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Sufferer New Here, For Almost 9 Years Can't Get Help

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Nohelp

New Here
Sorry in advance for knowing this is going to be a long post but have a dr's apt tomorrow with a new dr and am going to try again for a referral to someone in my state or adjoining state that will help me for ptsd.

I am a 55 year old female, my issues started when I was 21 with a marriage that was 7 years too long. It included physical, sexual and verbal abuse. When I finally was financially able to leave and found a safe place out of state he harassed my mother until she gave him the phone number to where I was and he hounded me until he shot himself while on the phone with me. I had an operator connect me to the 911 district to where he was to report the shooting and then called his family. Long story short the family hounded me into coming back because they said I would give him the will to live and ended up marrying him. (Stupid me, young and stupid) = 7 years of horror. When we would argue and I told him I wanted a divorce he would rip his shirt open and point to his scar and say "I did this for you". I couldn't sleep had night terrors, couldn't eat, went into a deep depression. My last employment caught onto the abuse when I walked in with my face cut and bruised. One of my co-workers said "You can't blame your horse for that one can you?". Was pulled aside by a co-worker and was told to get help or he was going to kill me. I got to the point that I couldn't function and went to a psychotherapist and was told I had an emotional breakdown. I then went to a psychologist and was told I had severe depression and ptsd and was put on medication.

I finally got out and married my childhood sweetheart, still was having issues, night terrors, panic attacks and not able to handle stress very well but able to function.

Dec of 2005 moved out of state and here's where my issues have escalated, my then 16 year old son was shot in our bedroom only feet away from me when my husband was moving the rifles on the wall hanger, a shot gun that was loaded but on safety went off just as my son walked up to the bedroom door and hit him in the chest. I don't remember much but what I do still haunts me daily. He survived, spent 72 days in the hospital. I'm typing this in the same room where it happened.

No one will help me in this area. One dr said I was just depressed and put me on Prozac. For several months still had "break out" panic attacks, night terrors of my ex husband and what happened to our son. Went to another dr and same thing "Prozac". I was a semi functioning idiot, no sleep, night terrors and panic attacks.

2012 I was diagnosed with breast cancer and I slam dunked, BAD. My husband was working out of state and my son was non understanding. Went back to the dr and asked for something to help me. A friend suggested I ask for zanax (sp?) and the dr treated me like a drug abuser I had to sign off on some type of medical sheet and had blood pulled. She left me in that room from 9:30 til 2:45, she forgot about me.
Put me on Welbutrin and I had a bad reaction to it. Then put me on something else and I had a seizure.

Went to another dr and told to take benedryl to help me sleep.

Last dr put me on clonazepam 0.5mg and would do a referral for me to a psychologist but got told later that I would have to find one myself for ptsd. That medication does not help. I feel like I'm breaking and the drs won't help me. Is there some type of test I can demand to get help?
 
I am very sorry to read the devastating details of your past, particularly the death of your son. I cannot even imagine the tremendous pain you are going through.

I think perhaps the best place to begin healing would be to allow yourself to grieve. Are there any grief support groups in your area? Are you in therapy? I would also like to suggest that you keep a journal. It is a good way to express your grief and to guage yourself.

Welcome to the forum. I do hope and pray that you find some peace soon.
 
a3a2, I'm so sorry I confused you, my son did not pass away he did survive. He spent 43 days in ICU and the rest in a regular patient room. He was only given a 5% chance to make it but beat the odds. I still see it like it was yesterday and want to put it in the past. Living here where it happened hasn't helped and the property has not sold and can't afford to move until it does.

I would do therapy if I can get a dr to get me a referral to a psychologist who deals with ptsd. My last trigger episode was 3 weeks ago and it hasn't eased up and only getting worse. I have kept a journal and it does help but I need more help from someone who can help me be me again. Thank you so much for your kind words.
 
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If I am understanding this right, your son is now about 24? Is your husband back home for support or do you have another support system? I do not know where you live, but in US where I am, there is at least some help, though not always available. My dr of 20 yrs does prescribe me xanax. He treated me for many years though and see's the difference in me. Psychologist can do extensive testing for other disorders and can make a proper diagnosis. Where I am, often the psycologist or counselor will exchange records (sign release) so that the dr knows that you are doing things to help yourself because benzodiazipines are very addictive and easy to adapt to the dosage requiring increases, therefore, the best is combination of meds and therapy.

There are many other anti depressants that a good dr can try with you. I have tried many and been intolerant to. In the past year, ones they tried me on caused blood pressure to be high. Actually, it is likely combination of pain and anxiety that has increased BP, but I can tell and feel like I was going to have a stroke. Finally they found one that worked for me and I can usually go all day without xanax and only take it at night, unless I have a major trigger causing panic. Because of not being provided anti depressant that worked, I had to keep increasing xanax just to function and sleep. My dosage is too high right now at bedtime, but my dr trusts me and is letting me have it knowing that I am doing my best to reduce the dosage on my own. I am very consciencous about meds and he knows that-thank God.

I am so sorry for all that you have been through and hope that you are able to find a therapist that treats ptsd and a dr that will work together for a plan of stability. Welcome to forum also.
 
brat17, thank you for your kind words also. That's correct on my sons age, he had too many issues himself and couldn't stand living here and left last January and hasn't kept in touch. My husband has been home since he became disabled due to an accident and also has had a brain injury with memory and personality issues but he is there for me. He can't do finances and don't communicate well with others so I have to pick up the slack so I'm constantly on overload.

I'm so glad I found this forum doing a google search on ptsd. This is the most I've been able to explain to anyone without being pushed out the door. My last trigger episode was 3 weeks ago due to the dr telling me he was only giving his clients 20 minutes and he would not listen to me, he cut in and told me that he was "more concerned with what could kill me after looking over my family history like a heart attack or stroke" and ordered a cholesterol blood test and said we would talk more on my next visit! Really!!!!! That set me off and had my husband drive me to find another dr that I'm going to see tomorrow.

I did another google search and found a facility that works with ptsd and other disorders about 3 hours from where I live and am going to give the info to the dr tomorrow and ask for a referral. I am so glad for you that you have a good dr that has been able to help you. And thank you for the kind welcome.

I will post tomorrow after my appointment on how it went.
 
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Hi @Nohelp - You've suffered a constant stream of awful traumas, I'm so sorry to read about it all. I felt for you as I've also found this chronic 'no-help' business.

Something I've learnt is that doctors are only people. They mostly lead such privileged lives that they simply cannot grasp the daily overwhelm with which some or maybe many of us have to live. So they can't take it seriously. Also, from what I've experienced, presenting them with such unrelenting chronic trauma makes them feel inadequate. Doctors don't like to feel inadequate.

I don't know the answer to that. Except to say that they desperately need better training generally and about PTSD - and to learn compassion. But I think my point is that it's not your fault and that it's hard work in itself to find the right doctor and the right treatment. So much luck is involved (some people find the right doctor immediately). The only thing one can do is keep on looking. It seems to be crucial to get the PTSD diagnosis/label which can trigger the appropriate treatment.
 
Hi @Nohelp

Welcome to the forum! :)

Constant stress and trauma exacerbate PTSD symptoms and it is important that you find someone to treat you. I am not sure where you live, but if it is in the US, as a cancer patient/survivor a local Cancer Support Community may have a licensed therapist that can help you and at least provide a referral to a trauma therapist.

I too have PTSD and cancer and have found that I must mange the PTSD much like I do my cancer treatment. The tie between mental and physical health cannot be separated and both need to be maintained optimally to actually feel well. It is hard at times to get the help you may need, but look to local resources, hospital social workers, programs at the local Y, and push your own physicians. You need to be your own best advocate. PTSD can be put into remission.

Debbie
 
I hope your appointment goes well. Others are right, there is a lot of "no help" business, and while you do have to be your best advocate, I understand how difficult this is when you are having severe symptoms.

When I was young and healthy, I found myself in situations of dealing with idiots, such as a billing error. I often thought, "how do or can the elderly or sick take care of such things when you are on the phone with nonsense that is incorrect, and the person at the other end is not getting it?" I had to help my mother with all kinds of things that she either did not understand, wasnt explained well, and such.

I feel very fortunate to have such competent and compassionate professional (counselor, dr, pharmacist, etc). I do have my share though of other idiocricy, such as my health insurance cutting my counseling off with my established therapist and taking payments back because the said they made a mistake by approving her, and wanted me to start with someone new. The same insurance has taken the medication that works away because there was no generic and put me on a 6 month roller coaster ride.

So much money goes to big CEO salaries and administrative costs, and so little to the services for the people that it is meant for.

I have my fingers crossed for you that this dr will be able to help you.
 
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