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DID DID and feeling like you don't relate to how others experience it

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Does anyone else with DID often feel like they don't relate to how others experience it? A few examples off the top of my head:
  1. I don't map my system. I feel like trying to not only exacerbates my OCD, but also makes things muddier, not clearer. It ends up feeling like trying to keep sand from running through my hands, and the harder I try, the less it works. We generally know about a very small portion of our system, like the host and a few key trauma holders, as well as a few previous hosts, mainly those that have hosted since system discovery circa I believe 2019.
  2. I generally don't struggle with day-to-day amnesia and I generally have good to okay communication.
  3. I have no desire to fakeclaim other systems. If you say you have DID, I believe you.
  4. I don't struggle to talk about my trauma history. I don't mean this in a "I dissociate while I'm telling it," way. I mean it in a, "I've done enough healing that discussing it isn't triggering," way.
  5. I don't switch often. The host is almost always fronting or at least cocon.
  6. Recently, I went to the Healing Together Conference, which is a conference by and for people with DID. It seemed that most people were more comfortable letting their littles out around so many other (500+) people with DID. I felt less comfortable letting them out, though they did peak through or front for short bursts of time a few times.
  7. Going back to 4, if someone asks about my trauma history, I really don't have an issue telling them I don't want to answer something if they ask about something I'm not comfortable discussing.
  8. I experienced extreme abuse and torture that was not cult- or organized abuse-related. I feel like I almost never see this one discussed.
I think a lot of these are probably more normal than I feel like they are, but I've never really been able to find online spaces where people spoke about really any of the points I made. So I guess my question is... does anyone relate to any of these?
 
Yes for the most part. However the key to this is the snowflake . When snowflakes fall none are the same. Systems and reasons behind systems and how they play out in the lives of people who are D.I.D. Is pretty much snowflakes. The analogy is meant to spark thought aside from specifics. Some aspects of a snowflake have similar attributes, but none as a total share the same pattern. This is akin to the us and we systems and how they interact and were developed and who is doing what and how much one can disclose the uniqueness of their trauma. I think it’s a great question you’ve asked and I’m glad you asked as it leans towards learning from others.
 
My parts have been integrated since some time back (11 years) but when I suffered from this I had something I believe isn't called DID but is very close to DID (I don't remember the name): I had a "me" I was almost most of the time: the alters only took over in some triggering situations: but those I have fuzzy memories off sort of (I didn't manage to piece everything together before I was pretty quickly got integrated; it was actually a bit off a miracle).

I too have not suffered from a cult, or much of a organized abuse-thing (though my abuser brought me 2 or 3 three time to a pedophile-ring: not sure if that was what you meant with organized?). But I don't think everyone have to have suffered from that to have fragmented to survive. But possibly it often stems from being exposed to very severe trauma and often sadism?

I too have healed enough to be able to talk about my trauma freely, or say no when I don't want to. And too always wanted to be the "adult me" around people; but then again I didn't have to "true DID" but the thing very close to it (if you have that you only switch to alters in highly stressful or extremely triggering situations, but are mainly the "front you" sort of).

Also my amnesia wasn't that bad on a daily basis, since I (as I wrote above) didn't switch to an alter/little me very often but only in highly stressful, triggering situations. But those I still have problem remembering. It's like remembering somebody else's life, sort of.. I did have problem, before trauma therapy and being integrated with dissociation though, but not that "complete" if you know what I mean. I mainly checked out partly, so I could function, even talk, and do stuff, but was a bit zoned out. But then I often remembered things that had happened anyway afterwards. I remembered, but in the situation I had less ability to stay with my feelings or chose how to act (it was a bit like being a robot; hearing my self say things, or not say things..)

Congratulations to having come so far you can talk about your traumas without being overwhelmed.
 
Thank you for sharing! I'm not sure what you might be referring to other than Partial DID? That seems to be a diagnosis that primarily exists in countries that use the ICD instead of the DSM so I'm not as familiar with those diagnoses. If it is that, today I learned something new! If not, I'm afraid I'm out of guesses hah.

But yes like I said before, thank you for sharing, I really appreciate it. It definitely makes me feel less alone.

I want to respond to some specific parts of what you wrote.


I too have not suffered from a cult, or much of a organized abuse-thing (though my abuser brought me 2 or 3 three time to a pedophile-ring: not sure if that was what you meant with organized?).
This is more of what I mean by organized, yes! Anything where there is some kind of network where a lot of powerful people are benefiting from the child abuse. But what you have shared (that you have not suffered from a cult, aside from the two or three times) does very much help me feel less alone.
But I don't think everyone have to have suffered from that to have fragmented to survive.
I agree with this for sure.
But possibly it often stems from being exposed to very severe trauma and often sadism?
But this specifically really speaks to me. I think being exposed to very severe trauma is generally an accepted lens with which to view DID but I feel the sadism (and especially specifically the torture, in my opinion) is less so, especially when that torture isn't related to a cult or organized group. I feel that often when torture is discussed as a contributing factor to DID it is part of a larger discussion on cult abuse/organized abuse. I don't begrudge this because cult abuse/OA is very much real and very much does need to be discussed, but it sometimes leaves me feeling like I'm alone on an iceberg out at sea surrounded by all these other icebergs (people with DID) who exist in a totally different, alienating reality, if you will.
Also my amnesia wasn't that bad on a daily basis, since I (as I wrote above) didn't switch to an alter/little me very often but only in highly stressful, triggering situations. But those I still have problem remembering. It's like remembering somebody else's life, sort of.
I relate to this more than I really know how to articulate. It's a bit easier to remember things after getting triggered now, but I definitely still struggle to remember things if I get profoundly triggered unless I have the conversation in front of me to refer back to, like a text message conversation or a recount of the conversation that I recorded right after it happened. But also the first part of what you said. I don't typically tend to switch unless I either feel very triggered or very safe, with the same "front me" fronting by default. I feel like the being "mainly the "front you,"" as you said is very accurate to my experience and not something I feel I find talked about almost ever. I think this is the second time I have ever heard anyone mention a similar thing occurring to them. So thank you for sharing everything that you did. It really means more than I can say.

And thank you for congratulating me for the progress I have made. I really am starting to see that everyone here seems to be very generous with their ability to feel joy for others' progress instead of feeling personally victimized when they have not come as far in healing (which is the response I am unfortunately much more used to expecting). We have put a lot of time and effort and emotion into getting to where we are today. And it feels very joyous to be recognized in that effort. Thank you again. And of course congratulations to you too for integrating all that you have done and the effort you have put in as well. :)
 
I generally don't struggle with day-to-day amnesia
me too, can struggle to recall conversations and events but I dont often get the sense that Ive lost any time. things just get fuzzy and other things slip through the cracks without me noticing. becomes more evident over time instead of day to day, that I have different memory to my peers. I remember random details a lot. a week or two behind me are relatively clear, sometimes more. then it gets cloudy. but day to day functioning memory wise is fine for me most of the time.
I have no desire to fakeclaim other systems. If you say you have DID, I believe you.
me too, haven't met anyone else anyway.
I don't switch often. The host is almost always fronting or at least cocon.
for the amount of time Ive been aware of being a system I'd say me too. there is no "host" position (anymore) but alters stay around for weeks on average I think. sometimes months. less than a week is not common. with sometimes brief interruptions, and varying amounts of background/co-con activity on and off.
Recently, I went to the Healing Together Conference, which is a conference by and for people with DID. It seemed that most people were more comfortable letting their littles out around so many other (500+) people with DID. I felt less comfortable letting them out, though they did peak through or front for short bursts of time a few times.
I wouldn't feel comfortable, I also dont think my younger ones would feel comfortable either. for me theyre very heavily gaurded, cant talk much if at all either. couple young teen littles maybe, but none of the little little ones, especially with history of internal persecution. for me.
Going back to 4, if someone asks about my trauma history, I really don't have an issue telling them I don't want to answer something if they ask about something I'm not comfortable discussing.
Im similar. of what I definitively know, I can talk about pretty easily. everything else I'm still in the throes of, but can still share with less problem than I sometimes think I should. in some ways its harder in therapy but easier with regular folks. if I dont want to I can just say no. depends on the people.
 

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