• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

Do You Manage Ptsd As Chronic Illness?

Status
Not open for further replies.
Yes, I have to manage it like a chronic illness.

But your post does give me insight into the fact that not all people need to manage PTSD this way.

Sorry------just a bit sensitive as I've been shellacked by people for actually building in healthy recuperation time. Sigh!
 
Yes - in particular about how I manage the impact of therapy on my week. I tend to give myself an easy morning on therapy days and also the day after. And I wouldn't arrange a social activity for the evening after therapy.This is easy-ish for me to do this as I'm self-employed and largely work from home at the moment, so I can make flexible decisions about when/how I work.

If I know I've got a busy week planned e.g. lots of work stuff or something key like a meeting with a potential new client (i.e. I need to be on good form for it) I'll aim for a lighter therapy session because I have a tendency to dissociate and if I dissociate badly I can easily wipe out the rest of the week as I try to recalibrate.

There have also been times when I've formerly structured some self-care routines into my day - things like breathing exercises, meditation, going for a walk etc. I find that if I don't schedule that stuff in, it tends not to happen.

And tuning in to my natural energy rhythms has been useful too - though I'm not sure whether this is PTSD-related in any way or not. I'm not a morning person and tend to really get into the swing of things at my desk around 3pm. I prefer to start work later and work later into the evening. It took me a while to realise this and to then consciously decide to work with my energy peaks instead of trying fight against them. As I say, I don't think this is purely related to PTSD but I do think PTSD has an impact on my energy levels. So identifying how to work with myself on this instead of against myself has been useful in how I plan my time.
 
Yes - in particular about how I manage the impact of therapy on my week. I tend to give myself an easy...
That sounds great, it seems like you have really adjusted to the situation (as much as that's possible). Some of these things I've thought of, but some I didn't, and they seem like good advice, thank you! (like having lighter therapy if you are having a very busy week).
I'm self employed too, so I can adjust some things, I just never really new exactly how...so I'm trying to learn.
 
I am really grateful for this thread because it reminds me to stay mindful of this need, and validates it.

When I forget (or try to deny) that I need this built-in time, my brain eventually does a sort of forced shut-down. It tries to make me to take some time for myself by making me unable to function. Then I end up beating myself up for not functioning, which makes me even less able to take care of myself and return to feeling safe and present in the real world and functional.

I have a chronic illness, and I need to take time to keep it manageable. If I stay mindful of this fact, and build it into my schedule, I won't end up making things worse by beating myself up for it.
 
I am really grateful for this thread because it reminds me to stay mindful of this need, and...

I was indeed going through that exact circle of feelings many many times. That's why it's important for me to start breaking down my way of thinking about it. Trying to understand more. Adding this to my planned, managing it.

I'm sure it won't happen all at once, but I'm definitely trying to come to terms with it. Today is the first day in years I made a to-do list that was actually realistic and possible for my state. And completed it successfully with no unfinished items or guilt.

I haven't done that in so long it almost feels unnatural.
 
It's taken me a while to get to this point - and really that was about trying to be more accepting of how things are and not giving myself a hard time about it.

I can get quite frustrated with myself e.g. around feeling like I shouldn't need to dissociate and should be able to control it better, about how it shouldn't take me so long to recover from a heavy session, about how I should be able to go to therapy one day and be perfectly fine the next day, about not wanting to do lighter sessions because I should be able to manage heavier ones and I shouldn't be wasting time in therapy...etc etc...lots of shoulds! So, being a bit kinder to myself and accepting that that's how things are at the moment and I'm doing my best and why don't I try to help myself a bit instead of just having a go at myself about it all...they were key things that meant that I was able to come up with a bit of a plan to create a bit more balance and self-care around the impact of the work.

I still have plenty of those "should" moments - especially around thinking lighter sessions are a waste of time so I should be talking about more important things and bashing through the hard stuff. But focusing on "what can I do to support myself at the moment" vs "what can I do to crash on through and probably end up feeling worse" helps :-)
 
I'm grateful for stumbling across this thread, too. Thank you for starting it, @SeekingAfrica! :)It's a good reminder of an important way for us to take care of ourselves and heal, i.e., changing our outlook/relationship to what it means to have PTSD. From that flows all kinds of specific strategies, like writing things down in a planner, building in "recovery time," thinking critically about our own natural rhythms and being careful not to over-promise. AND to cut ourselves some slack because we're doing the best we can, and damn it, that's f*cking good enough. :mad:

I've had major depression (MDD) most of my life, since early childhood, and PTSD at least since age 15 (probably earlier, like age 5 or 11) -- so we're talking decades now, folks. Both have come in waves or episodes, and both have, at times, subsided to barely perceptible levels.

After being on State Disability for a year and a total of 5-7 years to fully recover from my last MDD episode (besides the current one), I started to think about it as a chronic illness, like diabetes or multiple sclerosis. I have to actively manage my illness to stay as healthy as possible. And with that, therapy as needed, and the right medication combo, both the MDD and PTSD had been "in remission" for 12-15 years (until last year.) That's a good, long stretch to be virtually symptom-free!

I've been struggling with a resurgence of symptoms over the past year and it's affected my work.:( Since I started a new, intensive therapy (along with 2 weekly groups), I've had to talk about this a little bit with my boss. I didn't say what it was, I just said I have a chronic condition that's currently flared up, and I will have less flexibility with my schedule. I no longer come in to work on Fridays, and I don't even try to work from home that day. That day I do 90-minutes of intensive, trauma-focused therapy followed an hour later by a 90-minute "Yoga for Depression & Anxiety" class. I'm pretty much a wreck for the rest of the day, and sometimes for the weekend! I don't even schedule a phone call or look at emails. I make up the work hours at other times (it helps to be the Director of my department with a small but mighty staff, an exempt employee instead of hourly, AND have a super supportive boss who's struggled with depression for 20+ years himself!)

Now, I also have ADHD, which was only diagnosed about 12 years ago (but which I've also had since early childhood.) That's never in remission and always takes active management strategies for getting shit done and not beating myself up for the myriad things left undone.

For me, ADHD has much in common with PTSD: Can't remember where you put your keys? Find yourself losing time staring out the window when you should be working? Don't want to have anyone over to your place because there's paper and "stuff" everywhere (not to mention being an introvert who simply can't "people" after a certain point)? Feel like you can't ask anyone for help until you've already done most of it by yourself? Feel like a failure if you can't pull it all off? :banghead:Overwhelmed by everything you have to do? Feel foggy and disorganized yet jumpy and anxious all the time? Feel ashamed??? Sound familiar????

Getting the ADHD dx was a huge benefit and game changer for me, because it made me take responsibility for figuring out how to live my life productively. One of the best and most practical books I've ever read is "ADD-Friendly Ways to Organize Your Life," by Dr. Kathleen Nadeau. :tup: It's co-authored by a professional organizer and they talk about organizing time, money, paper and "stuff," AND not getting overwhelmed with it all. They really give you permission to do things differently, to not feel like if you absolutely can't manage a filing cabinet and instead have messy piles all around you BUT you know where everything is, that is a perfectly legit way to go. It's an easy read, and might help if your PTSD is making you feel overwhelmed with all the things you have to manage. I've recommended it to loads of people without ADHD who for one reason or another are disorganized and overwhelmed and all the procrastination, time management, and organization self-help books don't do f*ck-all for them.

Great thread, thanks for all the self-care reminders, everyone!
 
I'm grateful for stumbling across this thread, too. Thank you for starting it, @Se...


Thank you for sharing your experiences too!

I am right now going back and forth trying to adjust to this, and the more answers there are, the more it helps ease off my own anxiety about it.

Especially when I feel like I have "too much going on to take time off"(while actually needing to take time off because I'm triggered and having flashbacks and so on). Or feeling bad that I'm comforting myself to make myself do certain things. There is a lot of guilt involved. So I am really trying to reframe it.
 
Remember Africa, the goal is normalization/desensitization... it will be initially uncomfortable but the progress is in the doing. Nothing wrong with a bit of self comforting in order to do the action items. You can take over the guilt thoughts... sorta like, "Listen sister, I tried it your way and it wasn't working so I made my decisions today and shut up. Decision is made today, you can have a shot at a say so tomorrow."

Keep kicking the football down the road on the self talk, each day is a decision and the anxiety/stress/guilt will normalize, honest.
 
P.S. Track or journal your progress or where you get stuck - a suggestion that really helped me was what I did well and what I "needed to improve". As in all plans, well they can change but with a successful plan that has reasonable completion of tasks... I sort of broke it down into 1/3rds: 1 task consistently for 26-28 days I can be 33% improved, 2 tasks... well that's 66%... three? Well three tasks consistently for a SMART goal period means 99%. It gave me incentive and it also gave me an out for low days if all 3 were too much.
 
Remember Africa, the goal is normalization/desensitization... it will be initially uncomfortable b...
That is a good point:). I'll keep trying.

Actually yesterday I was proud, it was the first time in 3 years when I made a list of tasks for the day that was realistic given my health, and managed to complete it with time left at the end of the day.

I always make impossible lists and beat myself over them, it's part of the whole PTSD deal, work/successs/money is really intertwined with my triggers...but yesterday I made a managable list, and told myself I may have days when I do more, but that day this is good enough. And it was, and it felt good.

Today...I'm a bit off. Still more productive than I've been in weeks though, so I guess it's something. That's why I need to plan this in. So may be I can have more wins, more days like yesterday.
 
I started really small... this thing I constructed based on a Galileo thermometer. Basically I did one thing for my physical health, one thing for my mental/emotional health, and one thing for my spiritual health. Principle being, with the Galileo thermometer either it rises or falls in the cylinder. Do none of the three... it drops fairly quickly, do one and it drops still though slower, do two of the three and it rises slowly, do all three and it rises more quickly.

That's where I had to start at and when I had reliably mastered the three... which really are all about maintenance actions, I cracked the lid on more action items. But I was really ill when I first came here.

I actually have a Galileo thermometer in a prominent place still to this day to remind me.
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$930.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  51.7%

Trending content

Featured content

Back
Top Bottom