• We are a multilingual website again. Read the notice about this.
  • Understand AI use at MyPTSD: all AI use is explained in our AI help page. AI use is by choice here. It exists if you want it, but does nothing unless you choose to use it.

Sufferer Newly Diagnosed And A Bit Scared

Status
Not open for further replies.

InsideAWord

Gold Member
Hello, my name is Kara and I am 23 years old. I would like to keep my trauma private for now until I feel more comfortable around here.

I'm reaching out to this community because, I'm sure as most sufferers know, I'm experiencing a lot of isolation and misunderstanding from my diagnosis. The trauma occurred a week before my twenty-third birthday, so around August 16th. The trauma lasted for about a week. I went to counseling about two weeks after the event because my family had no idea how to deal with me anymore. I was having daily panic attacks (around 2-3 times a day, sometimes while driving), agoraphobia, severe insomnia, night terrors, and I needed moderate to sometimes maximum support to even practice self-care. I was in a really bad place for about the first month.

Because the waiting list was so long to see a psychiatrist in my area, I went to my primary care doctor to receive sleeping medication in the meantime. I needed to sleep because when I would only sleep for a couple hours, the panic attacks were more vicious. Also, I work full-time and attend school full-time (I'm a senior in college).

Finally, I met with the psychiatrist after a referral from my therapist. Don't get me wrong -- my therapist and I tried really hard to use natural remedies to attend to my episodes (melatonin, lavender, long baths before bed, cardio exercise (I like to run.)) I was in the psychiatrist's office for 2 hours and after her evaluation, she told me that my primary diagnosis was PTSD and my secondary diagnosis was general anxiety disorder.


I'm currently on Lexapro during the day and Seroquel-transitioning-to-Abilify for nighttime. My family has supported me tremedously throughout this whole experience but in some ways they have not; they hate the fact that I'm on anti-psychotics and anti-anxiety meds. My mother always gives me a dirty look when I come home from the pharmacy with my medications and asks me why I need them. My sister keeps saying, "it's over, just move on."

The last two weeks, I stopped taking my medications to appease my family. The worst episodes came after the 9 day mark when the night terrors returned. I woke up 10 times throughout the nights unable to catch my breath and not knowing where I am. When I tried to tell my family how the medication is a.) the only reason I can drive to and from work and school, sit in class, and b.) drive without a panic attack and the only thing that lets me sleep at night, they just tell me, "You don't need them, you need to get off the meds."

My end goal throughout my treatment is independence from the medication. My therapist and my psychiatrist know that and they fully support it. In fact, they believe that my perspective is extremely healthy. However, they want to wait until springtime to ween me off the medication. And, after attempting to quit the medication cold-turkey, I'm afraid that this battle between my PTSD and my family is going to escalate.

The panic attacks, although not completely gone, are more manageable with my anti-anxiety medication. I use the Breathe 1-2-3-4 method and the Sensory 1-2-3-4 method usually to ground myself so that way I don't escalate.

Please, I just want some people to talk to about this. I feel like my family perceives my treatment for PTSD as an excuse to use this medication and their thoughts hurt me very much. In fact, the arguments (which usually result in yelling) will sometimes trigger an escalation.

Please help.
Kara
 
Last edited:
@InsideAWord You are among friends here. I agree with your goal of being independent from your meds.

As for your family; maybe you can get some educational material for them that will help them understand what you are going through.
 
Hi Kara, and welcome!

I am SO sorry that your family isn't more supportive. Sadly, unless you're in the PTSD boat, you have no idea what it's really all about. Your family likely THINKS they are doing what is best, but really they have no clue.

We can support you here. We understand what medication struggles are. I've been dealing with med issues for years now, and recently went for almost 3 years without being on daily medication. It is no light decision to start taking medication. Many of us struggle with the decision, myself included. But at the end of the day, it is your body (and mind) and your decision to take medication. I even had a doc once tell me that I needed medication to stabilize as going without could even worsen my condition. Well, turns out she was right.

I hate to say that you should hide things from your family, but if they don't support you, it's none of their business! Meds are just one tool in the box of healing tools. You have a very healthy attitude toward their use and you should be commended for it!

If you were a diabetic and they harassed you for taking insulin, your health would be put at risk. I think this is the same, and can be viewed as abusive on their part.
 
Well, Kara, you definitely found someone you can talk to about it. Many someones...

I, too, maintain the goal of living without meds. Currently, I have achieved that goal, but I will not hesitate to use medications again if I need them. Yea, they are a crutch, but I see no shame using a crutch when my leg is broken. I also trust my professionals to handle the monitoring, etc. I believe with all my heart and hope that my family will never be detached enough to do the job objectively. My pros are on the payroll for a reason.

Welcome to the forum, Kara. Sorry for what brings you here, but glad you are here.
 
I agree with what Russ, Solara and Arfie said. I'm an organic food and green freak, and definitely sway towards the alternative medicine route. However, for serious issues, which I consider PTSD can fall into, meds are oftentimes necessary. I was nearly six years free of meds before starting again last August. A week later I was asking myself "Why didn't I wait so long?"

You're getting a grasp on how PTSD affects people, you know your symptoms, and you know what's working for you. The analogy of being a diabetic and needing insulin is a good one. If you mangled your foot in an accident and needed a cast and meds, would your parents be against that? I'm sure you can come up with some other analogies to say to your folks.

Maybe have one last conversation with your parents. They may never know what you've been through and are going through, but praise them for the support and affirm that you realize they love you and believe they know what's best. However, this time is different and you are an adult now (even if you're living under their roof). Let them know you appreciate their support, that you'd like not to depend on meds, and when the time comes you know they'll help you through that. The time just isn't now - the time may/will come when more time has past, when more therapy's been done and when there's less stress. End of argument. [Hide/Lie as Solara suggested if you have to - I hope it doesn't come to that.] As to your sister, she's completely ignorant and needs to mind her own business - this matter has nothing to do with her. Sorry to be so blunt.

Lots of good resources here, and helpful folks. Welcome to the forum, Kara.

Drew
If I were working full time and finishing my last year in college, I'd need meds even if I didn't have PTSD :rolleyes:
 
You're a lot more conciliatory than I would be in your shoes. If it had been me, I would have bought a basic book on PTSD for each of them...and at the next sound of any of them heaping scorn and rejection due to meds, I would have taken the opportunity to hurl the books directly at each of their heads, while shouting "here, maybe you can read these so you can actually have SOME idea of what you're talking about, while your in med school to become experts on recommending medication--since that seems to be your ultimate goals."

Again, not a recommendation. Just me. Tongue-in-cheek, maybe...but only just.

The fact that your parents would be revictimizing you IMMEDIATELY FOLLOWING a trauma of that magnitude....arrrgh....it makes my blood boil!!! AARRRRGH!

I'm so sorry you're being put through this...and by those who should be expected to be there at times like these with support and comfort---not scorn rejection and diminishment. Wow. I am so sorry.

I hope you'll keep in mind that, especially considering the symptoms you've described, it may be very hard not only to muster the wherewithal needed to resist effectively...but even to see clearly your right to do so.

In my opinion, you not only have the right...you have the obligation to yourself, as proof TO yourself that you value yourself.
When we don't stand up for what we know is right, and what we know we need, and are entitled to...
we feel as though we've let ourselves down, and accepted second-rate status as a victim...which can then begin to seem like exactly what we deserve...after all, we didn't stand up for ourselves, right, so we must not deserve to be stood up for--I think this is how the rationale plays out unconsciously, at any rate.

And while it may sound extreme to say so, I think that's exactly what's being done, and nothing less. You're being revictimized--you're being teamed up on by two people who pile rejection and inferiority on you...it sounds like, by my guess, and in all likelihood--at least to some extent because they get a superiorty rush off of it.
I honestly can't imagine another reason that could be responsible for that kind of "eye-rolling' scorn/shame.
It's not as though you're shooting heroin, for crying out loud. Do they not have even the basic understanding that physician's have training and licenses enabling them to prescribe meds, for a reason?
And that OTHERS DO NOT....AGAIN, FOR A REASON!!!

Wows. Sorry. This is just really getting me wound up.

At the very least, I think you should keep it from them, as another post suggested. Why not? If that's how they're going to treat you in your time of need, why would you owe them any more than that? Seems to be just common sense, really--though I understand how, in your fragile state of mind, everything can seem overwhelming and confusing, of course.

I'm glad you're posting to the forum. Hopefully you'll begin to feel comfortable enough to share your experiences more completely over time, but no rush, at all. You need to recover a routine sense of safety, first, in order to have a foundation of stability to build on. Please take care of you first, now. You have every right and need to.
 
Hi Kara,

Welcome to MyPTSD forum! :)

Families can "think" they are being supportive and their actions turn out to be quite the opposite. I don't know how open you family is to learning about PTSD and its effects, but the more they know, the less afraid they will be and the more supportive. The topic of medication can cause so many responses, but ultimately the decision is your's and your's alone. You need to do what is best for you and if medication helps you with your recovery then it is not a point for negotiation.

I hope you find the information and support here helpful to your recovery.

Take care.

Debbie
 
Thank you everyone for being so understanding. I don't want to sound melodramatic, but I started tearing after I read the responses and the expressions of support.

My mother and sister love me and they are my family. The major complication is that my sister is a nurse practitioner so she thinks that she has the medical authority over my therapist and psychiatrist. I keep trying to explain to her how the benefits of the medication mean more to me than the side effects, but she doesn't want to listen. Also, I was drinking a glass of wine after class and work last week and my family was up in arms that I was drinking while on the medication.

I've never experienced anything more isolating than my PTSD. My mother asked me what my panic attacks felt like and I had a hard time clarifying how debilitating they are. And, I know my mother loves me and she wants to help me, but she keeps saying things like, "You don't need your therapist. You can talk to me." However, every time I try to talk to her, she tries to solve my problems for me in a simple gift-wrapped package that just doesn't work.

My flashbacks, though rampant throughout the day, are not disassociative. I'm aware of my surroundings and of people around me when they hit me. My hypervigilance throughout the day is sometimes compromising for my safety, especially when driving, but that is usually when the panic attacks hit me. The scariest part during treatment and during my de-escalation phase from the trauma was about a month and a half later when the panic attacks clearly decreased but that anxiety festered in my subconscious and raged with a vengeance during my night terrors.

I'm 23 years old, finishing school, and working full-time. My mother would tell me, "Well, just come in my bed when you have a nightmare." The problem is that I'm 23. I'm an adult. That is not a crutch that I think is healthy to lean on. Although I want them to be supportive, it seems to me like all the avenues they suggest toward my treatment are not healthy or even recommended by my therapist and psychiatrist.
 
I'd like to apologize for my previous post, for painting your family as outright villains. As intothelight so correctly put it, your family can think they are acting in your best interests even when they're not. I was triggered by your story, and my resentment of my own parents took over, and I lashed out...at your parents instead, which I obviously had no right to do, or even make assumptions about. it was entirely inappropriate.

So glad you're continuing to post, and keep a clear head about the need to protect your own interests.
Be well.
 
It's fine, I'm not offended. I just don't want anyone to get the wrong impression of my family because they are doing the best they can. It's just that they've never been accepting of any psychotherapy whatsoever, so I was anticipating some resentment when I entered treatment. I know that it is frustrating for me but I know it must be hard on them. I just feel horrible that the traumatic event disrupted everyone's lives... not just mine.
 
Dont feel horrible that your trauma made others feel bad. that's noble but misplaced.Youve got enough on your plate already without taking responsibility for others feelings resulting from your victimization.You didnt hurt them or cause them your abuser did
 
Status
Not open for further replies.

Donation drives

2026 Donation Goal

Goal
$1,800.00
Earned
$910.00
This donation drive ends in
0 hours, 0 minutes, 0 seconds
  50.6%

Trending content

Featured content

Back
Top Bottom