my funds. I ended up ill from this, from the above post as you can read. Yet my boss still let me come back after 3 months of this breakdown of my mind and body. I was able to work for 2 more months before my boss got fired and replaced with a new management team. The owner found out he was covering for me and fired him. Even if he was partly at fault for my condition, he had faith I would hold through. He saw me leave the hospital once and come directly to work.. perhaps its that determination then that is still in me today.
I have decided to go to school next term, I am going to be a pharmacy technician. I don't care that I am damaged, we either recover or get buried.
 
Lucycat. Some therapists are scared to put a label on the condition. They instead might choose to treat you as a person with anxiety and panic disorder.

You yourself might be diagnosed with ptsd one day but treatment and quality of life might be going so well for you that your doctor or trauma therapist might decide that you no longer meet the criteria of ptsd (even if it isn't curable) and instead diagnose you and treat you as a person with panic disorder.

Seriously, it would be nice if the world were so black and white as you are wanting to believe.


Again, both of you I seriously advise that you not focus on a diagnosis itself but rather the treatment needed to get you functional, and content or happy in your lives. Having ptsd does not make anybody special, you should not wish to be part of a conglomerate of people who wish to shun therapy and instead bury your head in the sand with a diagnosis and say, ''this is it'' I have ptsd and it's never going to change! Diagnosis?? Not enough about panic, anxiety, shock, post traumatic stress and ptsd, and combat ptsd corrilate to anything definitive, suggesting that someone who is diagnosed with ptsd actually has it! Any more than someone who has been diagnosed with the other, really has ptsd instead!

Our pain, memories, treatment and our thoughts all need to be respected when confronting someone who is going through this trial in their life.
 
But JMNI says he/she WAS diagnosed. The therapist was not scared of the label. The label was given
in my late teens, early 20s.
.

I do understand that the nature of the condition can change with remission and relapses, but that does not seem to be the question. JMNI has not suggested that an alternative diagnosis has been given, or that the treatment has not been appropriate to PTSD. Maybe I am just being stupid here and am missing the point?
 
I am facing the same issues. But I will acknowledge that the symptoms can change, just as our lives and how we go about it change. I don't want to call anybody stupid, I don't believe you are.

If symptoms change so too can a new diagnosis. For me this is because I moved locations and not enough about ptsd is known to simply accept another doctorates idea. A true doctor or therapist will look at a new patient at first glance and treat them according to what is provable. This might lead to a diagnosis that is different than previously thought by another. Not because you are simply a new patient, but because there isn't enough known about ptsd and treatment to go ahead and accept the diagnosis. Besides, treatment for panic disorder often is all that is needed to improve the quality of life for someone who 'thinks' they have ptsd based on a previous diagnosis.
 
Lucycat, she did diagnose me with PTSD. But that did not take her very long and she did not see me after that. I think that she was right but I think that my symptoms were not really exclusive to PTSD at the time. My symptoms were a response to being around them. I believe that she knew I was being abused at the time by a large group of people. I was depressed and frightened and I told her that my parents acted like lunatics and the psychotic things that they said and did to me. The therapist that I saw subsequently did not help me work on PTSD. They just treated me like a child and gave me a lot of useless pep talks.
 
jmni,
I think its possible to have PTSD and have a breakdown. Ones depressive symptoms can get very bad because of circumstances and that can contribute.

I think I understand what you are saying. That you had trauma symptoms but that all of your lack of functioning at that time was not purely down to PTSD. Is that right?

It sounds like you meet the experience criteria so I am wondering what you feel was possibly missing in your symptoms that would exclude PTSD? Did you have regular intrusive symptoms relating to your trauma? I think thats the easiest way of telling depression and PTSD apart.
 
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