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Misdiagnosis, Incorrect Treatment, And Moving Past That

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MT Johnny

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Hi, I just joined. I was misdiagnosed in 2012 with bipolar, despite no history of psychiatric illness my entire life (now young middle-aged), given medications for bipolar that did diddly-squat for me, and worst of all, "railroaded" pretty much against my will into spending 3 weeks in a psych (day hospital) program.

In talking to others with PTSD/C-PTSD on the web, this seems really common. Which is such a travesty. In my case, the doctor I went to for my initial symptoms,panic attacks, total insomnia, etc, diagnosed me as bipolar within 2 minutes of meeting me, after reading the one-page intake form from her office. Two minutes after that, I was told that I "had to" be hospitalized for my own safety. She actually wanted me to go inpatient, the sort-of compromise was day hospital program.

My mistake, and her rationale - I admitted, truthfully, that I thought about suicide quite often, which I was at that time.

At any rate, after dealing with that doctor a handful of times, less than 10 total appointments, I found out she was basically both incompetent and heartless. Another patient of hers described her online as "a brutal thug" and that is about right.

The lasting effect of this is ... I am way more messed up now after seeking "help" than I was before. My precipitating incident was a workplace situation of threatened violent death, which brought up a lot of memories of a really bad childhood at the hands of a father who also literally threatened me at gunpoint more than once, and generally made my life at home Hell. That was bad enough.

BUT, if I had gotten a correct diagnosis, the right medications, and not been forced to do something I literally was pleading NOT to do, I wouldn't be in such a mess today. It's complicated to explain, but basically - I had this father who should have been a loving, supporting parent, but instead, all I got from him was "the iron fist". And, when I was a real trouble and did what I thought was "the right thing" and sought out professional help, instead of the compassionate understanding I was expecting, again all I got was "the iron fist." So, it really damaged me.

But, I have survived a lot in my life, and I have fought back in a lot of ways over the past couple of years. I saw a general practice psychologist for a couple of years, that helped but wasn't the "answer" I hoped. I found a trauma specialist about 6 months ago - after being informed by a member of another support forum that there were trauma specialists - and that has been a dramatic difference. Of course, it's still all up and down, and a lot of triggering things happen. But, I am determined at this point to get past this, to a point where I can feel comfortable and confident managing the situations that come up that are triggering.

I would be especially interested in hearing from others who have suffered due to misdiagnosis. Namaste.
 
@MT Johnny welcome to the forum, I myself went 22 years without a diagnosis after seeing a string of UK Counselors so slightly different to yourself.

I wish you every success in your personal healing journey here on MyPTSD.

Sending a :hug: if you accept.

Laurie
 
I'm sorry you encountered the psychiatrist and the mis-diagnosis, and the treatment, therein. Vulnerability, especially when in crisis and when new to treatment, is a circumstance that I have dealt with, in different ways.

First, no one wanted to believe my trauma memories. Providers said everything from, "You have nutritional deficiencies," to "you are just thinking your childhood was traumatic because 'your culture' is now making it an 'acceptable trend/way' to explain why you are unhappy.

The first Provider I trusted, as I was in crisis, was when i didn't know how to discern Providers' skills, I didn't have consumer education about my symptoms, and I thought 'trusting' a Provider, against my 'inner sense' was part of the solution. Like you, I found out otherwise.

As you eloquently stated your process, fortunately, after a lot of pain, I came through, much more able to 'discern' about Providers and to keep my 'sense' of what suits me, as part of the therapy conversation.

Thank you for your thread!
 
Gaah. Secondary wounding. It's painful as can be. The healing journey from that goes backwards before going forward. I wasn't misdiagnosed, but just not treated well after the traumas. The anger that wells up in me about all the senseless suffering because of it is maddening. I feel for you. I hope your journey continues to progress. Welcome to the forum.
 
The anger that wells up in me about all the senseless suffering because of it is maddening. I feel for you. I hope your journey continues to progress.

I am so angry at the mental health system right now that I've had to take a break from individual therapy (I'm still in a DBT skills group). From misdiagnoses to mistreatment to over-medicated, it really pisses me off and has left me with a difficult time trusting anyone in the field. That said, I still believe that healing is possible and I still understand that I will need assistance in healing. Sometimes it feels like being between a rock and a hard place.
 
i can certainly understand how you feel , i had a major work trauma that put me off on disability for 12 mths , my phsyc diagnosed me as bipolar but wasnt sure at what extent. The meds nearly killed me , pure and simple and the more i complained about complete suicidal ideation from them , the more they upped the dose .

My wife was also supporting the drs view which made it impossible . Eventually not only did i severely injured myself going through withdrawals , but due to the undealt with trauma , i took off o/seas to work in africa believing i just needed to get away and find a distraction whilst i balance out -

i had no idea at the time it was actually my c-ptsd leading me into more trauma. Eventually i returned and to give you the extent of my shock, i did not utter a word to anyone for over 30 days , i was severely traumatized, had survived 3 bouts of malaria and was heading home to move from california to boston - whilst in Boston i was still not aware of my c-ptsd and went back to Nigeria for a large business deal - i ended up being held hostage - and im sure my c-ptsd saved my life (im exceptionally calm and organised in near death situations). Anyway it wasnt until 2 years after this i was diagnosed with ptsd , which eventually was diagnosed as c-ptsd.

Im sure like you i could have done better with a straight up diagnosis , but it didnt happen and i cant change it - i actually lost my job due to a bipolar diagnosis that was sent in accidentally to HR. But its no use ruminating over it , life goes on and we must join in . Welcome to the forum and i hope you find both the support and information that will help in your healing
 
Maybe I'm wrong and I don't know who you are, but it's advisable to use a completely different username on this forum.

Welcome.
 
Well, the time I was hospitalized I ran into the kind of company I really couldn't have wished less, so that was something of a bad trip.

I relate, though the only advice I've found: Heal from what happened there, too, how things blend for you together, and look for help where it's safe to look for help.

Welcome.
 
Welcome @MT Johnny My sister had a similar experience. She was 17 and misdiagnosed with schizophrenia and drugged up like a zombie with antipsychotic drugs, in a mental health ward that forced her to take the drugs. My mother's doing. My sister had complex trauma and bpd to her abusive childhood primarily because of my mother.

My sister never recovered and never go the right help. I mistakenly was trying to get her to move on from that experience in the hospital. I didn't understand at the time, how traumatic that was for her.

But you can get the right help, You have the information and you educate yourself. Don't rely on the mental health system. Learn all you can and do all you can, read, find a sympathetic therapist. Use only good people you trust. There are good people out there. But there are also a load of abusers in that system. And I am so sorry you had to go through that.
 
Hi Johnny,

It sounds like you have been retraumatized. I can relate.

When I sought professional help, I was misdiagnosed for 3 years. I have complex trauma from child abuse and domestic violence (emotional, psychological, sexual abuse). I saw 4 psychologists. Regardless of presenting with my trauma history and severe PTSD symptoms that debilitated my everyday life, not one of them assessed me for PTSD. It resulted in misdiagnosis and led to several very wounding and invalidating therapy experiences where my traumatic events were not understood, minimized, invalidated, forgotten, symptoms not connected to where they stemmed from, and at times the very nature of what I lived through was essentially denied. I have been so retraumatized and damaged by all of it.

The second psychologist, in addition to outright dismissing my trauma and having zero interest in hearing about my symptoms, also verbally abused me, which was devastating and shocking to me -- because I needed help and thought I would be able to rely on mental health professionals.

Everything has definitely slowed my healing and at times sent it backwards. I now have more issues than what I started with, so I feel a lot of regret, anger, pain, sadness at the situations that unfolded.

In 2014, I finally saw a psychiatrist who conducted a full comprehensive assessment and he formally diagnosed chronic PTSD and C-PTSD.

An accurate diagnosis is so important. A thorough assessment is crucial in minimizing the risk of misdiagnosis.

You're not alone here. I also know another guy who developed PTSD (from the tsunami), who was misdiagnosed for 5 years. He too is still somewhat affected by this secondary wound.

Thank you for your thread. I understand the pain, and how hard it is to move forward, plus how it replicates dynamics of past abuse with "caregivers".

I'm so sorry you were put through everything you went through. It should never have to be this hard.
 
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Im sure like you i could have done better with a straight up diagnosis , but it didnt happen and i cant change it... But its no use ruminating over it , life goes on and we must join in .

I think this is the most important "take away" message you can count on.
 
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