DID What's so bad about did??

[lostforgottensoul]

I think we all need to be mindful that this is a global forum where many medical models are in place. I am not certain that it is helpful to debate on the type of care one gets as to the value of our opinions.

And that goes the other way as well. Stating that doctors WILL treat you different or look down on you (which is what was said) is just simply wrong. They MAY but saying they WILL is wrong. And that was my entire point. Advising of your own experience is one thing but telling others that doctors WILL look down on you for having a PNES because it has a mental cause and not brain electric firing issue is just simply not true.

 

[shimmerz]

But if you’re talking treatment and cure,

Yeah, see and for me this stopped mattering when people kept giving me these dire life expectancy models. And that PTSD couldn't be cured. And that conversion disorder couldn't be helped. CBT was a horrible experience for me and it was shocking how medical staff dared to tell me that they knew my experience with CBT better than me!

So I said f*ck it. If I am not going to be cured of these labels then I am going to leave the labels behind and learn how to direct my day to day; minute by minute experiences in a way that is meaningful to me.

At the end of the day, the label helped me get proper medication (MMJ) and that changed things for me and gave me a bigger window of tolerance which was a game changer. So yes, labels do matter, I agree. But if drugs aren't the fix, if medical staff is all doom and gloom, then I say drop the labels and fight for your life in whatever way you can.

WILL look down on you for having a PNES because it has a mental cause and not brain electric firing issue is just simply not true

Well, it is true in Canada, Lost. Any province I have been to it has been true. There is limited research done here and the ones that understand this stuff are seen as renegades. So yes, here in Canada they WILL not only look down on me but also abuse me. That is my experience and it is real.

Also, please, I am not the village idiot. I can read your posting without all the bolded capital underlined words. That just feels condescending.

 

[Suzetig]

learn how to direct my day to day; minute by minute experiences in a way that is meaningful to me.

I actually think this is key to good mental health regardless of diagnosis - being able to move through the world, connected to the here and now in a way that feels consistent with the person you are. It’s the core premise of Client Centred Therapy founded by Carl Rogers, which I think is massively underestimated as being simplistic in approach and outlook.

 

[shimmerz]

Client Centred Therapy founded by Carl Rogers,

Agreed @Suzetig. Thank you for this name and therapy reference. I didn't know about it. I agree strongly with you in this matter. Wellness is something that everyone should have been taught. And being aware of what keeps us well isn't actually that hard once we have learned to focus on it.

 

[lostforgottensoul]

Well, it is true in Canada,

You are missing my point. You advised me that I need to remember that this is an international forum. I'm advising that that works the other way. So, telling people that doctors will look at you and treat you different (remembering that you are speaking to people in other countries) is not true. They may but that's much different then will. Especially since there are Americans, English/UK people, Austrailians, and many other countries. So all doctors in all of these countries will certianly without a doubt treat you differently? That was my point. And that's actually black & white thinking.

Also, please, I am not the village idiot. I can read your posting without all the bolded capital underlined words. That just feels condescending

I'm sorry you feel that way. I bold for emphasis in all of my posts.

 

[Suzetig]

Agreed @Suzetig. Thank you for this name and therapy reference. ...

If you can find his book On Becoming a Person, it’s a series of papers and lectures which is really worth reading for folk interested in a potentiality/growth model of wellbeing and therapy. A simpler read is Stephen Joseph’s Positive Therapy which translates the theory into more modern language. Both are worth a read.

 

[shimmerz]

Also, please, I am not the village idiot. I can read your posting without all the bolded capital underlined words. That just feels condescending.

Not reading anymore posts with the whole bold underline thing from you. Please don't expect a response. I have asked nicely. Now I don't care.

 

[anthony]

The problem is that the DSM is a living document that is updated less frequently than perhaps necessary to keep up with the suffering of those categorized by it.

Wait until just round the corner now, the ICD 11 is released. It is believed those meeting criteria for PTSD will halve in that version. They make it much harder to meet via the context of the diagnostic criterion.

 

[lostforgottensoul]

They make it much harder to meet via the context of the diagnostic criterion

Only thing I could really find about it.

Medscape: Medscape Access

The result of this change will be that many moderately symptomatic people with PTSD will be denied treatment, through lack of recommendation or problems with reimbursement. The new criteria are inferior to the old ones. It has taken decades for us to recognize PTSD as a true psychiatric disorder — diagnosable and treatable. I see these people every week in my practice. It is a shame to artificially restrict recognition and treatment of their disorder," said Spiegel.

Agreed? I see it both ways. I suppose you have to ask, what does the half excluded do?

 

[Suzetig]

Get a more accurate diagnosis perhaps? The ever widening criteria for PTSD hasn’t necessarily served people well because the idea of PTSD being a treatable disorder where recovery is possible has gotten lost in the mix of what can be a very debilitating illness.

Post trauma stress is a very natural reaction to trauma - the very nature of which is that our defences and coping strategies become overwhelmed. The disordered part is what makes ptsd pathological- not the presence of stress symptoms alone. Tightening the diagnostic criteria may make therapy and support more accessible and more acceptable for people who are having a response to trauma. Except maybe in the States where diagnosis drives insurance payments.

 

[lostforgottensoul]

Get a more accurate diagnosis perhaps?

That's what I was thinking too. Plus, hopefully will hault those therapists giving out PTSD diagnosis willy nilly to anyone that had a bad experience once?

Except maybe in the States where diagnosis drives insurance payments.

Insurence was my worry as well. GAD seems to be one of those disorders that are diagnosed for insurence reasons. Wouldn't something like that suffice or do you mean the number or diagnosis driving the payments?

ETA: You know what I just thought of? My old inurence carrier, United Healthcare Behavioral Health. They had a "therapist" (usually interns my therapist said) would have a chat with my therapist yearly over the phone to reup why I had to still have weekly appointments. They denied me weekly appointments and said every 2 weeks and then the other off week I could go to a small group peer meeting (which is my worst fear - people - pre-service dog. There was no way I could go to a small meeting of people) and was in an insurence hole for 6 months. My therapist has to appeal it several times several different ways. And thats with a diagnosis of PTSD and a therapist that wildly disagreed with them.

I can see an insurence nightmare for that half of people. Depending on what they're actually dignosed with that is. But I can see insurence saying "well, you now don't need therapy as much" when they actually do.

 

[shimmerz]

those meeting criteria for PTSD will halve in that version.

Hmmm, I didn't realize that. I will be interested to see what they have done with the diagnostic criteria.

what does the half excluded do?

Yes, that will be interesting to see.

To be honest, I am concerned only that people who are legitimately suffering are able to get the help they need. In Canada it gets a bit tricky because we pay up front for 'medical insurance' and if the DSM doesn't identify something as suffering, too bad; so sorry; so sad.