Other Seizure disorders in ptsd

[lostforgottensoul]

How are you doing lately?

This was posted 5 yrs ago. I don't think they are on the forums anymore. Just thought I'd let you know that as it's easy to miss that it's an old thread when it has recent replies.

 

[katz]

I have been having 'seizures' off and on since 2013 after I lost my sister, my step-mother, my mothe...

--I do have one piece of advice for you. From experience, talk to someone at the office. Only one. Let them know what to look for and how you want them to deal with it. You don't have to go into any detail about what is causing them, just let them know.

I had a time when I was at a party with quite a few friends. One of them knew my situation and how to handle it. I had spoken with them about it before. She told me that this is how it happened.
We were all sitting around laughing, then my friend said that "Katz is having a seizure" (that's what we called them then) "lets all go to the other room for a pop so we aren't all staring at her when she is done". Everyone went to the kitchen, except my friend. She stayed nearby to watch me. When I had finished, I just got up and rejoined the group in the kitchen and the party went on. My friend told me what had happened the next day.

Since then, I always try to have "one person" who knows what to do and what is causing it. It really helps me to feel safer, not knowing that I'm alone. I even have a "secret signal" that I can give to her to let her know that I feel "one" coming. Then she just watches me till I'm ok again. (I know that when mine started, I was not able to speak. So I just gave her our "signal".)

Trust me, make yourself a safety net. It's better for you.