Thanks for responding (to everyone!). Yes, very simple things can trigger pain for me.As I understand it, fibro makes you more sensitized to pain. So even simple things like cutting veggies might activate it for you.
Oh, glad to hear! I was dx with epilepsy years ago, but I'm now without meds. I think I could still be having some seizures--I get horrible smells sometimes--but the awful, hard times of the epilepsy seemed to have passed.t's not voluntary but there's no epilepsy or anything like that.
I think most areas of medicine are poorly understood, but there are definitely some that "professionals" have no ideas about.It depends how you view FND, which is an area of medicine that is very poorly understood, though there is growing evidence that individuals with FND have anomalies in brain pattern activations and white matter pathways that aren't present in those without the disorder, which in my opinion is related to the ways in which the brain is altered after experiencing trauma.
I've been on both and come off both. The gabapentin was for seizures initially, and I had terrible side effects. They put me back on it several years later for occipital neuralgia, and it did help some, but...again, awful side effects. Bad side effects with the Cymbalta, as well, and it didn't really help. But I was on it for depression.One of my friends has had luck with gabapentin and Cymbalta for the fibro.
Hm...I got off both with very little problems.Once you get on it you basically can't come off,
Yep, me, too.gabapentin is on my no-fly list.
I've come to disbelieve all instructions to take more or take something else. Doctors just have no idea how to help sometimes.But if it doesn't and they say "double down" and take more, well, the chances of a good outcome are diminishing based on my experience.
Yes! It's especially hard if you are active. I didn't realize how much I did or wanted to do until I couldn't because of the pain. It definitely makes the depression and hopelessness worse.It's so hard to live with chronic pain and limitations on what you can do.
For some, it can be brief with no recurrence. For some, though, it can last...well, for decades. I tend to have short periods where I'm ok (although my ribcage and sternum always hurt--they feel like they are bruised when I press on them) and then flare-ups when I do anything to trigger it. The worst is walking. I love to walk, and it just causes so much pain.I Thought costochondritis only lasted a week or so? I've had it a couple of times and it resolved fairly quickly. I'm wondering if there is a different kind. I'm not trying to question your pain, I really want to know about it if you don't mind.
Yeah, I could try that. I haven't up to this point because I think it will cause a whole bunch of other issues. I have trouble going to the regular doctor (and she's about as non-threatening as they come, working in a local clinic and talking more about herself than me--she is the only reason I can go at all right now)--takes me months to schedule, causes an immense amount of anxiety. I have very little trust in medicine and its "professionals." I am noticing it is more of a thing now than it ever was.Can you ask for a referral to pain medicine?
Nobody seems to have any interest at all in helping. I've had pain for years, and it has progressed to the point where I just am wiped out if I go out during the day. Like today. I took my mom shopping--she's 87 and really needed to get out of the house--and the pain has just exhausted me to the point where I just can't do anything. I am functional in that I work, I volunteer, I have two businesses. I think everyone just assumes that, since I can do all these things, the pain isn't that bad.I'm outraged that they didn't refer you already since you've been in such pain for so long. WTF?